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Nexavar

I'm looking to get Nexavar. If anybody knows any doctors or hospitals please let me know. My mom was precribed Nexavar and she does not have medical coverage.
Thanks
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Avatar universal
thanks
Helpful - 0
446474 tn?1446347682
There will be very inexpensive Nexavar manufactured in India soon.
Instead of $69,000 - $80,000 for a year of treatment the cost in India will be $177!
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Forbes
How To Charge $1.6 Million For a New Drug And Get Away With It
3/19/2012 @ 2:28PM |65,638 views

http://www.forbes.com/sites/matthewherper/2012/03/19/how-to-charge-1-6-million-for-a-new-drug-and-get-away-with-it/

Call it a warning shot: last week an Indian patent court shocked the $600 billion global pharmaceutical business by ordering Bayer, the German health care giant, to allow a tiny Indian generic drug company to sell cheap copies of the blockbuster cancer drug Nexavar – even though everyone agrees that the drug is protected by a patent. Instead, the court decided that Bayer had an obligation to make Nexavar available to people in India who needed it.

But in this case, the Indian patent court and Natco Pharmaceuticals, which brought the case, have a point. The many thousands of Indian patients suffering from kidney or liver cancer could not get their hands on Nexavar. Only a few percent of them took it.

Knowledge Ecology International, a group that campaigns for people in developing world to have better access to new medicines, says Nexavar was priced at $69,000 for a year of treatment, 41 times the per capita income in India. For comparison, a drug that cost 41 times the U.S. per capita income would cost $1.6 million. The Natco price? $177.

In the U.S., Nexavar actually costs even more in real dollars. The average liver cancer patient would pay $80,000 for a ten-month course if he were paying the wholesale acquisition cost of Nexavar; kidney cancer patients pay $96,000 a year. Except, of course, that they don’t pay. Insurers cover much of the cost. Bayer and partner Onyx Pharmaceutical, which split sales duties in the U.S., have a program to make sure that eligible patients aren’t responsible for more than $100 of copayment. They also have programs to make sure that uninsured patients have access to the drug.

Even at Nexavar’s comparatively low price point of “just” $80,000 a year, this same strategy can work. Assuming Bayer can make Nexavar for about the same price as Natco, it could break even getting paid for one out of four hundred prescriptions. It needs to do better than that, financially, but it also needs to find ways to make the drug available to patients who need it worldwide. The new pharma compact may well be that companies can charge what they will, but that they must in the meantime make sure patients get their medicines. How long this system will be sustainable is, of course, anybody’s guess.

Here is Natco Phama's website.
http://www.natcopharma.co.in/

NATCO PHARMA LIMITED
NATCO HOUSE
Road No.2, Banjara Hills
Hyderabad-500 033
+91-40-2354 7532
+91-40-2354 5298/23548243
***@****
www.natcopharma.co.in

Good luck!
Hector
Helpful - 0
446474 tn?1446347682
I wish you the best of luck in helping your mom.
If I hear of anything I will let you know.

Best -
Hector
Helpful - 0
Avatar universal
Hi:
We already spoke with you. My mom does not live in US, she is a resident in Ukraine. I cannot apply for her for any medical coverage here as she is not a resident of US.  I went to visit her in Ukraine when she had liver resection. As there is no coverage in Ukraine people have to pay out of pocket (starting from serenges, medication, and surgery). Doctors only see you if you ay cash. If not, you have to wait in line and th line will take you months to be seen. Whatever savings my mom and me had, everything has been used for surgery, post care and medication. Now the doctor advised her to start Nexavar. The cost of it in Ukraine is $7000 per 112 pills (month supply).
At this point I am not able to buy this medication for mom as I do not have so much money. That is why I am asikng for help.

If you know any doctor's offices who may donate this medication, please, let me know.
This is a letter that I was sending to everyone to fundraise money for this medication:

THE FAMILY AND FRIENDS OF VICTORIA ARE UNITING TO RAISE MONEY TO HELP HER BATTLE AGAINST STAGE 4 LIVER CANCER

            Where do we even start....Victoria is a 64-year-old woman who is bright, brilliant, charismatic, energetic, and loving dedicated wife, mother and grandma of two little girls. It all began on the New Year’s Day of 2013, a day meant for joy and bright new beginnings. Victoria was making plans on how to reunite with her children, who now live in the US, to help them raise their kids, her granddaughters.  Her joyful plans were shuttered by a visit to the doctor’s office. That visit changed lives of everyone around her with the diagnosis of Stage 4 Liver Cancer.

