ninjamonkey - it would seem that your fiance is 'gossipy' too, wouldn't you say? ;)
Dee1956 - I'm sorry that you're experiencing similar. I don't expect things to get better with mine anytime soon... But I guess that's her drama, not mine. :D
So sorry to hear about your Mom, mine hasn't spoken to me in 8 months I understand the pain of telling someone who should love you unconditionally and instead all you receive are judgments and criticism I love my children unconditionally
It will get better
Best wishes Dee
I told my dad my mom is past away so i didn't have that worry but she would.have been okay. But you do have to be careful I wanted to wait and tell people on my terms and i told my fiance right away because we live together and he is the closest person to me and i asked him to not tell people that i wanted to get right in my head with info first and then figure out how to tell me or not to tell people. And he ignores that and told all his friends and family pretty much immediately and i wasn't really gonna tell any of them at all because I'm not that close to.them for one and because they are HIS family and because they are gossipy but now I have to deal with all them knowing. Most of them are more okay then i thought they would be but some are not. So anyway just be careful who you tell and how you handle.it and also remember no matter what sometimes people do.what they want even if you ask them not to.
How sad.
Being a parent isn't always easy but I always felt our job is to give support to our kids no matter what.
I'm 47 this year. I told my mother.
She hasn't spoken to me in almost 10 months.
Well I told her. I made her swear to keep it to herself so we'll see what happens. I also told her I wasn't originally gonna tell her and why. She kinda knew something more was going on than what I was telling her. She's the only person I know with a "medical" brain. Everytime I try to talk to someone else I have to explain all the basics and I don't think they ever really understand what I'm talking about. Thanks so much for your input guys, it really did help me figure some things out.
OH I have what I call yellow and red "liver spots" on my chest as well but everybody keeps telling me it's mottling and is normal. My blood tests all came back normal for the most part.
I agree entirely.
My cutting edge hepatologist had answered a number of my questions, with a simple, "we don't know."
It makes me respect him all the more.
Atleast my dr came right out and admitted she doesn't know much about hep c. I've had dr's who would rather give me false info than admit ignorance about a subject. I have alot of respect for this dr simply because of this.
Yes of course. I believe it should be a routine test.
A few weeks ago I got so excited to see a big sign announcing, Free Hep C testing." We need more of these.
I went first to a dermatologist to ask about this odd red spot on my upper chest. Every dermatologist I saw said the same two words, "sun damage'.
None mentioned it could be related to my liver, none suggested getting a simple blood panel.
It was a spider angioma from my damaged liver.
If even doctors are ignorant what can be expected from the general populace?
And of course, those of us touched by the virus are the best ones to educate others.
I don't want everybody to know however I feel I should be encouraging others to be tested. Right now they don't take me seriously unless I tell them I got it. after all aren't we the best advocates for this rising epidemic. I wish someone would have told me to get tested sooner. They need to change testing guidelines as I had to talk my dr into testing. Isn't our responsibility to educate others?
I think you have already made the decision-if your family is open to each others business and you dont want all the negativity-then dont tell.You cant take it back once you do.You are 30 and you can do this.If you need the support then tell them something else is going on,just dont mention what really is.Its your life and not for gossip for others.Just my .02 worth-good Luck cindy
I am completely open but I live in a part of the country where it's easy to be open about all kinds of things.
Very, very few people have asked me how I got it. Instead most have told me stories about someone else they knew that had or has it.
If you are doing interferon treatment, the last thing you want is anything that will add anxiety or another thing to obsess over.
I'm the first one to encourage people to be open, to talk and share, educate others about the truth of hep C.
However when you yourself are going through treatment, it is probably not the best time to be doing this. Maybe afterwords?
Ultimately of course, its up to you.
Most of my family knows but I have a very quiet family. If you fear that your Mom is gonna tell everyone haphazardly, then she doesn't need to know. That's just my opinion though, see what the other's say.
Having HepC is bad enough without people finding out from a 3rd party. Mother or not, she doesn't need to know. jmho