Remember Bee Stings?

[jaegergirl]

When I was first diagnosed, years ago, they were using bee stings as a possible treatment for MS. The doctor told me that outside of bee stings there really wasn't much else they could offer me other than comfort drugs. I settled for the comfort (Of which there was very little) and ate bee pollen by the hand full!  All I got from that was beautiful hair and nails not to mention a slight pain med addiction!

I sometimes forget to be grateful. But every time I see a bee it comes back to me. I have allot to be thankful for

[Heather3418]

I think I'll try some of that dark chocolate "cure" myself, tonight.  Quizzle...you are such a silly girl.."better frame of mind?"  Hey I say if you are going to have this dippy disease, might as well feel good by putting chocolate into your belly.  Only problem with me is the old saying, "A moment on the lips, a life-time on the hips."

Here's to chocolate...may it forever reign to delight future generations....Yum, yum.

[Quixotic1]

Actually, Jean, I'm pursuing the chocolate therapy on the side on the down low.  Yumm, Since I prefer milk chocolate, I'm just eating three times as much and damn the sugar.

I don't htink the MS is better, but I'm in a better frame of mind.

Quix  :))

[jean_619]

I wouldn't mind the dark chocolate cure myself.

[jensequitur]

Oh, yeah... 'Helminthic therapy.'  Sounds a lot better than hookworms.  Seems like somebody is telling me every week about this 'new' research that will cure everything, including MS.  You know what they say about that - if they say it'll cure a number of diseases that have nothing to do with each other, then it's quack medicine.

[jaegergirl]

When I was at the Jimmy Heuga Center there were a few people that wore ice suits.  I thought it was the craziest thing I had ever seen at the time. They looked like astronauts in big silver costumes with helmets. I have since come to understand how helpful that might be!  

The idea that I may someday have the need or -even more so the desire- to wear one of my own was unthinkable to me.  Today the idea sounds delightful as well as helpful!

As far as the Copaxone I hated it while I was on it because the shots could be so painful and itchy. Now having gone off of it and having moved to the Rebiff injections I really miss the 10-20 minutes of discomfort as opposed to the all day flu symptoms of the Rebiff. It is truly a case of the grass being greener.



I want my own ice suit!

[Sarahsmom46]

Hookworm Cure.  Now that really sounds Ewwwww-ie!  I'll take the bee sting over the hookwork any day.  

Actually, I'll take a pill over an injection too.  Hope that will be available soon. Can you imagine MSers 10 years from now thinking "do you remember the injections we used to have to do"...Modern medicine.

[Quixotic1]

Eeeewwwe!  No wonder why I forgot the Hookworm Cure.  

Q

[Karen99]

With bees in the air this time of year, I have to admit I am looking at them straight in the eye and swipe at them.  It's probably ill-advised but I am curious what would happen.  

I'm leaving them alone now so they will stick around and pollinate my vegetable garden. :-)

[Lulu54]

I won't let you off the hook until you add the hookworm cure  to this list.  The yuck factor is right up there with bee stings.  

[Quixotic1]

I remember recommending in the mid-90's that a patient look into bee-therapy.  The theory was that the venom somehow interacted like a neurotransmitter in MS (which makes no sense at all now), but it seemed interesting then.

The therapy was looked at quite seriously by scientists and shown to be no better than placebo.  However, the practice still goes on in an underground fashion, with medical aviaries teaching people with MS how to apply the bee stings and furnishing them with bees.  Still, if the nerves aren't connecting to the brain, it's hard to see how it might work, unless it mimics a neurological structure and causes some sort of immune modulation.  

It would be interesting to list the various therapies that have been clained to be effective in MS - diet, bee stings, electromagnetic therapy, LDN, standard DMDs, Marshall Protocol,  neck vein dilatation, dietary supplements, hyperbaric oxygenation, stem cells, high dose chemotherapy, spinal manipulation, dark chocolate,

Those are the ones I remember.  Anyone remember others?

Quix

[HVAC]

The sting never got better for me although I would still take Copaxone if I could. I thought Copaxone was bad until I had n injection for a blood thinner in my belly after surgery. That was the most painful shot I ever had.

Alex

[lmeiser45]

People keep saying the sting only lasts a few months. I'm on month 8 and it still hurts like a swarm of hornets stinging me.  I do think this week the pain is starting to subside (by all means it is not gone.) I think it's down to maybe one hornet instead of a huge swarm of hornets.  

[Lulu54]

Those copax shots don't feel like bee stings -that is much too gentle.  To me they felt like wasp or hornet stings for the first few months.  They do get better after some time, so be patient.

Bee therapy is definitely not recommended these days.

Be well,
Lulu

[jaegergirl]

It was the Copaxone that made me remember the stings. They were so similar that I asked the help line if they were related- no they aren't but they sure feel the same. The Rebif isn't as bad- Sting wise anyway

[Sarahsmom46]

That is an interesting treatment.  I recall back in the 80s or so that there was hyoe for bee pollen being a cure all kind of like colon cleanses are now.  Look how far things have come.  

I was thinking of the bee sting sensation too with my copax injections.  How interesting or what a coincidence.  I am certainly grateful too.  Thanks for sharing.

Julie

[jean_619]

Wow.  Ironic how it is come full circle some ways -- when I inject my Copaxone it feels like a bee sting!  But I'm sure this drug helps a hell of a lot more than bee stings!