            Victoria lives in Ukraine, the country where social medicine provides devastating quality of medical care. In January 2013 Victoria underwent the surgery that left her with one-third of her liver. The pathology concluded the diagnosis of Hepatocellular carcinoma (HCC, also called malignant hepatoma).  This devastation has changed many things in our lives, but hope and strength never left our hearts. At this point the surgery was not an option.  Liver transplant and/or chemotherapy were the only options left. Nexavar is the only treatment that may prolong Victoria’s life at this moment. She has to take 4 pills a day. The cost of one-month supply of this medication is about $7000 (both in the US and Ukraine). Victoria’s lifetime savings were only enough to cover the expenses up until now. Everything has been used up for the surgery and post-op care. Going forward, the chemotherapy treatments she requires to decrease the size of the tumor must be paid up-front.    

We, Victoria’s children and longtime friends, have hope and therefore, asking for your help. All the raised funds will be used to purchase Nexavar and to pay for expenses of Victoria’s medical treatments. If any of you know pharmaceutical companies, doctors and/or hospitals that can donate or assist in getting this medication, please let us know.

            With all of this being said we are starting this Fundraiser for our dearest mom, grandma and friend Victoria to raise money to help with her battle against Cancer. Hope and Faith can do amazing things and MIRACLES DO HAPPEN, but we need all the help we can get. We cannot do this alone.  

            We thank you for taking the time to read this and feel free to pass this on to anyone you think will be willing to help. Any donation, regardless of the amount is just as well appreciated as the next.
Helpful - 0
446474 tn?1446347682
I am unclear who your mom with diagnosed with liver cancer if she has no medical coverage? In order to diagnose liver cancer and cancer that has spread beyond the liver is very costly.
How are the liver cancer diagnosed?
How is she doing? Is she very sick? Is she in pain?
So I am not sure exactly what you are asking.
Here is my best advice. I hope it helps until you tell me more about your mom's health condition.
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Your mom should be able to get Social Security Insurance (SSI) and Medi-Cal is California's Medicaid program. as she is totally disabled due to her liver cancer. She is considered disabled because she has liver cancer. Medi-Cal will pay for her medical treatments and I know that UCSF does take medicaid.
Is there a reason you haven't filed for Medicaid?

Medi-Cal -  How to Apply

Call or visit your local County Social Services office and ask for a Medi-Cal application or Apply on-line
If you need help filling out the forms, call the county social services agency.
Mail or take your application with the required verifications (proof) to the nearest social services agency in your county. She will need doctor's records proving she has liver cancer. If you don’t have all your verifications, or are not sure of what you need, please send what you have. You can send the rest later. The sooner the social services agency receives your application, the sooner your case may be processed and your Medi-Cal benefits can begin.

Social Services Agency
Assistance Application Center
1919 Senter Road
San Jose, CA  95112
(408) 758-3800  Toll Free
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Nexavar is ONLY available through a certain kind of pharmacy, called a specialty pharmacy provider (SPP). An SPP works with your oncology team, the drug manufacturer, and sometimes your health insurance provider to coordinate your care.
Nexavar treats late-stage cancer. (It is also used to treat other cancers also but since this is a Liver Disease community I assume that is what we are taking about) It is usually only given to patients who have had their HCC (liver cancer) spread outside the liver. Nexavar is a DANGEROUS drug that only should be prescribe by a patient's hepatologist (liver specialist) along with an oncologist (cancer doctor) at a liver transplant center.

Are you aware of what Nexavar can and can't do? What its purpose is?

I have HCC (liver cancer) myself and am a patient at UCSF liver transplant center here in San Francisco. Your mom needs the help of a transplant center now. You should contact one of the following Stanford Hospital and clinics, California Pacific Medical Center or UCSF. They are the only places that have doctors that can help your mom.
I know that California Pacific Medical Center does do charity work and maybe they will treat her for free.

CPMC offers free care to uninsured patients with family incomes below 400 percent of the federal poverty level, regardless of their immigration status. CPMC currently offers the most generous charity care policy in San Francisco. For more information on how to apply for charity care please visit CPMC Patient Financial Services.

http://www.cpmc.org/services//pfs/fin_assist.html
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Stanford Hospital and Clinics
Make an Appointment
(650) 498-7878
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UCSF
Please call the clinic at (415) 353-2318. Tell them she has no insurance but is trying to get Medi-Cal and that she has liver cancer.

Please get help for your mom on Monday.
I hope she is not suffering very much.
I have been involved in the Bay Area liver transplant community for many years now so I would be glad to share what I know.

Best -
Hector
Helpful - 0
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