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It is good to hear from you once in a while. You guys and Betty, her daughters, and all those of us close to each other need to have a get together at Panera or Pancho Villa or something for the holidays, or shortly after. I hope we do.
If not, have a great one.
Interestingly shortly after I was notified my son and I began using the town's dental clinic due to our insurance. I told them I had hep c- well actually in my ignorance about this back then I used the words-I was being treated for hep c. I just thought if the dr knew and we were discussing options it constituted treatment(boy was I wrong). So this past spring I was due for a cleaning and had to make an appt with the extraction guy for some minor work I've needed for years. The hygenist who had been working on me for two years was about to start in and asked how treatment had gone. I told her I wouldn't be starting for a few months (at that time). Wow. She stepped back very upset, took her gloves off and said "I thought you told us you were on treatment. I explained but she told me I would have to come back with a note from my dr saying I was on treatment and that dental work would't be a problem for me. After waiting 2 hrs for the appt I wasn't in a great mood anyways. I looked at her and said "You mean like a hall pass from the teacher in jr high?" and left. I told my doctor who shook his head and said- she's just trying to protect herself. He wrote me a rx to carry that said I'm medically able to have work done, though I've opted to wait.
As far as dental problems I haven't noticed anything out of the ordinary. Considering all the booze & drugs I'm suprised they aren't falling out. Maybe I keep lucking out cause of the stock I come from. I've mentioned what a bull my 82yo father can be. He has 7 of 11 siblings still living. The 3 oldest are 90, 93,and 96. The 96 yo worked his farm til about 89. The 90 yr old was a widower in his 70's, remarried at 85, and DIVORCED at 88. Guess she was slowin' him down.
:)
I have bad teeth and gums but believe it to be genetic and related to a lack of floride in the water where I grew up. Also, as most know, any past history of drug abuse - especially heroin or meth amthetimines can destroy teeth, and that damage may not show up for years.
My dentist just said to floss and brush more often on tx. He said to suck on sugar free mints or gum to increase saliva. He also said that he uses universal standards for protection -- goggles and gloves - which protect the staff, and he said he did not think you could be turned down for care with Hepatitis C. The problem is that it makes some doctors and hygenist nervous so they do it anyway.
azgirl -- I find the actions of that old lady nurse to be totally ignorant. She really should be written up. I have not told my blood drawers that I have hep C - it should be evident from my charts - but they too use universal protection procedures.
friole
I still can't imagen doing 2 rounds on the TX or more, this is ONE TIME ONLY.....
I have alway had bad teeth do to using drugs and I know my teeth have gotten worst since i started the TX.. And i am so ready to have them fix but can't because of the Tx and i figure i will have to wait til at least 6 month after the TX to get them fix..
i have come down with infections in my mouth in the last 3 months that the doc said it yeast infection and I take nystatin mouth wash.. I belive it from my teeth and i brush everyday and use mouth wash too, and lot of it to do with my wbc being low 1.0..
So anybody have this problem tooo infection of the mouth??
Have a Great Day All
Kenny
Am 4 mths post tx & have not yet gone to dentist, cracks are getting worse.
There was another post about this recently... the one thing I can recommend is the colgate mouthwash peroxyl, it's great for this sort of thing. helped me immensely... here's a link to the product.
http://www.colgate.com.au/app/Colgate/AU/OralCare/ProductRecommender/Rinse/PDPs.cvsp?product=ColgatePeroxyl
Even if I just drink fruit juice. I go through floss like no one else. Yet, regretably, I still have teeth probs. I'm now paying thousands for root canals, crowns, bonding, you name it. But then I am 52 and the eyes and teeth go first at my age. (Sorry for the visual! he he he.)
It's probably hard to tell how much of the blame lies on the virus, because sometimes when I quiz people on this, they'll tell me it's the virus, yet they'll be in their mid-fifties (which is the age that the teethies are going to start giving probs anyway.) And/or they don't take the best care of their teeth, so many contributing factors. So maybe it's the virus for some, but like anything else, it's multi-factoral and hard to call with some people.
