6 months post pcr update

[ladybug52]

I finally got the results of my 6 months post pcr. I ended tx in March and didn't get to the lab till Oct, but it's all good. Labcorp test to <10 was und. Thanks for all the friends that have helped me in the last year, some are friends for life. I feel badly for having great news when so many wonderful people are still fighting. If this liver was transplantable, I'd gladly hand over 1/2 to someone in cirrohsis. My understanding is that we can't donate organs, right? Any one want to chance it?:)
I have been offering prayers of thanks, and prayers for all those still fighting the fight...
HUgs,
Bug

[debnevada]

bug, darling, i couldn't be happier.

love you
praise God

deb

[Robin_Fla]

Congrats to you! As one still in tx with 4 months to go, I loooove to hear the positive outcomes of others tx. While we haven't spoken before, your news should be celebrated by all of us! :-) YAY! And thanks for your prayers to those of us still fighting...

Robin

[goldyn]

Nice to hear another fellow Texan is cured!!!!!!!

[ladybug52]

Thanks so much. Sorry I haven't been more supportive lately, you know the story, now my Dad appears to be facing the same battle.....
love you most,
Bug

[ladybug52]

Thanks so much for the congrats...I didn't fight as long or as hard as others, truly life's not always fair and I'm humbled by the experience. Hope the next 4 months go smoothly and quickly for you.

Child--right back at ya, but my hug is Texan size so of course it's bigger.
Faith Hope Love Hugs and Prayers:)
Bug

Goldyn...Yahoo! I kicked up my heels and practically danced! Thanks, now if we just could get the rest of the country rid of the darn disease...
Hugs, of course...
Bug

[TravelMom]

Wonderful news!!!!  You deserve this!!!!

Love and Best Wishes....always,
Jodi

[ladybug52]

Thank you... thank you...thank you...:) Hope everything in your world is going ok, I think of you and Amanda and keep you two in my prayers,
Hugs and love,
Bug

[Forseegood]

Oh, this is such great news! youre such a kind, caring person, you really deserve this after all you have been through...good news here lately, the very, very best to you!

[ladybug52]

Thanks, you are so sweet and smart and kind, and I value your friendship.
Regarding the post on the other side, you know personally about the deviant personalities that abound in this and other forums. I just hate friction...unless someone is absolutely downright evil, I try to ignore them. I know you've seen your share of wackos here, I just didn't want to respond to the post after saying  I was against it!:)
You're a sweetie,
Hugs,
Bug

[ladywhy]

I am so happy for you.............In my mind i'm dancing around with you...shouting YEEESSSSSSSS..THANK YOU LORD! This is very positive news for all of us but especially for those with your genotype. You knew what your body could handle and obviously..you made the right decision. Congratulations...this is so exciting...
Sleep well tonite, Miss Bug
Love Ya
Yvonne

[beamishboy]

Congratulations and rest assured that yu got the big SVR!!!!

[meki]

Whoooohoooo!!!!!!!!!!!

Rock the heck on girlie!

I will hold my breath for you - great news!

Now... I'm gonna kick your butt for feeling guilty. DO NOT!!!

Please do not ever feel guilty - hell - you are an inspiration. AN INSPIRATION... Never feel anguish for being able to show others that there IS, indeed, light at the end of the tunnel.

You are a teacher - a hope... a dream...

So hang in there chickadee.

Love you!~

Meki

[ladybug52]

Yvonne: I slept like  a rock and should have left for work by now. Can't believe it's Thursday...short work week for me:)

BB: Thanks, as far as svr, I certainly hope so..do I retest in 6 months or a year?

Meki: Talk about an inspiration....I missed you while you were sick. I have had a lot of
health problems with my family lately and haven't been here much. As usual, you are right about guilt, but a healthy dose keeps me from taking things for granted.:)
Love you too!
Round of hugs on the house,
BUG

[Lilla]

Congrats on the UND for the 6 mo. PCR and I agree with Meki "do not ever feel guilty".    I went for my 12 week post PCR test yesterday (Geno 2b).   I was looking forward to it, but also was extremely anxious.   I am confessing it to be UND, but with all that we read, research, read some more and hear, I have this little "devil" sitting on one shoulder poking me with depressive thoughts, aches, skin issues, etc., and then there is the shining light "Angel" on the other shoulder guiding me through all this and letting me know that we can overcome and all will be all right.   (Boy, what an analogy, right??)   I'm doing my best to knock-off the devil.

Everyone (friends, family,hubby) are all in this mood that I can resume   life as before, like nothing happened, and I sure would like to accommodate.  Why am I feeling depressed?  I'm 56 - can't blame it on PMS any more.    Did you go thru any of this type of thing?    

