long term side effects after taking pegasy/ribrivan

[beachmomma04]

I'm 44 yr old female dx with Hep C genotype 1a stage 3 by liver biopsy, did treatment for 72 weeks 3 months after treatment i relapsed.  it will be 6 months on feb 19 since my last treatment.  I still have serve muscle and joint pain, fatigue, insomnia, white blood count still low, chronic diarrhea, shortness of breath, and can't REMEMBER things (brain fog).   My doctor told me today that my illness wasn't from the treatment but from ANXIETY DISORDER, fibromyalgia,ibs and that i needed to see a psychiatry consultation.  Is there anyone that has Hep C and took treatments having long term problems? OR is it just me!!!  Please Help and let me know

[Willy50]

according to the CDC; (updated in 2009)
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http://www.cdc.gov/hepatitis/c/cfaq.htm
"What are the long-term effects of Hepatitis C?

Of every 100 people infected with the Hepatitis C virus, about

    75–85 people will develop chronic Hepatitis C virus infection; of those,
        60–70 people will go on to develop chronic liver disease
        5–20 people will go on to develop cirrhosis over a period of 20–30 years
        1–5 people will die from cirrhosis or liver cancer"
-------------------------------------------------------------------------------

It is an often repeated "fact" that people in threads are continually told that they will face end stage liver disease unless they treat.

That is also repeated.....skipping record style....and it is NOT correct, not true, not even remotely true.

DD replied to a thread entitled;
"long term side effects after taking pegasy/ribrivan "  by the OP, and his reply is ON TOPIC.  The sniping which follows is not IMHO.

The title of the thread which willbb mentioned is;
"Long term side effects of interferon" and is still intact in this forum;

http://www.medhelp.org/posts/Hepatitis-C/Long-term-side-effects-of-interferon/show/866107#post_7283907

Whereas interferon is still being used to treat Hep C it may only be used for 2-5 more years as a vital part of treatment.  People need to be able to evaluate the risk and rewards in waiting or deciding to wait for the non-interferon treatments.  

My fear is that by posting off topic comments, or by trivializing a thread through mocking comments people believe that they can shut it down, have it locked or removed.  I understand that those who do so have noble intentions, just as I understand DD does as well.

Just MHO.

willy

[jules2551]

and skipped

[can-do-man]

DD you remind me of an old record i had that skipped.....

[nygirl7]

Double Dose does it ever occur to you that you OD'd on interferon by double doing it for a year I don't think that your long term results would be the same as folks who just take it as directed.

Nobody wants to do harsh drugs but given the choice of end stage or muscle aches and brain fog...I don't think it is fair to scare those who NEED to take them.

Again you must admit your perspective is skewed by your own actions...not necessarily interferon.

Shouldn't this woman check out a simple AD and something for IBS (which I never heard f being such a long term side after tx ended) in the hopes that she can get done relief rather than give up after reading that it's hopeless-when chances are it might nit be at all?

[jules2551]

Why don't you just get over yourself!  (I am sure the boot is coming...bye bye)

[DoubleDose]

How about rather than wading through a lot of 'subjective' comments on long threads, just read the much more 'objective' surveys conducted across a very large number of treaters, and with links provided above in this thread.  Cynicism doesn't negate the issue, nor does pretending that everyone has been over this issues too many times in the past for it to be worth writing about.  I think the survey information brings something fresh, and outside of our forum to the discussion, and also at least a 'hint' of objectivity, without all the emotional invective displayed here when the subject arises.  I truly don't get it sometimes.  Nobody really wants to look at the facts.  And most people it seems want to blame everything else but the cause, for the problems many are suffering.  Even to the point of wanting to 'shoot the bearer of the news' when anything is added to the conversation.  I know, let's just ignore it all, and move on to other subjects.