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476246 tn?1418870914

Starting TX

So.... tx started for me yesterday, smoothly with no sides annoying enough to mention. I have been spared so far and am immensely thankful for that. Am drinking lots of fluids and chillin' at home...

Geno 3a   doing tx for 24 weeks, hopefully

180mcg Pegasys
800 mg  Rebetol

I was supplied with enough Peg for 8 weeks and enough Riba for 6 weeks.

Will have first PCR at 4 weeks, the sensitivity of the test they use is 20 iuml.

My doctors and nurses are great!!!! They answer all questions and are positive, friendly and compassionate. I have really been blessed with good fortune, I must say. The nurse said that I could call as many times as I want, better too many times than not enough. Also she said that they are interested in how our tx is coming along, so it's just good to call. Wow, I didn't expect that. Any minor sx, you call and they will just put in the prescription on their net system and one can pick it up at any pharmacy. With any stuff they need to see you, they will want you to either come in to them or see your GP, depending on what it is. So I'm cool.

I just wanted to thank all of you who have been such a support and a well of knowledge that made it possible for me to go into this with so much confidence and preparedness. Love you all.

Marcia

51 Responses
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408795 tn?1324935675
I made a mistake, my appt. is on 8/25 that's on Monday.  I will find out more then, and I may look for a different doctor.  Right now I'm not in a rush to start tx unless I absolutely have to.  I have advanced osteoarthritis and I still have a metal plate in my elbow so I don't want to chance making myself worse unless I absolutely must tx.  I'm terribly leery about setting something off that wouldn't happen, if I did a "wait and see" or whatever it's called.  Unfortunately I'm not in good health, as I have been anemic in the past.  My GI over did it with me because he said that it's his opinion that my quality of life would not get better.  That may be true, but my decision to tx when I say shouldn't be hindered by his opinion, especially since he never gave me any specifics.  Still, I will get a bx and decide from there if I'm able.  I spoke to one of my old doctors and he told me to look up Dr. Lorenzo Rossaro, and I know who he is.  He's affiliated with the clinical trials and that would be good except they already gave me a flat out no.  I'm just hoping the ultrasound doesn't show anything extreme.  God Bless
Helpful - 0
476246 tn?1418870914
That sukks. Can't you fire him and get a new one??? You really need a supportive doc... As if this wasn't already difficult enough to go through, I don't understand those kind of people. Maybe he is miserable and wants everyone around him to be miserable, too.

I hope you will be able to find a solution which fits you best.

God bless,

Marcia
Helpful - 0
408795 tn?1324935675
I didn't start tx yet, I was turned down by the telaprevir trial b/c of prescribed meds.  My GI has been a real jerk about supporting me in my idea to tx.  I go tomorrow for the results on my ultrasound, I may get another bx.  I just don't know yet, thanks for asking.  God Bless
Helpful - 0
476246 tn?1418870914
I love that one, it's one of my favorites...

And so is Glease. The Grail is such a classic. I'm nuts over Faulty Towers...

My man has just ordered all the Faulty Tower Series on DVD for me. I NEED to see them. I want to cry from laughter... And then I HAVE to see the old Eddy Murphy stand ups again Raw and the other one. I love his Bill Cosby impersonation and the ice cream one. And I love Cosby...

Thanks for the tip on shot 3... I'll watch out for it!

Anyway, did you check out the photo of my St. George and the dragon pendant on my profile. I just uploaded it today.

Let's kick some a§§

Marcia


Helpful - 0
476246 tn?1418870914
Thank you my friend. Love, Marcia
Helpful - 0
388154 tn?1306361691
Heres some Jimi lines I love.

You know in the world I dont drink coffee so fill my cup full of sand.

If all the hiiiipiiies cut of all their hair I dont care

And if siiiiix turned out to be nine I dont mind.

Hey there mr businesman you aint dressed like me

Pointing your plastic finger at me.

Have you ever been to the electric Lady land.

Just got in from the storm

UUhu wha wha whahaa wah hwaa .

And as Monthy python would have said and now to something completely different.

Welcome on the tx road to everywhere  (everywhere includes nowhere)

Jump up on my horse hold tight to that medallion and I let you have a go with that lance of mine, go for the dragons heart.

Lock out its gonna be a bit jumpy!!!!

Ps after shot 3 you got clime of the horse because then its time to enter the rollercoaster.

ca
Helpful - 0
476246 tn?1418870914
Thank you so much. It's really great to finally have started. so far so good! I hope it will stay this way.

So did you get all your results and everything. What is your plan?

God Bless!!

Marcia


Jimi da man!!!!
Helpful - 0
408795 tn?1324935675
Glad to hear you started.  It sounds like you have a very good tx team and that is like a number 1 prerequisite.  I hope you don't go thru many sx's and it's over before you know it.  Best wishes and God Bless
Helpful - 0
476246 tn?1418870914
Thank you. I'm geno 3a going for 24 weeks, hopefully!!!