I do kick myself to come out of this attitude, and am so thankful for each beautiful day, and I will never take feeling good for granted again (life after RIBA & INF is good).

Sorry to go on so long - congrats one hundred times to you!!

[ladybug52]

Oh yes, I can relate! I'm 54, and just stated on the other side that I can't blame anything on PMS or riba anymore. I always have this little negative voice saying things like "You broke protocol and only treated 16 weeks, you might now be the first person to get und 6 months post and then relapse by 12 months...."
Also, I had been thinking that the hot flashes and night sweats were a sign of relapse. I'm glad to know they aren't, but when does this stuff stop? I don't take hormomes, I was confused as to if they help or hurt SVR....
On the positive side, I couldn't talk about tx with my family before and now I can say things like "When I was on tx,...." I seldom talked about it to anyone while I was going through it, now I feel as if I've come out of the closet and I'm not embarrassed anymore.
There's light at the end of the tunnel, it's a humblong experience and like you, I'm grateful for each day, happy for every achievement that others reach, whether mentally or physically...
Hugs,
Bug

[frijole]

Great news.  Congrats on your SVR.

If I am not mistaken, you can be an organ donor to hepatitis C patients.  You might find a transplant facility close to you and ask that question.

frijole

[mikesimon]

Congratulations on your fantastic news! Stay well, Mike

[jmjm530]

Hey Lady. YOU DID IT. How about some EXCITEMENT :)

I know you must have been sweating bullets over the test. We all were because we all wanted you to succeed.so very much.

You should be very proud. Not just because you did it, but how you did it. How you approached your treatment. I'm not much of a dancer, but I'll do the happy dance for you anyday !

And you helped so many people here. Lifted so many spirits.  And there will never be a "Deputy" like you again.

All the best in a Hep C Free life.

Your good friend,

-- Jim

[DayLyn]

Congratulations!  From the bottom of my heart!  I wish that I could reach through this computer and hug you!

I'm hoping to hop onto that bandwagon really quick here myself!

Here's to a wonderful new beginning !!!!!

Daylyn

[ponyshel]

This is great news...I wish you the best....hugs :) shelly

[pigeonca]

That's fantastic.  I knew you'd be UND.  Here's to a long life for you!!
Love,
pigeon

[GrandmaA]

I'm thrilled for your good news. That's tremendous. Couldn't happen to a nicer person. You deserve all happiness and good health.

I went to Dr. Wakil today for my post tx labs, etc. and he shook my hand and said congratulations (I had the labs drawn 2 weeks after stopping). He thinks I dogged a bullet. He gave me a lab slip for 5 months out, March. He said the brain fog should lift in the first 2 weeks after stopping tx. Maybe I'm getting senile.

[Myown]

Great news bug!!!!!!!!!! I knew you'd make it to the other side when your 3 month came back UND. Glad to hear this. I'm happy to see good news coming to the forum today. I know it had to be scary to those still tx seeing several of us relapse, so hopefully this day with you, NYgirl and Golden getting SVR's,,people will be encouraged that they too have a good chance at SVR.

Very happy for you bug!

[gauf]

CONGRATULATIONS!!!  3 SVR's in 1 day!  Fantastic!!!!!

[orphanedhawk]

Go bug go! I expected you to make it. Happy SVR day to you. Congrats and hugs.   oh

[FloridaMouse]

AWESOME!

Mouse
Genotype 1a, Stage 3, Grade 3
Finished tx 4/2007
Relapsed 9/2007

[wyntre9]

I'm so happy for you.

wyntre

[FL_Gal]

That's really good news to hear!

I get the results of my 4 week post PCR next Wednesday, I hope to hear the same news.

FlGal

[jools57]

Yes!!! Congrats to you!!!...Wishing you all the best!
Blessings!

[Bill1954]

Way too efin’ cool! Balloons over Texas to you! Now that it’s official, all I can say is…

Lyrics by EH Harburg

"Ding-d0ng the witch is dead!
Which old witch? The wicked witch
Ding-d0ng the wicked witch is dead!
Wake up you sleepyhead
Rub your eyes, get out of bed
Wake up the wicked witch is dead
She's gone where the goblins go
Below - below - below
Yo-ho, let's open up and sing and ring the bells out
Ding D0ng' the merry-oh, sing it high, sing it low
Let them know the Wicked Witch is dead!"

I hope you can put this episode behind you now. All except for the lessons that came free with the disease. Ya know what I mean ;o)?

