low fetal heartrate and cystic hygroma

[luanne88]

Hi everyone. I'm LuAnne and I'm new to this forum.  I'm about 14 weeks pregnant and I had an ultrasound last week. It showed my baby's heart was beating at only about 80 beats a minute and also the doctor pointed out a large growth on the baby's neck called a cystic hygroma. He really didn't have anything positive to say about the outcome of my pregnancy and my husband and I are pretty devastated right now. Has anyone else ever had an experience with this? I know there are rare cases where problems like this resolve themselves but don't want to get my hopes up. Thanks for any responses!

[gonza]

I am sorry to hear this.  I dont know anything about cystic hygromas, but I googled it.  I think someone else a while ago had an issue like this.  If you go to history and forum topic (I think) you may can find the post and what was said.  Good luck.

[luanne88]

Thanks Gonza - - I did spend a lot of time researching cystic hygromas on the internet after we got the news but there is SO much information out there that it's a little overwhelming. I was hoping that someone who either had experienced it personally or knew someone who had would be able to let me know how things turned out for them. I guess it's a pretty rare problem, though. I appreciate you responding! :-)

LuAnne

[SONTRE]

Hi LuAnne- I am also 12 weeks pregnant and have had 2 miscarriages in the past 9 months.  I had my ultrasound on July 11th and they found a cystic hygroma.  I had the specialist and CVS on July 12th and am awaiting results.  I do not know enough about this either and would love to know more.  Please know that someone is going through this with you and if I get anymore information I will be sure to let you know.  I hope everything turns out well for you.

[lovesachoice]

god bless you both his love will see you through this babies are a blessing pray on it.

[melissa28]

It has been a couple of months since you have shared and I was wondering how is everything going?  I am currently 15 weeks pregnant and nearly 3 weeks ago I was told my baby has cystic hygroma.  After meeting with Genetic counsellors and doctors, we were told my baby has no chance of survival and if by chance it makes it full-term, it will die within hours!  I am deeply saddened...I pray everyday for a miracle (as I believe these do happen), though I understand that miracles don't happen for everyone and so I am prepared (as much as I can) for this too...it is a rough journey of emotions!  We decided to not terminate the pregnancy because we feel that there is a purpose and reason for everything, and whatever the reason we could interfere by trying to take controll of the situation.  Every 2weeks I am scheduled to have an ultrasound to see if the baby is still living...I hate these visits!  This has been so hard on me and my family (especially my 4 year old) who sees me crying from time to time...I was wondering if there is anything as a misdiagnosis and the baby ends up being fine after it is born?  then I am also told that it is probably a chromosomal issue as the heart seems to be not doing so well...something like Downs, Turners, Edwards or Noonan's syndrom (syndrome)....anyway...hurting with you and understand the overwhelming emotions and questions.