Dr's are thinking Possible MS, I have a few ?s

[BENNY07]

Hello everyone.. I 'm currently in the hospital after a rough 4 or so months, I have seen a number of dr's who have had no idea what was going on - theories from Guillian barre, CIDP, even ALS (ugh, I have still been a wreck from the mention of that one , and still fear it some, even though I have had THREE emgs that were normal).. anyhow I had MRI's 4 months ago that were  normal.. I'm 31 years old and have 2 kids under 2.. so the right age for MS.. but anyhow  They repeated my MRI's here  and in only 4 months they went from normal to 1 lesion on my c spine spinal cord (appears demylenating) and one "lesion" in my right frontal lobe (they didn't go into detail just said it could be nothing or could be demylenating)
I had a LP today and it did have elevated protein, however also showed i had meningitis! but It'slikely aseptic meningits from IVIG treatment we were doing a trial of.. for these issues
  I have had numbness and tingling x 4 months in most extremities and at times my face.. the tingling would wake me up at night all night. I do have muscle twitching all over (but have had thix in my legs for three years)
I also have slurred speech when I"m tired and that has worsened a lot the past week or so
I have lost dexterity in both hands- just woke up one morning abot 4 months ago and my hands were "funky" both of them and they have been that way since
I have odd/double like vision at times..

I had an LP about 1 month ago that was negative - no oligoclonnal gands or elevated protein.. with that and a previously negative MRI 4 months ago I thought MS was off the table, but they think its pretty likely at this point
I have evoked potentials scheduled for tomorrow
Anyhow I was curious what yalls opinions were on this whole thing! Does this sound like MS to yall as a possibility?  

[sadie405]

Hi Benny-- simultaneous symptoms on both hands are definitely possible, especially when considering lesions of the spinal cord.

So sorry you're going through this-- whatever it ends up being seems to be setting in fast and furious-- but I'm glad you're in the hospital and they're doing everything they can.

I am 31 with two little people myself, and I know how scary this all is, especially in that context.

Hang in there,
Sadie

[BENNY07]

thank yall so much.. It defintely hasn't been a fun situation!   I had the visual evoked potential testing today.. havent' gotten the results - should in the morning - did yall have those ?  

Do yalls muscles ever feel like they are vibrating? My lips, face shoulders, foot feels like it's vibrating at times... and one more question - my hand weakness- hit both hands at the same time - same week, is that normal in MS? my right leg started one week and then both hands.. speech also affected with all of this.. thanks for yallls time!

[jensequitur]

I have a friend that had meningitis, and he ended up with a little brain damage.  I think the inflammation was causing pressure on the brain.

[Dagun]

Hi, I am sorry you are going through this. I don't know jet if I have MS, but I have these symptoms, tingling all over, started in one toe June 2010 then got more widespred, soon both feet, then hands in March 2011 and left side of face in April.

Along with getting the tingling I got also nervepain in all these places at the same time. Since this summer, I've been getting muscle twitching all over and musclecramps (painful) first in legs now also in arms. I also get many other things that just stay for a week, month or so. But most of them mild.

It seems like the tingling has gone all over sooner for you, but maby we are deeling with simular "behavior" of the MS or what ever it is. Good luck in this all and please let us know how this turnes out. Sorry for my bad English.

My best,
Dagun  

[maxthecat9196]

It sounds possible, but unfortunately it can take a while for all the pieces to fit together.  It sounds like a scary situation though.  Hang in there.

Tammy

[BENNY07]

I meant to add- both MRI's were done on the not t3 (or whatever that newer technology is) due to my spinal fusion from sciolosis as a kid- so both same technology.. thanks again in advance for any insight!