But then chemo-therapy is another consideration, I know from talking to many that that's a big contributor because of the drying effect if gives your body, and when teeth and gums are dry, the bacteria are free to do their job. (Hope people on tx are using mouth moisturizers, anything and everything to help this. Biotene or something stronger, gels, etc. I'd also do a little mouth rinsing with aloe vera juice and water, not to mention just drinking the stuff as well. It's great for keeping moisture in the tissues. Also, no products with any alcohol! A notorious drying agent. Actually, no one should use mouth wash with alcohol because of this, but will they listen to me??? he he he)
And yeah, I've often thought to myself, well, if I start treatment, am I unnecessarily paying for this darn crown on a root canal, when the whole thing will just rot out anyway once I start taking taking treatment? I've heard this from a few people. But I don't want partials so I'm just going ahead with it anyway, and let the teeth fly where they may! Who cares if I could of bought a new car with what I'm paying my dentist!!!
A Public Message from the West Hollywood Tooth Fairy....
Off the subject, kinda, but I have been hearing rumors that they had been able to synthesize the element in some people who have really good teeth that last a long time...a natural enzyme that scientists have been able to duplicate...but the dental orginizations have squashed the patents on it because it would essentially put dentists out of buisness, or curtail their business greatly. For all you conspiracy theorists out there. he he he.
I had periodontal surgery 10 years ago, I wouldn't wish that on anyone...It hurt something awful, my cheeks swelled up like a chipmunk and stayed that way for a week!!!
I am not on conventional tx, and just found out I have HCV in May of this year, but I am sure the virus is what caused the dental problems...Since I had the surgery I have been getting cleanings every three months and that works fine, no more problems...
*the dip*
My teeth are beginning to fall apart - but I had read in here that cracking and breaking and cavities and things could be expected.
Going to make an appt and see if my old dentist will take me now that I am "contagious, diseased, infectious" mess that is ME!
;-)
He better cause the teeth are driving me bonkers.
How you feeling these days? You go the anemia under control yet?
*dipster*
Also when I had a hida scan the other day they had trouble getting the iv in my arm and so this really old lady came in and she tried and didn't get it. When she came in to do it she didn't wear gloves so I told her she should wear gloves and informed her I had hepc. She said oh that's okay. Then she wiped my blood with her bare finger. I asked what the hell are you doing? I just told you I have hepc. She said oh it's not that contagious. I asked for someone else to come in and try since she stuck me 4 times already and the other guy already stuck me twice. I hate needles ugh....shiver.
deb in az
My GOD that irresponsible woman could get it and contaminate so many, many people somehow! She should be reported. Sorry but I can't believe it!!!!
VEGAS - anemia under control it seems with the two shots a week. Don't have my new numbers yet Doc told me just go every two weeks since I've rebounded. Last time I went up from 9 to 11.1. WHAT A DIFFERENCE! No where near "normal" but this is WAY WAY BETTER!!!!!!!!!! :)
I have not been posting as much but I have been reading hee hee. You are still a VERY silly little dip aren't you? And you SOUND really good lately. Are you feeling good? :)
the reason I know that my problem was HCV related is because of the bone loss...I had a bone density test not o long ago and it came back fine, but after talking to my dentist about my pockets he said if there is bone loss mostt likely it is related to the virus, if not then it's just bad dental hygene....well I am anal about my teeth, after going through the peridontal surgery I got even worse...He also said that implants are not something he could do on me because of the bone loss...if there's nothing to drill those suckers into you can't get em!
just more of my 20 cents worth....have a good day!
Have a good holiday yourself and be well.
Of course years of partying isn't good for the old teefers, but I also think years on not flossing properly could even be even worse. Maybe one of the reasons partying is bad for the teeth is because if you go to bed wiped out high, youre less likely to brush and floss your teeth before bed, so the little bacteria are partying in your mouth so to speak. ha ha! Not good.
And of course, drugs can wreak havoc, anyone's bound to get Jerry Springer mouth if you use powdered drugs cut with god knows what.
I do worry about my teeth on treatment though, but maybe that's the least of it, I hope so. Hair is up there too, I'm ashamed to say.
lilmoma
BTW if you have any kind of tongue or lip piercing this also can crack the teeth....
Azgrl's comment on the nurse with no gloves reminded me of one time when I went to an HIV testing clinic in the city. The nurse there didn't wear gloves either- and where could you find a higher-risk bunch of people than at an HIV testing site? I asked her if it scared her and she replied, no, it's not that easy to catch. Strange, huh? Oh well... just my 2 cents.
-Dee
Seriously - I had almost perfect teeth before HCV tx - and during TX I had to have a tooth pulled, some cavaties filled - and they say I'm going to have to keep coming back.
Sigh ---- I like my teeth ---- or did...
Oh well - the chompers have been chomped.
Meki
Ps. Maybe the interferon kills the good bacteria in the mouth that stops cavities?