Take real good care, and please stay in touch—

Bill

[ladybug52]

I was told at the beginning of tx that I could never donate organs, I have also heard that a person could donate part of a liver---wonder if either of these statements are true. Guess a transplant organization is the place to ask, I really need to know as part of an advanced directive I guess.
Bug

[ladywhy]

I have a friend who's daughter donated a portion of her liver to her dad. The transplant was a success and her dad (last I heard) was doing well. He told me he wanted to see his daughter marry..she has, he also wanted to live to see a grandchild....he's acomplished that too. He is a tall big guy, wonderful man and father. His daughter was arounf 21 yrs. old when she donated..she is also tall. A couple years after the transplant, she gave birth to a healthy baby girl. Amazing what can be done today...isn't it?

[ladywhy]

The daughter has one heck of a scar across her abdomen. Theirs is one beautiful love story. Remind me to tell you about them some day.

[gazebo1]

Great for you kiddo.  I do my 6 month PCR in three weeks and am praying hard.  Still have some bad SX continuing, (developed ITP and others)  but hanging in there.
Hope your SVR is permanent.  Regards,   G

[ladybug52]

Mikesimon: Is "et all" appropriate here? Thanks for the congrats, I'm happy to be sharinggood news the same day as the others.
jmjm:
You are my friend and mentor. If this were the academy of hep c awards, I'd have to give all the credit to you for giving me so much info. Course then I'd also have to name 1/2 dozen others for their supporting roles. I'd run way over on my time limit....
Thanks so much for your knowledge and support.
Bug

Daylyn thanks so much, I'd still carry you through an airport if you needed me!

Shelly What a long time you had fighting, hope you get the same news soon...hugs:)

Pigeon: Only a bug and a bird left it seems like..wonder what happened to the other two?
Here's to a long life to you also... (lifting my glass in a toast:)

Grandma: You are not senile! I felt the same way after txing, and during tx. It will all get better. Your clean living and good common sense will prevail!

Myown: Thanks, it's just not fair....really, it bugs me a lot. I know God has a plan, but wish we could have an inside peek at His intentions.

Gauf: Thanks, and congrats on losing 12 lbs!

OH So glad I have a friend with a world wide conscience. You know your liver had a rest while the rest of your body was being pulled down by all the needles and meds. You can focus on art, beauty, international events, and forget about the giant hairball for now.:)

Flamouse Thanks, are you ever going to tx again?

Wyntre You will be here soon, I'msure, just think Christmas last year we were all strangers, right?

Fl_gal You touched my heart when you were working, anemic, and climbing stairs with a toddler in your arms...post as soon as you get the good news

jools...you ARE a jewel, thanks

Bill:thanks so much scarecrow for being my friend! If you don't remember how Dorothy felt about the
Scarecrow, you have no soul!
Have I run overtime?

Just got a call, Ieft my Dad yesterday and he was taken by ambulance to the ER tonight. Heart rate 188, for those who pray, please remember me Dad, for those who don't please send warm thoughts towards St. Louis....
Hugs and love,
Bug

[ladybug52]

My long post must have been in the composing mode when you two posted. Gazebo! So happy to see your still around! I just don't get on here much lately. You will always hold a special spot in my heart, but what is ITP?
Yvonne That's a wonderful story, but with hep c do you think I have any chance of giving my Dad a kidney?...this is where I started..trying to find out if I could be a donor a year ago in June. Thought I'd give my Dad the best birthday present ever, a kidney....I want to peek at this plan of His....
Hugs,
Bug

[CockSparrow]

So Happy for your SVR, and thanks for your kind words when I first joined.
Life without HepC obsession does sound good.

Enjoy
CS

[Lonestar823]

I haven't read the board in a few days.  Look at all this good news!  This is wonderful.

[ladywhy]

"If this liver was transplantable, I'd gladly hand over 1/2 to someone"

I called it! I get first dibs!

I don't need it now...but, ya know...maybe we can put it on ice (cryogenetics..or ?) hehehehe

I'm printing this...so I now have a typed contract. I'll mail it to you for signing!

[ladywhy]

I don't think I'll need 1/2 your liver...more like a 1/4..lol

[triggertime]

Way 2 go gal. Congrats 2 U. Ive got a 90 day post pcr coming up mid Nov. What the hay. I got it whipped.

[katerika]

Wahoo! That is such great news.Live long and prosper.
It is Awesome to hear, it keeps us all going. .
Teri

[ladybug52]

Thanks, Cocksparrow, it's nice to be remembered.
Child, Ok California is bigger than Tx, you win.
Lonestar thanks, love your name:)
Katerika, Thanks, and my hubby is from NH, (Portsmouth)
Yvonne you crack me up. Is it ok to drink coffee with our liver? I know I can't have alcohol, but what is on the do's and don't list? I feel like I'm carrying someone elses baby now that you have made claim to a 1/4 of my liver!
Gotta go to work...I went to bed at 9:30 last night so I would get up early and here I sit on the computer...
Hugs
Ladybug

[Htownwife]

[Htownwife]

So happy to hear your great news! It couldn't have happened to a better person.  And it gives hope to others who are currently treating. It can happen!

