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A Different Menstreul Cycle Problem
I was on the other post, and most was about getting their period too often. Has anyone had the problem of not getting it?
I am having a really hard time right now. I got mine yesterday, but it only flows when I go to the bathroom or am exercising, in otherwords forcing it. I called the ob/gyn and they said they could try to take me in today, but that it was most likely a neurological issue. I was wondering if I was alone in this unique situation.
I am having a really hard time right now. I got mine yesterday, but it only flows when I go to the bathroom or am exercising, in otherwords forcing it. I called the ob/gyn and they said they could try to take me in today, but that it was most likely a neurological issue. I was wondering if I was alone in this unique situation.
I read the article, it is somewhat detailed in medical terminology, but I think I've managed to figure out most of it.
The article centers around a study conducted at the MS Clinic of University of Utah. 9 patients were selected for the study of the 40 that volunteered. Premenarcheal, postmenopausal, pregnant and lactating women were excluded. Of these 9 only 5 completed the study, becasue the other 4 did not properly record their basal body temperatures in the morning before getting out of bed, as instructed to do so. The study said that because one woman clearly demonstrated a change of neurological symptoms in the Luteal and Menses phases of her cycle, where the estrogen levels are the lowest, there is a connection to MS symptom increase and cyclic changes. However the only other woman to state that she felt this way, did not truly demonstrate cyclic changes, and one other woman was found to suffer from PMS. The final patent was depressed.
They did mention that right after pregnancy, the significant drop in estrogen has been demonstrated to create a relapse of MS. At the beginning it was stated that pregnant women experiene a significantly reduced relapse rate during the third trimester, when estrogen levels are higher. Furthermore, a full-term pregnancy may actually increase the time interval to reaching disability or to having a secondary progressive course." (Damek, DM, Shuster EA. Pregnancy and multiple scleerosis. Mayo clin Proc. 1997;72;977-989).
Article by M Houtchens, MD, N Gregori, BS and J Rose MD
The article centers around a study conducted at the MS Clinic of University of Utah. 9 patients were selected for the study of the 40 that volunteered. Premenarcheal, postmenopausal, pregnant and lactating women were excluded. Of these 9 only 5 completed the study, becasue the other 4 did not properly record their basal body temperatures in the morning before getting out of bed, as instructed to do so. The study said that because one woman clearly demonstrated a change of neurological symptoms in the Luteal and Menses phases of her cycle, where the estrogen levels are the lowest, there is a connection to MS symptom increase and cyclic changes. However the only other woman to state that she felt this way, did not truly demonstrate cyclic changes, and one other woman was found to suffer from PMS. The final patent was depressed.
They did mention that right after pregnancy, the significant drop in estrogen has been demonstrated to create a relapse of MS. At the beginning it was stated that pregnant women experiene a significantly reduced relapse rate during the third trimester, when estrogen levels are higher. Furthermore, a full-term pregnancy may actually increase the time interval to reaching disability or to having a secondary progressive course." (Damek, DM, Shuster EA. Pregnancy and multiple scleerosis. Mayo clin Proc. 1997;72;977-989).
Article by M Houtchens, MD, N Gregori, BS and J Rose MD
I want to go to a pshycologist, but no money, and the physical things need to be taken care of. I do go for a massage once a week at the chiropractors (inclusive) so it helps me de-stress a little, but I don't even know where to go. Plus, I have the worst insurance. I can't even get one in my area to pull up on the website (I'm thinking it doesn't work, but customer service is than cooperative, so I'm going to check again next week, give IT a chance to fix it). I had the second ob/gyn I saw tell me it was post-pardum depression, but he wouldn't even give me anything for it.
I'm usually pretty good dealing with stress. I would exercise everything out. Since I don't know where I'm going ot find money for a shrink (easier to spell), I am going to talk to my coach, my chiropractor/nutritionist, and possibly an orthopedic about getting an exercise program together (all covered by the insurance, except the coach, but he's an exercise phsyiologist with experience working with disabiliites and rehabilitation), and talk to my neurologist about helping me to find a way to get insurance to pay for someone. That wasn't even everything that I go through on a daily basis, just what was irritating me at that moment.
It's a cycle too. Cause the emotional stress causes phsyical problems and destructive decisions (exercising incorrectly, poor eating). So I'm hoping that will help me get a healthier lifestyle again, so that I can maybe get to the true root of my physical problems. My neurologist said he does not believe I suffer depression, which I guess is a good thing. But just because it's not depression doesn't mean that there's not too much stress to deal with alone. I think depression is starting to creep in as I find out that what is wrong might be more than just a bad c-section.
