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Week 12: <43 ~ Week 17: UND
Good news -- I am back to being undetected :-)
Other news -- I may have to continue treatment for 30 more weeks, instead of just 10; my doc just informed me that she is leaving but.....I will be assigned to the head of the department, who has already been consulting on my case; the (possible) extension of treatment has to do with the 12 week <43 and the African American factor. My hemo is currently stabilized (with the help of Procrit), my platelets are fine. My neutrophils, however, are fluctuating so we are keeping a close eye on that.
Question......for those of you with neutrophil issues.....what did your doc do/recommend? How long before a difference was noticed and was it lasting?
Other news -- I may have to continue treatment for 30 more weeks, instead of just 10; my doc just informed me that she is leaving but.....I will be assigned to the head of the department, who has already been consulting on my case; the (possible) extension of treatment has to do with the 12 week <43 and the African American factor. My hemo is currently stabilized (with the help of Procrit), my platelets are fine. My neutrophils, however, are fluctuating so we are keeping a close eye on that.
Question......for those of you with neutrophil issues.....what did your doc do/recommend? How long before a difference was noticed and was it lasting?
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Whaaa? Hunh? I looked that up but.....never heard of Sumerian cuniform. I do, however, remember that quote from Calvin & Hobbes. Priceless!! LOL.
Just realized your avatar is Calvin & Hobbes! I love reading them in the original ancient Sumerian cuneiform format, don't you?
“Who was the first guy that looked at a cow and said," I think that I'll drink whatever comes out of those things when I squeeze them?”
I mean that's priceless in Sumerian. It gives a contextual vibrancy that awakens the whole Sumerian civilization. Sure by todays standards clay tablets are a bit cumbersome but the pictographs are still crisp after nearly 6000 years. Who knew Sumerians were so funny? and invented the forerunner to todays tablet PC? A people misplaced in time. ... Anyway! Pip Pip Cheerio!
“Who was the first guy that looked at a cow and said," I think that I'll drink whatever comes out of those things when I squeeze them?”
I mean that's priceless in Sumerian. It gives a contextual vibrancy that awakens the whole Sumerian civilization. Sure by todays standards clay tablets are a bit cumbersome but the pictographs are still crisp after nearly 6000 years. Who knew Sumerians were so funny? and invented the forerunner to todays tablet PC? A people misplaced in time. ... Anyway! Pip Pip Cheerio!
Bee, I am in it for the long haul too. Just glad you got that UND back.
As for the low ANC, my doctor rxed Neupogen at one every 4 days when my ANC dropped to 600. I balked at that and did one shot and waited until my next CBC. The neupogen brought ANC up so hgih -- like 4.3(300) that I have not done another one yet and I think that was a month ago. Wednesday my ANC was 1.0 (1000). I don't like that stuff either -- it makes me really achey all over and I have never been able to see that I really needed it in the first place.
I hope the head of the departments takes good care of you and is not too busy. They do seem to be keeping pretty close tabs on you and that is great.
As for the low ANC, my doctor rxed Neupogen at one every 4 days when my ANC dropped to 600. I balked at that and did one shot and waited until my next CBC. The neupogen brought ANC up so hgih -- like 4.3(300) that I have not done another one yet and I think that was a month ago. Wednesday my ANC was 1.0 (1000). I don't like that stuff either -- it makes me really achey all over and I have never been able to see that I really needed it in the first place.
I hope the head of the departments takes good care of you and is not too busy. They do seem to be keeping pretty close tabs on you and that is great.
Hi I am so very happy for you, great that you are UND, during a trial I had the same issue, at the time no rescue drugs were available so they dose reduced me, mine went under the 500 about 4 times during tx, I was not aware until the day they called and told me to stop all tx. Mine had goten to low and a paper cut could have been serious. I really did not want to stop however it was not my call, that was Nov 2008, I relapsed New Year's eve 2009
I wish you all the best. I know how hard it is to have to change doctors, I had a pretty good guy, the someone related to the trial came in and said he was not doing it properly so he left and I had 3 more clinical coordinators the last few months. Having the Head of the Dept is wonderful and I wish you nothing but good wishes into the New Year.
Dee
I wish you all the best. I know how hard it is to have to change doctors, I had a pretty good guy, the someone related to the trial came in and said he was not doing it properly so he left and I had 3 more clinical coordinators the last few months. Having the Head of the Dept is wonderful and I wish you nothing but good wishes into the New Year.
Dee
Wow. THANK YOU EVERYONE!! The doc did mention the possibility of further Peg reduction first, then Neupogen IF needed. No Procrit for tomorrow, will see if my HGB continues to rebound on its own over the next week. She also mentioned that 500 red flag for the Neutrophils. The labs I did this morning say: 0.8 (x10E3/ul). The preferred ratio is: 1.3-7.0.
CanDoMan -- Not too upset about the doc change, as I will still have the same team (and my tx nurse) looking out for me. Plus, this isn't a doc I expected to keep forever, as once I am SVR......I never wanna see that place again!!
As for the possibility of longer tx time......I want to reach SVR. I only want to do this once, so I'm in it to win it. My New Year's attitude will be to move forward and do more to get my life back, instead of letting this continue to be the focus. The support, education and encouragement in this forum is a much needed blessing and makes this easier to process. THANK YOU THANK YOU THANK YOU ALL.
CanDoMan -- Not too upset about the doc change, as I will still have the same team (and my tx nurse) looking out for me. Plus, this isn't a doc I expected to keep forever, as once I am SVR......I never wanna see that place again!!
As for the possibility of longer tx time......I want to reach SVR. I only want to do this once, so I'm in it to win it. My New Year's attitude will be to move forward and do more to get my life back, instead of letting this continue to be the focus. The support, education and encouragement in this forum is a much needed blessing and makes this easier to process. THANK YOU THANK YOU THANK YOU ALL.
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About low neutrophils, when my anc gets below 500 I take neupogen.
My hepatologist said to take it before my interferon.
I take it the day before, about 24 hours.
It raises our wbc and neutrophils, but not for long, only a few days.
I'm a lightweight and my first neupogen shot wiped me out, so my doctor agreed to lower the neupogen dosage.
I haven't heard of others doing this, but thought I'd mention it.
Good luck on getting to the finish line!
I'm rooting for you.
OH