I have been on the MS boards on and off for the past 4-5 years, but they have questioned whether my symptoms really fit MS, and I am strongly concerned about Lymes, given not on my symptoms but blood tests.
Let's go back 8 years, to 2008, when I was ACCIDENTALLY tested for Lyme Disease via the WB. I had no symptoms, and it was done accidentally by a gynecologist (she meant to do it for something else). In 08 I had absolutely no symptoms of Lymes -- NONE-- but spent the first half of my life in camp and as a camp counselor. So, in '08, my WB was positive on the IGM with bands 23 & 39, and indeterminite for the IGG (w/ some nonspecific bands). I dont have those bands written down unfortunately, and can't locate the labwork, but I'm certain I had 23 & 39 on IGM and was positive there. I don't remember why I was able to put this out of my head (because I was a big worrier), but maybe I talked to a doctor and was talked out of it. Unfortunately, I really don't remember. Again, I had no symptoms at the time and had other stuff going on.
Now, flash forward to 2011. I got a bacterial infection and went on antibiotics for 1 week. This led to chronic yeast infections and MS like-symptoms. Ever since that antibiotic, I have been having relapsing-remitting symptoms of something on nd off for the past 5 years. THe first "flare" was the worst and lasted months. I usually only have 1 bad "flare" a year, and it is always in the fall. Sometimes, I will have some of these symptoms at a much smaller scale at other points, but the more debiltating flares are are almost always in the fall.
My symptoms are tingling in all 4 extremities, achyness in my extremities, fatigue, dizziness, headache, and nausea (only in the beginning). With other "flares" there were some visual disturbances, but I don;t have that this time. This is exactly what happened to me last November-- I was bedridden for 3 days (with tingles) and all my lab results were totally normal- B-12, Sjorgen's, and Lymes again, yada yada. When I was tested in 2011 for Lymes I think I was negative. I worried about MS for the last 5 years-- I was married to it, but all MRIs and tests for it have been negative. I am realizing now I think I latched on to the wrong illness. I also blamed my chronic yeast (candida) for my symptoms..
Because my yearly "flare" just happened, I went and got a slew of bloodwork, and my doc ordered lymes. Lo and beyond, the IGM AB was high at 1.09, and I tested positive for IGM band 23, only. My doc said I didn't meet the criteria for lymes and definitely don't have it. I forgot to tell him about the old IGM test, but I guess the standard medical thinking is it should turn IGG positive, and never did. Based on what I am reading, the fact that I have band 23 is very specific to BB, and nothing else. I am not sure what to make of all of this, and my last "positive" test when I had NO symptoms then. Is it possible I have had Lymes unknowingly, without symptoms, for years on end, only for them to show up later? Because given my test results, I would have had to have had Lymes since at least 2008 (with 3 years of no symptoms)-- and likely way longer than that because I lived in NYC at the time, and prior to that spent a lot of time in camp, which I would think is when I would have been most likely to get it.
The testing is what most concerns me. I do not understand how I could have Lymes with no symptoms for years on end only for symptoms to randomly show up years later after an antibioitc...is that possible???
I should also mention that I already have an autoimmune disorder-- Addison's Disease'-- which I've had for the last 20 years (I am 32, and have had this since age 12).