Aa
:(
I had my PT evaluation today. I have moderate weakness and balances issues. She recommended a walker. :(
Well ok. I I was ok with having MS as long as I didn't look like I have MS. The walker is going to give it away.
I am going to get a good one. One with breaks, large wheels, and a seat! I have a terrible time out shopping because I need to find a place to sit down.
I find a bath room just so I can go sit down!
I have exercises to do and another appointment in two weeks. I like in a quad level house. Not good. Feel down the steps two weeks ago.
I bent over to pick something up the other day and fell forward. I know I was going down so I did so easily.
Seeing double a lot these past few days. My MS doctor knows this is going on. He has changed some of my meds and I just talked to them again today.
My concern is my lower body strength has never returned to normal after my first episode of ON. They say I am RRMS but I worry and wonder about that. I am SO tired even with Provigil. :(
LA
Well ok. I I was ok with having MS as long as I didn't look like I have MS. The walker is going to give it away.
I am going to get a good one. One with breaks, large wheels, and a seat! I have a terrible time out shopping because I need to find a place to sit down.
I find a bath room just so I can go sit down!
I have exercises to do and another appointment in two weeks. I like in a quad level house. Not good. Feel down the steps two weeks ago.
I bent over to pick something up the other day and fell forward. I know I was going down so I did so easily.
Seeing double a lot these past few days. My MS doctor knows this is going on. He has changed some of my meds and I just talked to them again today.
My concern is my lower body strength has never returned to normal after my first episode of ON. They say I am RRMS but I worry and wonder about that. I am SO tired even with Provigil. :(
LA
Thank you Shell,
I am doing better mentally today. My husband has finally gotten that we need a new house. We live in a quad level and I have been telling him it was so difficult for me to get up the steps.
He was not listening until I fell down the steps and then came home from the same PT he has gone to telling me I should not be walking unassisted right now. Walking makes me so tired. I have thought about it and think a walker with a seat on it might be kind of nice.
Thanks for the support.
LA
I am doing better mentally today. My husband has finally gotten that we need a new house. We live in a quad level and I have been telling him it was so difficult for me to get up the steps.
He was not listening until I fell down the steps and then came home from the same PT he has gone to telling me I should not be walking unassisted right now. Walking makes me so tired. I have thought about it and think a walker with a seat on it might be kind of nice.
Thanks for the support.
LA
Ma'am. I'm so sorry, truly I am.
I find myself partly at a loss for words to comfort your heart, to ease your burden. I get so sad, but also frustrated.
So, I'll say what is in my heart.... I understand the pride, the loss, the dependance and feel it along with you.
I also want to say (but hope it's not harsh), that this disease gets me mad at times and triggers the fight in me, and I want to say "keep on keeping on woman." You are a STRON woman, a beautiful caring wife, an a terrific mother. Don't you forget this. Now, you take all that with you and plop it in that walker when you have to, raise your head high, and when you don't need to use it - - you cram that baby directly in the corner and throw afgans on it until next time.
Fiesty and full of fight for you right now, while you work your way through this.
(((hugs)))
Shell
I find myself partly at a loss for words to comfort your heart, to ease your burden. I get so sad, but also frustrated.
So, I'll say what is in my heart.... I understand the pride, the loss, the dependance and feel it along with you.
I also want to say (but hope it's not harsh), that this disease gets me mad at times and triggers the fight in me, and I want to say "keep on keeping on woman." You are a STRON woman, a beautiful caring wife, an a terrific mother. Don't you forget this. Now, you take all that with you and plop it in that walker when you have to, raise your head high, and when you don't need to use it - - you cram that baby directly in the corner and throw afgans on it until next time.
Fiesty and full of fight for you right now, while you work your way through this.
(((hugs)))
Shell
Pride. That is why I have not tried the electric scooter. That's just it. I am going to have to swallow the pride and ride the scooter.
What if I run into someone? That would not be good.
I would rather walk along side my husband and hold his hand. :( But I have to hold onto the grocery cart with two hands anyway to keep from tripping.
Loss of independence, that is what bothers me most.
LA
What if I run into someone? That would not be good.
I would rather walk along side my husband and hold his hand. :( But I have to hold onto the grocery cart with two hands anyway to keep from tripping.
Loss of independence, that is what bothers me most.
LA
The walker will be safer for you. You could end up really hurt without it. It seems like a lot of extra work, however, taking it into the store. Is there a reason why you can't opt for something electric, like a scooter, to save your energy? Maybe saving energy could help in the long run to stay more mobile at home and be less tired.
Maybe your PT is overdoing it?????? I practically die after a ten minute walk . . .
Deb
Maybe your PT is overdoing it?????? I practically die after a ten minute walk . . .
Deb
Well, in a way I am sorry that you are going to have to use a walker but then again I am glad that they evaluated you and decided that you need one...it is going to be so much easier for you and safer too. I recently went to the zoo and hubby rented a scooter for me and I couldn't believe how much more freedom I had! It will at least offer you some support and ability to rest when you really need to. I figure that there is no sense in fighting it if we are putting ourselves in the path of danger.
I understand what it's like to have to deal with a lot of stairs and that may be something that you may have to do something about...for your own safety if nothing else. It could be the cause of a serious fall that could happen when no one is around and the consequences could be bad. This is probably something you should discuss with your doctor and perhaps there is a way you could have a lift put in your house? Worth a try I figure..you certainly don't want to fall a break a hip or something more serious.
I also wonder about the pain and loss of strength in my legs after my "relapse" in July 2007. If it is RRMS I assumed that my ability would return more than it has but I don't have a doctor to answer this question so perhaps you can ask your's about this subject? It would be interesting to hear what they have to say.
As for the fatigue, it seems that this is something we have to learn to adjust our lives around...one would think that the Provogil would help but perhaps there is something else going on such as a poor sleep pattern...have you had any sleep lab tests? Might also be worth mentioning to the neuro. Hope you start to feel stronger soon and that the PT will help..I am sure that using a walker will make things easier for you even though it may be a little difficult to accept at first...keep using it and soon it will seem like another body part and you will more than likely wonder how you did without it!
Lots of Hugs,
Rena
I understand what it's like to have to deal with a lot of stairs and that may be something that you may have to do something about...for your own safety if nothing else. It could be the cause of a serious fall that could happen when no one is around and the consequences could be bad. This is probably something you should discuss with your doctor and perhaps there is a way you could have a lift put in your house? Worth a try I figure..you certainly don't want to fall a break a hip or something more serious.
I also wonder about the pain and loss of strength in my legs after my "relapse" in July 2007. If it is RRMS I assumed that my ability would return more than it has but I don't have a doctor to answer this question so perhaps you can ask your's about this subject? It would be interesting to hear what they have to say.
As for the fatigue, it seems that this is something we have to learn to adjust our lives around...one would think that the Provogil would help but perhaps there is something else going on such as a poor sleep pattern...have you had any sleep lab tests? Might also be worth mentioning to the neuro. Hope you start to feel stronger soon and that the PT will help..I am sure that using a walker will make things easier for you even though it may be a little difficult to accept at first...keep using it and soon it will seem like another body part and you will more than likely wonder how you did without it!
Lots of Hugs,
Rena
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