Marcia
Helpful - 0
Avatar universal
I hope you're doing well on tx!  
You certainly did your homework pretx.  
You'll do just fine!
What geno are you?

darla
Helpful - 0
412873 tn?1329174455
LOL-they say that about FL,too.  But I have never heard it blamed on our clothes!  

Marcia-hope you are feeling more normal today.  

Apparently shot #4 is the one that makes me wake up at 4am-coincidence or tropical storm????  Tomorrow we'll know for sure!  
Helpful - 0
476246 tn?1418870914
RGlass

Thanks


Lady Lauri

ROFL....That really was a good one...   mind you, I would NEVER EVER say anything anywhere near that about my kids. They are beautiful young adults whom I cherish, respect and love. So far so good with the food, I have no problems eating. Just the morning one is a bit difficult and I'm taking the riba with a banana and coconut oil. Hugs, Marcia

l-horn

What a great description... This surely is like the Danish weather, which can change from one minute to the other... They have a saying here, that there is nothing wrong with the weather, it's just the clothes you wear. So I guess one has to have ones 'clothes' lined up to be able to take on the weather... We'll see how it goes.
Helpful - 0
148987 tn?1287805926
You'll do fine. Take it as it comes. Don't worry about the sides. It's like the weather, it will change.
Helpful - 0
250084 tn?1303307435
Marcia, can do man....."Kill them all, crush them, poison them... whatever it takes to get rid of them"......

LOL< LOL!! I was briefing thru, saw can do's reply, read those lines and thought you meant your kids! I'm thinking....dam! It's too soon for riba rage!

Marcia, Glad to see you got started. Sounds like you have a warm, concerned staff taking care of you. That's great. I soooo wish you an easy tx, UND, SVR. Your a sweetie and I hope to watch you breeze thru this.

Don't forget the to get nutrition in you, even if you can't eat, do the shakes, add liquid vitamins, yogurt, fruit...anything!

Off to a good start, crossing my fingers for you on your journey.

LL
Helpful - 0
206807 tn?1331936184
Best wishes and I hope you are one the fortunate ones with mild SX, RVR. and on to SVR
Helpful - 0
476246 tn?1418870914
Thank you... I hope it will not be like child birth... They all hurt like hell, lasted up to 44 hours, I haven't forgotten and my youngest is 17. But they were certainly worth every second of it.

So just for that fact, it will be worth it going through tx. Going for the big SVR!!!

We need to all be cheering each other to make it!!!

Marcia
Helpful - 0
476246 tn?1418870914
Thank you.. I will do my best to kill the bugger
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476246 tn?1418870914
Mange tak!  You got me there... Didn't expect the Danish to pop up.

'A dragon ain't nuttin but a big lizard'   .... I can sooo see you saying that, St. George must have thought that!!!

Helpful - 0
310500 tn?1227301034
Wanted to also write you and wish you well on your journey.  It will go by so fast for you.  I found it to be a bit like childbirth.  Hurts like HE11 while you are going thru it, but you soon forget once it is over.

My husband though has not forgot.

Pam in Florida
Helpful - 0
553878 tn?1226507294
held og lykke.

A dragon ain't nuttin but a big lizard

---George--
Helpful - 0
Avatar universal
best of luck kill and cut that dragons head off.  my prayers are with you
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476246 tn?1418870914
I use a lot of raw olive oil in my salad dressing and over my food. And I also use VCO, Virgin Coconut Oil. I drink my riba with a tablespoonful or two of VCO twice a day.

The Greek actually take a spoonful of olive oil and a couple of dates first think in the morning for digestion.

But I'm not worried about my digestion, haven't had any problems since I turned herbivorous about 8-9 years ago.

Marcia
Helpful - 0
547181 tn?1255146506
Dear Marcia

one more thing, just take one tea spoon of olive oil (Extra virgin) daily preferably eraly in the evening before eating/drinking anything, it not only regulates digestive system but also reduces joint aches.
Helpful - 0
476246 tn?1418870914
sunqueen  

Thank you for your kind words. I hope I will be able to live up to them in the future, too. I tend to laugh at my situation, so I hope I'll still be laughing in a few weeks.

epiphiny

Thanks, I've got 2 big jugs of water standing at convenient places and a glass with a cover beside them. That's the way I keep track of how much water I get. I works great.


debbie223

Thanks. Glad it's going fine for you. The fatigue, it started hitting me yesterday. It must be the riba knocking me out, it makes me sleepy each time I take it.


meakea

It's good to hear that you are starting soon. Lets kill these buggers...


I want UND sooo bad
Helpful - 0
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