I'm sorry to hear about your dad.....he'll be in my prayers.
Take care!

[Andiamo1]

I just arrived in Florida, having driven here from Stamford, CT and finally have high speed internet again.

Congratulations, you must be thrilled.  This is really great news.  You have helped so many people here; you really deserve this.

Eric

[shastri20032003]

Have just come back from my annual holidays last night  and saw your post at the Singapore airport...bug...thats great news and here goes......bale,bale,bale,bale,bale...BALE!!!!!!!!!!!!!
My intiution turned out to be correct and wishing you the best in a healthy,long life,my friend
Lots of Hugs to the Bug

[Lady Lauri]

OMIGOD another one. Three! This is great to hear again! Good for you!
I am only here @5 mths. so still learning about many here. What tx did you do? Why did you stop at 16 weeks? Being also 2b, and after reading the very small percentage difference in doing 12-14 weeks tx versus 24 weeks, I am considering all this a lot, 4 weeks into tx now.
No hurry to answer, you bask in your SVR day and many congratulations post awhile :}
                                                                                 LL

[ladywhy]

No one deserves more HUGS than the Bug!!! That's for sure and certain!

[ladybug52]

I hope no one minds my corny way of thanking everyone for their good wishes. I feel like  a hostess at my own party.

Thanks for stopping by, hope you all enjoyed yourself, I've really enjoyed the singing and dancing!

Htwife: I wrote on your post a few hrs ago. You are so sweet to pray for my Dad. He needs prayers as he is not getting better.

Andiamo how are you feeling? Driving to Fla sounds a little rough...course I'm talking to a person who braves water and wind on a regular basis..

Shastri did you enjoy your holiday? Did you do anything fun? Was it this time last year you went to a wedding with your little girl? Thanks for the fine dancing, and the hugs:)

Lady L I was und very early, I tested at 3, 4, 12, and 15 weeks and was always negative for the virus. I had a very kind PCP who ordered blood work everytime I spoke to him. I heard from Jim about the studies of those who had an early viral response/rapid viral response. (evr/rvr can't remember which one is better) I knew for certain I had cleared so quickly that I started thinking of quitting at 16 weeks. I was working full time, like a lot of people, and I had difficulty thinking and talking while I was on the meds. I was worried about long term effects of the meds on my system. I took a chance and impulsively quit at 16 weeks when I found out I was still und the week before.
I always felt like tx is a personal decision and although longer tx has helped a lot of people, I had the numbers on my side for clearing early. I would never urge someone to quit tx early, but at the same time I was treating, pigeonca and 2 others stopped early also, mostly due to severe sides from the drugs.
I was doing the peg-intron and the studies were for those who stopped at 12, so I felt that I had gone 4 weeks extra:)
Hope you have a sensitive PCR scheduled if you are thinking of stopping early. Myown is also a genotype 2 and txed 24 weeks, yet still had the virus show up again at 3 months post. It's such a guessing game but the best evidence is early testing and und results.
Take care, hope this answers your questions
Hugs to all,
Bug

[Andiamo1]

Driving to Florida is more difficult than sailing to Florida!  Especially when taking ifn/riba!

I am feeling relieved now that I have seen my PCR results; thank you for asking.  I wish I could stop early, but my doc wants me to go the full 48 weeks even though I had an early response.

Eric

[TravelMom]

Just checking in to see how your dad is doing.... He has been in my thoughts since seeing your post.  please stay strong....I know that is easier said than done..  Love, Jodi

[ladybug52]

I would never tell anyone else to stop early, I'm glad you are going the full tx. I know it's rough, but my gosh you've fought this long....

Jodi  Thanks for asking about my dad. He was hospitalized in Sept. They said it was pneumonia, then said actually there was a spot on his lungs and he didn't really have pneumonia. They discharged him a week and 1/2 later and he has not gotten better. He started on O2 and kept feeling worse. I rented a piece of equipment that checks the oxygen level in the blood and heart rate. Thursday night he was feeling bad and his heart rate was 188. So the paramedics were called and they couldn't get his h/r down so they transfered him to the nearest hospital. He got a shot to help the h/r and a chest x-ray and they said he still has pneumonia. I was beginning to get my hopes up that it was just pneumonia and he would get better....... Then a ct scan showed he still has the spot on his lungs....sigh....It's easy to be strong, I just don't want him to suffer, you know? He's 81 so even though I hate this, I can handle it.
You and Amanda, as always, are in my prayers....
Love,
Bug

[mkeela]

I'm so happy for you dear!!!!!!!!!!!!!!!!!!!!!!!!!!! Congratulations!!!!!!!!! You're gonna make it...I wondered the same things about organ donations...looks like we gotta make a call to somewhere. Again, congratulations.

