Two years off treatment and still suffering!

[Frank J. Perrotta]

My therapist suggested I start looking for answers on the internet again...

I have been cured and off all meds for two years but still suffering and do not know where to turn.

I have been diagnosed with Chronic Fatigue, Systemic Yeast Infection, crazy weight gain (50 lbs), gurd, muscle weakness and the list goes on and on!

At my last liver docs appt they "apologized for destroying my life" and said that maybe I would recover in 6 or 7 years. They gave no suggestions for a speedier recovery saying my system was in chaos. This was at the University of Pittsburgh, UPMC.

Cleveland Clinic is somewhat nearby but whenever I tell my story no one seems to believe me or have any answers. It gets more exhausting and depressing with any new visit.

I am sorry to leave out details but there are just sooo many blood-tests that are a bit off I would not know where to start. If I can add any to this please ask.

frank

At my SSI re-hearing the work expert concluded that there were NO jobs for me due to medical poisoning and the need to sleep every 4 or 5 hours.

[Frank J. Perrotta]

Thanks for the suggestions. I will talk to my doc about those other tests. I will check out the site too (love the name).
frank

[lackalustre]

wow this is a long list of comments.   I too cured in 03 geno 2b.  have lots of lingering problems but i was very sick be4 treatment too.      the correct thyroid tests are very important!   I finally have a dr. who did the correct tests and started me on natural Armour thyroid.  You need to get FreeT3, Free T4, TSH, ferritin, Thyroid Antibodies tested!!!!  I cant stress it more. (i see you got a T4 and TSH test and thats not enough!!    go to www.stopthethyroidmadness.com           interferon is notorious for ruining your thyroid.  especially when you were on it so LONG.  

[Frank J. Perrotta]

Just an update.

Met with my new doc today to go over the test he ran a bit ago. I already had a copy of my records from the hospital so I knew that I was HIV free! Yeah! 90% of the other tests were also negative except for Hep C.

Hep C AB Screen = Reactive. Signal to Cutoff = H28.1 (reference Less Than 1.0).
(Note is in composed text.)

  This patient's sample tests reactive with a high s/co ratios: > or equal to 8.00.  Samples with high s/co ratios have been shown to repeat as positive using a different methodology 95% of the time or greater (CDC MMWR No. RR-3, 2003). Therefore, additional testing for verification of the result is not recommended.

Can someone translate this for me?

He did not run a viral count but wanted to rule in or out the hep c count. So more bloodwork and a CT scan with contrast of chest, abdomen and pelvis.

What is everyones thoughts on contrast?

So again, he says I was definitely not a candidate for treatment in his opinion (1a, low viral count, minor liver damage and healthy non-drinker). Wish I had met him five years ago!

He believes that my liver, hep C or the treatment is messing with my hormones as my estrogen, total (serum) was H136 (130 or less).

So a couple more tests and then I see the doc in three weeks.

thanks for any comments,
frank

[desrt]

Yes and yes.

[bajajkawa]

Sorry to hear your stories wishing you all the best.  Don't have any problems yet but worried.  Just cruious, is side effects more prominent who underwent longer tx (42 - 58 week)? Do you think age plays any role?

[Frank J. Perrotta]

I dont think so but there is a possibility. I have been monogamous for nearly 25 and long distance (Japan/USA) for about 7 years but who knows?

Until now no other doc has thought I showed any signs so???

So no to the cocktails. I have been against HIV testing for myself as I would never even think of that cocktail especially after the Hep C trip I have been on.

meki, thanks for the good wishes,

frank