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Is Adhesions Disease made wrose by Mastocytsis?
I'm a 40 year old female who since the age of 23 has had abdominal pain. In 1996 @ the age of 26 I was given a hysterectomy for what was thought to be Endometriosis. I was misdiagnosed and did not have endometriosis. Having this surgery only caused things to get much worse, in 1999 (age 29) I had to under go another surgery to remove the one ovary that was left due to pain & because it looked abnormal on my ultrasound.
When they opened me up my intestions were cut because they were in the wrong place & appox 7 inches had to be removed. It took 3 top surgeons almost 6 hours to remove all of the adhesions. Since that time my Gallbladder has had to be removed & the abdominal pain is still very bad.
In 2003 I suddenly went into Anaphylactic shock and began getting more troublesome and annoying symptoms. Hives, chronic pelvic and bone pain, hypersensitivity to heat, nausea, faintness, diarrhea, low blood pressure & itchy skin if bumped or rubbed .
I was told that I have Mastocytsis @ that time. I have to carry an EpiPen at all times now.
My question is this...since Mastocytsis affects the connective tissue & adhesions are scar tissue can one disorder make the other worse? If so are there ANY treatments ...or studies for these disorders?
My quality of life of hasn't been good since 1996 so ANY information would be GREATLY helpful.
Thank You Very Much for your time in this matter.
Hopeful In MO
When they opened me up my intestions were cut because they were in the wrong place & appox 7 inches had to be removed. It took 3 top surgeons almost 6 hours to remove all of the adhesions. Since that time my Gallbladder has had to be removed & the abdominal pain is still very bad.
In 2003 I suddenly went into Anaphylactic shock and began getting more troublesome and annoying symptoms. Hives, chronic pelvic and bone pain, hypersensitivity to heat, nausea, faintness, diarrhea, low blood pressure & itchy skin if bumped or rubbed .
I was told that I have Mastocytsis @ that time. I have to carry an EpiPen at all times now.
My question is this...since Mastocytsis affects the connective tissue & adhesions are scar tissue can one disorder make the other worse? If so are there ANY treatments ...or studies for these disorders?
My quality of life of hasn't been good since 1996 so ANY information would be GREATLY helpful.
Thank You Very Much for your time in this matter.
Hopeful In MO
Hi,
Sorry to hear of all of the pain you've had to go through (on top of the misdiagnosis, too...)
Click on my name to get my profile up and find my journal entry on Surgical adhesions. Take a look at that and see what you think. SInce you have a number of things going on, I would definitely check with your doctor before starting anything (such as the deep massage I explained) but... if you get the go-ahead, you might get some relief. I am still stunned after all these years that I was able to get rid of my adhesions so easily. It seems to be a little-understood area as far as I am concerned. I had so much pain from the adhesions and I will eternally be grateful for learning how to get rid of them. Take a look at my story and I'll be hoping you might get some useful information. You deserve a pain-free life!
Let me know if you have trouble finding the entry.
Mary
Sorry to hear of all of the pain you've had to go through (on top of the misdiagnosis, too...)
Click on my name to get my profile up and find my journal entry on Surgical adhesions. Take a look at that and see what you think. SInce you have a number of things going on, I would definitely check with your doctor before starting anything (such as the deep massage I explained) but... if you get the go-ahead, you might get some relief. I am still stunned after all these years that I was able to get rid of my adhesions so easily. It seems to be a little-understood area as far as I am concerned. I had so much pain from the adhesions and I will eternally be grateful for learning how to get rid of them. Take a look at my story and I'll be hoping you might get some useful information. You deserve a pain-free life!
Let me know if you have trouble finding the entry.
Mary
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