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complications 3 months after total hysterectomy
Hi- Just wondering if anyone out there had any complications post total hysterectomy? I had mine 3 months ago due to several cysts again! Paternal grandma died of ovarian cancer at age 50. I had 15 years of cysts, and a total of 8 laporosopies. I am not even 40 yet! Any how, at my 8 wk check up my oncologist said everything was fine, no infection, no cancer, etc., I can try having sex with my husband. We did everything was fine. Then one month later we had it again and the next day iwas in severe pain. Went back few days later, he examined me and found scar tissue that resembled "red meat", lovely, I know! Dangling down where the incision was where he removed my cervix. He burned them off. Oh my god I was screaming in pain! Still having sharp and sometimes pulling pains where my right ovary was. Then kept secreting lime green discharge (sorry for the visual!), went back today, and he burned more stuff off, and cultered, and sent my urine to lab. I have an ultrsound scheduled for next tuesday. Could I have an infection in my womb from the surgery, or could the coming and going of pain be scar tissue? Or worst yet, even though my pathology report came back benign, could ovarian cancer still be developing even though they removed everything but my appendix?
Thanks anyone for their advice!
Thanks anyone for their advice!
mramirezheggelund, I had a complete hysterectomy over 20 years ago and it was one of the best things I ever did. I had adenomyosis. This is when the endometrial tissue grows into the walls of the uterus. Mine had gotten enormous and had to be removed. I asked him to remove my ovaries because I periodically got painful cysts on them. I had them remove my appendix as well. After all they were in there anyway.
As for you, you might want to consider an ablation. They basically numb, then burn the inner walls of your uterus, stopping your periods. It is much less traumatic, and less costly than a hysterectomy. It won't work for some problems like endometriosis, but you might want to see if it would work for your situation. It helped my sister and she had very little problems after. Slight discharge for a while and some mild cramping for a couple of days. It's been years now and there's been no adverse effects at all.
Good luck. I hope this helps.
As for you, you might want to consider an ablation. They basically numb, then burn the inner walls of your uterus, stopping your periods. It is much less traumatic, and less costly than a hysterectomy. It won't work for some problems like endometriosis, but you might want to see if it would work for your situation. It helped my sister and she had very little problems after. Slight discharge for a while and some mild cramping for a couple of days. It's been years now and there's been no adverse effects at all.
Good luck. I hope this helps.
I am glad you found information about the adverse effects of hysterectomy before it was too late. Have you been given a diagnosis for the heavy bleeding? I assume you have tried various hormonal (such as birth control pills) and non-hormonal (such as tranexamic acid / Lystedad) options to reduce the bleeding?
Hello!
I am so relieved to find that I'm not alone in this...life really ***** when you think that the only option to end your problems is a hysterectomy! I'm 49, perimenopausal with hormonal imbalance. Have been taking different hormone treatments and my ob gyn performed a D&C procedure 1 year ago, as a pre-treatment to a hysterectomy. Due to the huge out of pocket cost, I have put off my hysterectomy until I can afford it, but reading all the scary things that can happen, I am refusing to have it done. I'll be buying plenty of pads, tampons, etc. before I go under the knife. The only hope I have is that menopause will start soon and all the bleeding will go away. I started my period at age 9.
I am so relieved to find that I'm not alone in this...life really ***** when you think that the only option to end your problems is a hysterectomy! I'm 49, perimenopausal with hormonal imbalance. Have been taking different hormone treatments and my ob gyn performed a D&C procedure 1 year ago, as a pre-treatment to a hysterectomy. Due to the huge out of pocket cost, I have put off my hysterectomy until I can afford it, but reading all the scary things that can happen, I am refusing to have it done. I'll be buying plenty of pads, tampons, etc. before I go under the knife. The only hope I have is that menopause will start soon and all the bleeding will go away. I started my period at age 9.
