Woooooohoo!
Look at you go girl!
Many hugs to you!
Thank you so much for taking the time to post. It helps us all to know that there is light at the end of the tunnel.
Enjoy,
Connie
Hi, as your putting the ball inside a mask and thinking something red for the eyes ! I also love Halloween.As I read your words I started to remember what life was like b4 being dx.Now I have faith .I am happy for you.Pain almost gone.That's Sweeeeeeet all by itself...Go EN-JOY Life !
Did you know ? Baby food liver is a fantastic additive when making blood.It makes it look so real.
I know your gonna ask.
I was DENIED for the fourth time.I wrote the ins. myself and am waiting to hear what they say.
It was good to hear your doing so well.Do drop in now and then.I personally understand finding one'self AGAIN ! I've always had FAITH, Now I have HOPE .
Great News,
Tammy
Tammy ask them WHY they are denying you
Hi.They said, in their handbook it state's that I don't have enough damage.I wrote them and told them of the RA and not being able to tx for RA because of damage to liver.I have proof my enzymes are extremely high.I should hear good news.I put a very good letter together with proof for every word.
Lauri won't care ! hehe .How are you ?
Tammy
Welcome back. I am glad to hear that you are feeling well.
I still have insomnia, but in all other area I am feeling better and I continue to improve.
I don't post much any more. I still have a bad taste from the abuse of the political post.
Take care,
Eric
Regards to you. Good to hear from you. My heart goes out to you about your sister.
Take good care and keep in touch.Glad your getting back to living!
Charm
Good to see your post and glad things are looking up finally.
I'm also sorry about your sister. I guess we all have to take the good
with the bad, at times it doesn't seem fair.
Take care LL
all the best to you...
Good to hear from you expecially when the last news wasn't so good. I'm glad to see there is life after treatment. I was going to forward you a note from another Florida geno 2 who claimed that it took him much longer to recover than he had expected but that he was feeling better now than he had in ages.
I hope that you will only get better and better until you think you're 30 again. ; )
It's great to hear another success story. It couldn't have happened to a nicer lady.
Now...... push away from the computer and get your halloween lights put up.
Get your spook on.
best,
Willy
Willy
Great news from a very lovely lady that has a beautiful grandbaby. Wishing you sister the very best.
cando
Glad to know that this post tx nightmare does burn itself out at some point - mine is still flaming away at 3 months post. (RA to the max - neuropathy - IBS etc). But better then that first post month like with you.
So sorry about your sis - wow I am so close to mine and her to me - she is always there for me (flew up constantly to take care of me during tx - she lives about 8 hrs away - frisco area). I know how your heart must feel.
I too have not posted much...but am spending more time with my horses - so that's good....Actually was in our little Western days parade today.
Take care and thanks for the updates fellow 2ber
Hugs,
Mikkimoe
Pain feels so good, when it leaves! Glad to hear from you and that you are getting your life back. Wishing you the best!
Brent
Great that you're feeling human again! I keep looking at every bike to see if you're on it! I'm quite lucky, today i"m 2 months post tx and I'm in Key Largo scuba diving - talk about feeling better!!! Driving down here from central FL yesterday I saw a ton of bikes - keep looking for ya.
So sad for your sister, hope they are keeping her comfortable. What a horror. For me (on that front) I see the surgeon next week - til now all tests (retests) have been clear -but be on the lookout for a pm in a couple of days. So far so good.
xoxox
jd
I think the joy of being able to breath with out fear any more has to be the best feeling in the world, To see life again, the sun the wind,
I know how close you and your sister are, you both are in my prayers, You know I love you girl, so no worries ok? here if you need me!
MUAHHHHHHHHH
Deb
So sorry to hear about your sister. You have been through your share of ups and downs, that is for sure. I only wish you all ups from now on!
Hang in there girl and on keep on riding!!!
I'll be thinking about you and sending all the best!
Dragon Tamer
Just wanted to let you know you're in my prayers!
Hugs, Marcia
Very glad to have the update and so glad you are doing well. I'm so sorry about your sister, I'll keep you both in my thoughts and prayers.
Syd
Thanks much to all. My sister...it's rough. We've/ I've handled it all well, but when they give you a time frame, it's a whole other thing :( She had 5% chance 9 years ago! Chemo most of every year for NINE years has kept her here. She has kept an amazing quality of life for going thru all that. We are very close, she is also like my mother. Having lost my other closest friend in 06 to cancer also, it's been quite heavy on the heart. I'd like to note:::::: It is due to a Dr.s mistake that she is where she is! At 46 he told her it was 'just hemorrhoids, your young" !
Thanks to all of you, many of us know loosing someone, going thru their suffering is so very difficult.
Becoming 'human' again.....is helping a LOT.
An FYI on OUR tx.....thru out her years of surgery, chemo.....I have always helped her. During my tx, she was helping me, I was sicker than her! This tx is brutal, you all WILL get thru it but DO give yourselfs TLC and demand it from hubbies, loved ones! Understand that it IS very hard for many, most and be kind to yourself.
Love and hugs to you all, LL
I am so sorry that you are going through this. I lost my double-first cousin to AML Leukemia 2 years ago this month and it seems like yesterday. His mom and my mom are sisters and my dad and his dad are brothers...., so our families are very close. He was like the brother I never had. Anyhow, I've recently started volunteer work for 4 hrs on Thurs. afternoons, at the American Cancer Society. I just help them out in the office. It makes me feel like I'm contributing something to the world around me.
Susan400
AS always LL - count on you to come in here and encourage others! Some things just don't change much do they!
As Walrus said - boy pain IS great when it leaves and I am so glad for you that you are getting well. You will be better and better until that wonderful treatment amnesia hits and you think "wow it wasn't really THAT bad" LOL.....thank God for the amnesia feature!
We'll all be thinking of you and your sister - you are both so blessed to have each other!
Deb
I am happy to hear that you are feeling a whole lot better and are now optimistic about the future. Your tx post tx was very debilitating and it is great to hear that the worst is over now!
My friend who was on the same meds as you relapsed and is trying to get in on another trial. I thought for sure she would make it because you did...she took it pretty hard.
I am going for my 6 mos post tx lab the first week in November and am starting to get a little worried. I will stay positive for now.
Sorry to hear about your sister.
Thanks for the update and wishing you continued wellness!
TV
so glad you are doing so well.......sorry about your sister....
get out there and blow it out for her and me will ya....we could both use a ride on your hog...full throttle. Funny...it must be nice to be getting the joy of that back now.....remember when nothing was fun or worth doing???
well have some butch cassidy/peter fonda moments for us all will ya??
mb
I'm truly glad to hear that you're finally starting to feel better after your treatment. Honestly, was starting to get worried because it seemed like it was just not getting better at all so it's a relief to know you're pulling out of it and good to hear you're getting your own quality of life back, you've earned it.
I'm saddened to hear of your sister's current situation. You've all been fighting hard for a very long time, particularly your sister. Sounds as if she has gotten much more out of life than the doctors expected her to and then the bloody cancer had planned for her but she .. and you .. had other plans and she has beaten it in other ways. To be given a timeframe is tough...tougher than I can imagine ... so all I can say here is that my heart goes out to your sister, you and your family and I wish you much strength and courage .. and incredible moments of beauty that surpass everything as you go through this next while....and much grace and peace to sustain all of you.
Trish