I've been here since 2005. This is one of the most kindest, caring threads I've read on here in a long time. People amaze me, you are all wonderful and loving and just such impressive human beings.
I wish you well Rexx, it isn't easy but you WILL make it through.
I know firsthand how hard it is on the caregiver. My husband and I struggled with ESLD, hospitalizations for hepatic encephalopathy, endoscopies to band varices, Hep C triple treatment for 5 weeks, and numerous blood transfusions due to severe anemia. He also almost had kidney failure from a medication that was prescribed for him. It was a very tough 18 months and I think what got us through it was we couldn't imagine life without each other. (We've been together for 40 years.)
Now that he had his liver transplant, life is so much better. He is getting back to himself.
Be good to yourself. Take a few days off if you can manage it and take a mini-vacation. You need to recharge your batteries so to speak. Even just a few days away will help, trust me. I wish you and your husband success in his 3rd attempt at a cure. It is worth it, so hang in there.
Nan
My husband is going through tx for the third time. The second time was a study where he did 10 1/2 times the amount daily for 48 weeks. This time they are doing the victrellis, ribaverin and peg interferon. We've been married 30 years, and this is the hardest. I know he feels like hell. I work 12 hours a day, plus do all the housework and yard. It seems like I'm the only one he can't be nice to. He says it's because he doesn't have to, but sometimes I wish I was a neighbor, a family member or anyone else, so maybe he'd be a little nicer. We'll make it through, but not without scars. Sometimes I think it might have been better if we hadn't done the tx. My worry is that he'll not go back to being himself. That he's been like this for so long, that it's now who he is.
Dear Rex, I am so sorry for your experience. The treatment is hard enough without anything else coming at you. Of course life goes on while you are sick however I would not make any decisions while under the influence of the treatment. It will get better once you are done with treatment, and you both may decide there is nothing to salvage but can't she hang on?...knowing this is temporary should help.
I know I was a bear to live with while going through tx. I had panic and anxiety while on the Incivek, it was awful, my husband was a rock during the entire tx. He continued to take care of me no matter what.
I hope that you and your wife can put off making any decisions until you have finished tx. My thoughts and prayers are with you
Dee
Have you ever asked your wife to read up on the sx of treatment? There are many blogs on line which people are writing of their daily struggles.
I wish you the best
What you said about anxiety and panic compels me to once again encourage you to seek a temporary solution both you and your wife can live with. Conflict can be a serious strain. That, combined with anxiety and panic may compromise the decision making and judgement required when going through legal proceeding.
♫ I am so sorry this is happening. I hope this works out in a manner that enables no hard feelings and a way for you to focus on your treatment.♪
I happy to say I am nearly 4 years SVR and I, too went through a really rocky spot while txing -and even afterwards. The "during" was because he was frustrated that I was too sick to be intimate with him and he thought that I should just be able to take iron pills to fix the hemolytic anemia that was making me so weak.
Afterwards, I was the one who changed. I was suddenly looking at the world differently -realizing that life was short and every moment was precious. I had made a bucket list and on that list was leaving the causes of my internal "negative clutter" behind. He was almost part of that clutter as his negativity was sapping the joy from my life and I refused to tiptoe around it. So far, we are still together, but our relationship is different now. I wish you all the luck that yours will work out and you both will be happy after you get through slaying this dragon. ((((HUGZ))))