Almost everyone that I have ever talked with regarding the dental issues, who have also had HCV, all seem to have the same litany of problems. After tx most seem to need lots of follow up dental and gum work. I believe that the disease attacks the teeth through the naturally stimulated autoimmune process (just as it causes a Sjogren's like syndrome in many with HCV), and then that the tx greatly accelerates this autoimmune process, so that gum tissue, bone, and tooth nerves and pulp are under heavy attack by our own system. I think this best explains these dental issues, as well as the host of other post-tx problems that frequently crop up. Many are sx that we already had ,to some lesser degree, before tx, as a result of the HCV infection and immune system process.
The other possibility is that the HCV virus itself actually attacks the tissues (tooth, bone, gum) and cause this syndrome. This makes LESS sense, since the tx often clears the virus out, and the problems only seem to get worse. Hence my belief that it is truly an autoimmune issue.
I do not buy the idea that everybody without HCV also develops these same problems in their 40's and 50's. I know way too many people who have never had HCV who have very healthy teeth. My dental issues are monumental compared to their history of issues. How many HCV'ers and Tx'ers have had few dental issues??? I bet there aren't many out there!!
It truly is the HCV, and even more so, the tx, that is to blame.
It is not a good situation, but I guess it is just one more thing that needs to be dealt with aggressively, so that we do not end up in horrible shape years down the road.
DoubleDose
But it seems in the last 5 ,6 years, since I had really started to feel poorly with the Hep-c,
That I was way more often at the dreded Dentists,with way more bigger yeeowieez in my
mouth,,,root canels,,,filling falling out and taking half the tooth with,, teeth getting pulled out,,ic.
It was not very smart of me getting a back tooth pulled out on Wensday,and then starting my TX ,and
first shot on thursday,my cheek is still swollen .............................
My Dentsit also has said I have gum disese (disease)(sp),,,
Like Meki says,,,I had nice strong teeth too,,,,,,,,at one time,.,.,
Oh well I guess there is always implants,,,,lots of $$$$$$$ tho......
See ya ,Gale
-- Jim
Maybe you have some pretty powerful genes when it comes to teeth!
Good luck to you, and good to hear from you. I trust you are enjoying the summer.
While we are on the subject of dental issues, to everyone out there: What about problems with mouth sores, chronic cheek eruptions, painful spots in the mouth in soft tissues, etc.???
I had some of this before tx, from time to time, but after tx, the mouth sores have been a chronic, and very irritating issue. Anybody else dealing with these problems after tx?
DoubleDose
During treatment every cavity I had became a root canal and a few of my teeth actually broke teeth with fillings without fillings... Interferon just eats them alive and made it SO much worse..
That is why the doctors advise us to take care of our dental problems asap.
I went to another dentist, a well repsected USC grad here in the state. He said that he sees this often with folks on chemo and the like. Said that if before starting treatment you have "soft spots" on your teeth (those white blotchy marks) they are likely to turn into cavities while on treatment. One suggestions was that when our mouths dry up, (and boy did mine ever in the beginning) we lose the protective enzymes in the saliva and our teeth deteriorate faster. Very common he said.
So he gave me samplers of a Biotene product for dry mouth. (gum, mouthwash, toothpaste). He also suggested I start using the mouthwash ACT and the flouride gel called Gel-Kam both OTC. That later two to help build the protective coating on the teeth.
I talked with my hepatologist about tooth decay being a possible side effect. He didn't think it was but I beg to differ.
Good luck all.
peace
My teeth are no worse for the 56 weeks of tx. I have bad teeth and bad gums but go to the dentist every 4 months and have had major bridges, rootcanals and crown work done pre tx. I had a couple of crwons done post tx, but they had been on the planning board for a few years. I think going to the dentist frequently during tx is crucial and keeping you mouth salivated is important.
frijole
i had severe gum and periodontal problems in my short 4 year HCV infection.
my gums used to bleed 24/7 just like that.
one summer, i touched my newly developing wisdom tooth a couple of times with my finger. guess what? my cheek becamse infected and i took vibramycin, and it FAILED to kill the infection. then i took CEPHLAXIN, which gave me diarrhea and intense jabbing liver area pain.
a few months later, my front top gums filled with pus. just like that. and antibiotics didnt work. then it would go away. and come again. antibiotics just stopped working.
next summer i was diagonsed with HCV. treatment improved my gum condition and bleeding almost stopped. now it has come back a bit post treatment, though not nearly as bad as pre tx. i hope i'm not relapsing.