I don't check in here much anymore, been so busy with kids and going to school myself, I can't remember anything from one room to the next. I get on the internet for one thing and by the time I sign on I forget what I was going to do. School is SEVERELY hard since TX and just don't know if I'll make it through. I'm not doing too well this semester, but it's never failure unless its failure...(meaning I'll have to fail, I'm not a quitter).

SO GLAD YOU CAUGHT THE BLESSINGS!!!!!! ((((((((((((((((((((HUGS)))))))))))))))))))))))) Mkeela.

[Teufelhunden]

I'm so happy for you!!  If anybody deserves it, you do!!!  Please don't feel badly. We all know the gamble when we do this and you're one of the blessed ones. Our time will come!!  Enjoy your great news and don't forget your tee shirt!!  Take care and good luck be with you!

[ladybug52]

Devil dog:) I remember when your name scared me, not because of it's meaning , but because I couldn't spell it! Thanks, for your spirit of kindness...it's not a matter of deserving it, in that case you would be svr too. I want life to be fair and I'll never get use to the fact that it's not.
Best wishes,
Bug

Mkeela: You sweetie! I'm so glad to hear from you. Of course school is especially hard while you're raising kids, and we'll never know how much the tx affected our brain cells. Good for you though! You are not a quitter, but we knew that from the get go with you!
Thanks for the post, I'm so glad we are both blessed.....prayers for everyone who has to deal with this disease...
Bug

[ladybug52]

Sorry, I wasn't meaning to ignore you, didn't see your comment till after I posted. You are welcome to bug in anytime!
Love and hugs,
LB

[l-horn]

WTG. Nothing like putting that behind you.

[Lady Lauri]

Thank you for taking the time to replay at your own 'SVR party'  :}
I get 4 week labs tomorrow , but am in Albumin versus Pegasy trial ('drew' the pegasy) so not really supposed to know about evr/rvr (correct?) until 12 weeks. But we have figured out a way to let me know! And I need to know! For those reasons of 12 versus 24 weeks.
Thank you and get back to your party:}

P.S. Just read about your father. Sorry your happy news is mixed with sad news.
Do pray and will for you/him and also send warm thoughts the St. Louis way.

                                                                         LL

[ladybug52]

BTW, Thanks, do you feel like you have your life back yet?

[Cindy10]

OMG thats is fantistic news. I am so happy for you. You can move on with your life and not have to worry about this anymore. Congrats to you!!!!!!  

[Tallahassee]

Congratulations!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hug, Hugs, Hugs!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[nygirl7]

YAHOOOOOOOOOOOOOOOOO CONGRATS this is so great we are rockin' and rollin' on the SVR wagon train right now!

That is GREAT NEWS!

[chellski]

i am so very happy for you, that is great news, always good news.  at the same time, i wish your dad all the best, now you can concentrate on him!
chelley

[ladybug52]

Cindy, I always wonder how you are doing? I posted once asking about you anddidn't et on for a long time to see if you had responded. Hope you are doing well adn husband is coping..
Tallahassee You are so kind. I am not worthy of your support, but I value it thanks:)
Ny: You are fighter! We had two different methods, same outcome, I don't know if I could have done what you did.... (looks like I ride the weinie wagon)
Child: thanks, my Dad is getting out of the hospital tomorrow and I'll be there Friday..thinking of you on Thursday all day...
chellski: thanks, my dad deserves my full attention..
Hugs to all my friends,
Bug

[Jordie59]

Congratulations, way to go.
Hoping for SVR in November

[ladybug52]

Not too long from now, Nov is jsut around the corner....you will be posting great news in Nov. I'm sure....

[Cindy10]

Good Morning,

Sorry I don't post much but have been so busy with the new job. I am doing really well, feel good still anemic but well. The dr says it could take months for the anemia to go away. We shall see.
I tested at 4 month post and still UND, so I hope thats a good sign.

Hubby is on week 40/48 and doing real well too, except he is very moody. But we are getting there.
I can't wait for this to be over. Been a long year +.

How do you feel, back to normal?  I guess it just take a little time to feel great, or will we ever? ;-)

So happy for your news and hope all is well with you!