Endometriosis has been my nemesis for over 20 years...and there is hope...but you need to see an actual endometriosis specialist if you hope to get some form of normalcy to your life...as for the pain...it is most likely because you have endometriosis still in you...I have DIE (deeply infiltrated) endometriosis even after my complete hysterectomy because a hysterectomy is not a cure...the endometriosis lesions/implants must be cut out by a specialist and their are very few. so I would suggest you come on over to the endometriosis board so maybe we can help you find a specialist...they actually cut the disease out...they don't burn it...they don't take organs unless absolutely necessary and most will look at your medical records for free...so get copies of all your medical records and come over to the endo board!
http://www.medhelp.org/forums/Endometriosis/show/218
as for the pain with sex...or inability to have it at all...this is very common with endometriosis and pelvic floor dysfunction! It is most likely in your pouch of douglas and cul-de-sac of your pelvic floor which causes pain due to the nerves sending signals to the muscles to contract in order to protect and then they can't let go of that contraction...it's much like a charlie horse in your calf that wakes you in the night but in your pelvic floor muscles. I use vaginal valium to help this somewhat...but if disease is still inside think of it like this...a tiny piece of sand in our eyes although it's so tiny causes excruciating pain and we get it out...endometriosis is the same...the only way to remove the pain is to remove the source which is the endo implants not the organs...hope to see you over in the endo forum soon!
http://www.medhelp.org/forums/Endometriosis/show/218
as for the pain with sex...or inability to have it at all...this is very common with endometriosis and pelvic floor dysfunction! It is most likely in your pouch of douglas and cul-de-sac of your pelvic floor which causes pain due to the nerves sending signals to the muscles to contract in order to protect and then they can't let go of that contraction...it's much like a charlie horse in your calf that wakes you in the night but in your pelvic floor muscles. I use vaginal valium to help this somewhat...but if disease is still inside think of it like this...a tiny piece of sand in our eyes although it's so tiny causes excruciating pain and we get it out...endometriosis is the same...the only way to remove the pain is to remove the source which is the endo implants not the organs...hope to see you over in the endo forum soon!
the pinching is very normal this early in the recovery...the nerves are trying to repair and wake up...it took me a full year after all my major surgeries (one being complete open abdomen hysterectomy with ovaries removed) the first time I had the nerve stuff I did not understand what was going on and it scared me A LOT...but now many surgeries under my belt this is all part of the healing of the nerves and muscles...I do have PN issues but that is only because of the extensive damage from endometriosis and surgery...I have so far just learned to live with it...on good days it's not too bad...on bad days...death feels the easier choice...but that is not an option for me...if it gets worse I will begin nerve blocks...but for you...for now...9 weeks post op...you are early in the healing phase and need to be VERY gentle with you...nothing more then gentle walks and resting...
yes, many of us have issues after having a complete hysterectomy unfortunately! It changes the whole pelvic floor structure. First thing I would want to know is did they tack up your vaginal cuff? Could the red stuff hanging down be that they did not seal the vaginal cuff well? Anything green is definitely infection...if you have not yet been started on antibiotics for this I would ask WHY? If you had a complete hysterectomy then the infection is not in your womb because it is gone...I would recommend getting copies of your medical records and seeking a second opinion.
I also question why they did not numb you or sedate you to a point of not screaming out in pain? No one should have to endure that...this would make me run from this dr. good luck and let us know how you are doing!
I also question why they did not numb you or sedate you to a point of not screaming out in pain? No one should have to endure that...this would make me run from this dr. good luck and let us know how you are doing!
That sounds awful! I am sorry this happened to you! I am not sure I understand the problem. You said you would have to have a bag if they correct the problem. Do you mean a colostomy bag? Do you have some sort of bowel problem from the surgery such as a rectocele?
Im almost a year never can have sex again . Tried the pain was so bad I ended in ER. Now my Dr. is telling me that he not going to correct the regrowth and tear in my vaginal . Im still in pain I had everything removed because of endometriosis really bad. If they try to correct the damage I will have to wear a bag. If anyone can give some advice on how to repair without futher damage I will be grateful.
I am having problems after my abdominal hysterectomy. About 3 wks after the surgery I had a pinching sensation where I thought my cervix would be. I am now 9 wks post surgery and that area is now burning, really bad. CT scan showed nothing. MRI tomorrow. If that shows nothing it is probably pudendal nerve problem. I have all the symptoms of PN or PNE. I'm hoping not, because from reading other posts, that is pretty hopeless.
Anybody else with PNE that can provide any advise?
Anybody else with PNE that can provide any advise?
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