I live in FL. Lots of Sun. I was instructed by my Dr. to stay out of the Sun. When I do go out it seems to really irritate my skin. I, personally would not advise. I wait until night to go in my pool, or a least have yourself covered from direct sunlight.
Actually let me rephrase (sorry phone rang at work) any sun drove me insane and felt like it was burning my skin off. Even with heavily tinted windows driving in the car I felt like I was going to blow up any second. One time I made the mistake of going tanning, in the lightest bed for half the time. I turned purple, quite literally.
So test it slowly maybe it wont bother you but, it really got to me. That is when I started using tanning lotion so at least I wasn't grey. I might have been a vampire looking chick but at least I had a nice fake tan ;)
For me it wasn't just the sun, but the combination of heat, sun and sweating that turned the rash into an ugly monster. Once it flares it's a bugger to calm back down. If you have any rash issues now, be very careful. If not, maybe try very short exposures and see - if you are willing to take the risk. Otherwise, wait until the end of treatment to soak up some rays.
Ahoy. I live about four hours away from you. The "feels like" temp were you are is 93 degrees and it is 66% humidity. I am well acclimated to heat and humidity. I am not exactly the beach or tanning type but I already know how my skin responds to the pool, various sun screen/block, the sun, sweating and most important: to what degree the meds are photosensitive.
**photosensitivity is the huge wild card here that is unique to your physiology. All we can do is share how we respond in the conditions you outlined. I have nothing scientific to base this on but you have come so far and to be honest this is one activity I would not chance. I am not suggesting the meds are photosensitive per se; only that there are many variables to a photosensitive reaction which makes it difficult to predict.
Won't it still be summer when you are finished treating? Honestly, if you are not sure then I would wait.
I made the mistake of standing outside listening to music one day when it was warm and sunny. It was not that hot, maybe 70 or 72 at most. I was out there only about a half hour or 45 min and then went back into the building. Oh, my. Did I pay for that. My rash, which is always lurking just under the skin (you can even feel it even if it is not red) just went bonkers. I got the rash in full force and the itching ramped up. I had to take extra Hydroxyzine that afternoon and eve and I had to use the topical stuff all over the place. Now I stay out of the heat and the sun.
I agree, it is not just the sun. If I get hot, even inside, that itching and rash will ramp up. I have to keep the house quite cool to keep from itching.
I just got some sun this past weekend for the first time while on interferon/ribavirin tx and the rash on my legs near tripled! The red bumps became inflamed and the itching drove me crazy until I took an antihistimine. Temporary relief, but it worked. I must try an oatmeal bath.
It's been a year since I posted on this thread. I had to stay out of the sun through my whole treatment. I'm finally just starting to tan and not turn just red. I was starting to wonder if I could ever tolerate the sun again. I'm back swimming and happy to be in the sun. You might want to get something for that rash from your doctor. I did and it took a few days to go away.
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