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Hi ,this is not so much a question but more a thank you , I have been lurking and reading for a while now and have learnt so much from you all in a short space in time . I am currently on Tx  simeprvir/ Peg/RIBA , week 13 not detected,   This is my second attempt at treament   Had tried 2year ago but acute reaction to telaprivireTx stopped immediately. My  intital fibro scan 4year ago showed score of 47.5  however now down to 27  much happier  my liver is compensated so  not doing to bad  just the side effects  of Tx  and a  longing for normality  , anyway thanks to you all
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317787 tn?1473358451
Hi there, glad to hear you are doing well.  I did Teleprevir 3 years ago.  Up until last October it was still being produced in the US.
It was a horrible tx but it did work.
I am sorry you were not able to continue but it sounds like you are doing well now.  I guess the only other choice would be to wait until other things are approved where you live.  You have to weigh the risks vs benefit.
I could not wait for the newer drugs and am now happy that I did it and it is over.

Good luck to you
Dee
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Avatar universal
It sounds like Oz, Patchy. Telaprevir is not even available in the U.S. any more. Good luck to you. I hope you have an easy time. Telaprevir is a difficult drug.
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Thanks for the encouragement, it appears most of the newer treatments are much shorter  and not as many complications , can't understand why my hep doctor chose 1st telaprivireTx  which was to have been a 48 week treatment and now this they tell me I'll have an EOT 29/12/15 and Snr in June next year is this to do with the chrossis? Or are we in Oz so far behind the rest of the world
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Avatar universal
Patchy continued Good Luck.
Your almost there!
......Kim
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Avatar universal
Hi Patchy, it sounds as if you are doing great. Your fibroscan results look amazing. Continued success to you.
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