I have an appointment with my chiropractor tomorrow and one with the neurologist tuesday. I just have to get a lawyer this week (fighting for sole custody) and find my son a new pediatrician (the other is a little strange, and plus never told me when he needed his next round of shots), and take care of this this week. My family is so great. My parents are on vacation, but my Aunt and great Aunt and grandmother stepped right in. My aunt has taken to cleaning my house and my room, and helping get the kitchen organized with places for my food, since I don't eat what my family eats. She is also helping me find gluten-free foods and getting recipes from her friend who has Celiac to try to see if that helps out any. It has been suggested by my nutritionist to cut back on gluten containing foods and see what happens, can't hurt.
Thank you for the support. You guys are great. I'll let you know how things go. And let me know you're doing.
I'm usually pretty good dealing with stress. I would exercise everything out. Since I don't know where I'm going ot find money for a shrink (easier to spell), I am going to talk to my coach, my chiropractor/nutritionist, and possibly an orthopedic about getting an exercise program together (all covered by the insurance, except the coach, but he's an exercise phsyiologist with experience working with disabiliites and rehabilitation), and talk to my neurologist about helping me to find a way to get insurance to pay for someone. That wasn't even everything that I go through on a daily basis, just what was irritating me at that moment.
It's a cycle too. Cause the emotional stress causes phsyical problems and destructive decisions (exercising incorrectly, poor eating). So I'm hoping that will help me get a healthier lifestyle again, so that I can maybe get to the true root of my physical problems. My neurologist said he does not believe I suffer depression, which I guess is a good thing. But just because it's not depression doesn't mean that there's not too much stress to deal with alone. I think depression is starting to creep in as I find out that what is wrong might be more than just a bad c-section.
I have an appointment with my chiropractor tomorrow and one with the neurologist tuesday. I just have to get a lawyer this week (fighting for sole custody) and find my son a new pediatrician (the other is a little strange, and plus never told me when he needed his next round of shots), and take care of this this week. My family is so great. My parents are on vacation, but my Aunt and great Aunt and grandmother stepped right in. My aunt has taken to cleaning my house and my room, and helping get the kitchen organized with places for my food, since I don't eat what my family eats. She is also helping me find gluten-free foods and getting recipes from her friend who has Celiac to try to see if that helps out any. It has been suggested by my nutritionist to cut back on gluten containing foods and see what happens, can't hurt.
Thank you for the support. You guys are great. I'll let you know how things go. And let me know you're doing.
I'm so sorry your appt didn't go well!! :(
You are dealing with just so much right now. I can see how frustrated and stressed you must be. Being ill with no answers is frustrating enough, but adding all of the other stuff with it, just makes it so hard!!
It IS hard to control the emotional stuff and the emotional stress affects the physical stuff going on. I definitely know how that is. I gets so frustrated sometimes that I feel like I just need to get in my car and drive off somewhere, but I can't do that. Nowhere to run and nowhere to hide.
I hope that things go well with the ultrasound tomorrow morning and you will at least get to talk with a doctor, like you should have today.
Take care and please keep us posted!! Pat :)
Are you Rx'd any meds to help with the stress at all? That may help things somewhat. I used to be so against taking meds, especially for anxiety issues, but have now realized that it would help me gain some control on both emotional and some physical issues right now.
You are dealing with just so much right now. I can see how frustrated and stressed you must be. Being ill with no answers is frustrating enough, but adding all of the other stuff with it, just makes it so hard!!
It IS hard to control the emotional stuff and the emotional stress affects the physical stuff going on. I definitely know how that is. I gets so frustrated sometimes that I feel like I just need to get in my car and drive off somewhere, but I can't do that. Nowhere to run and nowhere to hide.
I hope that things go well with the ultrasound tomorrow morning and you will at least get to talk with a doctor, like you should have today.
Take care and please keep us posted!! Pat :)
Are you Rx'd any meds to help with the stress at all? That may help things somewhat. I used to be so against taking meds, especially for anxiety issues, but have now realized that it would help me gain some control on both emotional and some physical issues right now.
Thank you so much. I read the poem, great poem. It truly is inspirational. Yeah, I know I have a lot stress, and that's not even all of it. Most of it is emotional stress. Sounds kind of odd, but this whole physical problem is probably the easiest to deal with right now. Feel like I have to most control on this one, since I can't control the ex.
I love the description of the dufus. Had to laugh. That's so great that he's a member of the consortium, not even, a head of a center! That's got to feel good.
I actually stumbled across the same article today, but I was at work and got called away, so I didn't get to read it. I have nothing to do at work tomorrow (boss is in Germany), so I'll be able to really sit down and concentrate on what I'm reading. I'll give you a synopsis of the article.
I love the description of the dufus. Had to laugh. That's so great that he's a member of the consortium, not even, a head of a center! That's got to feel good.
I actually stumbled across the same article today, but I was at work and got called away, so I didn't get to read it. I have nothing to do at work tomorrow (boss is in Germany), so I'll be able to really sit down and concentrate on what I'm reading. I'll give you a synopsis of the article.
Corinne, I just hate hearing what you are going through. I would never have guessed at this much stress in your life. I heard the frustration, but I thought it was more physical. I'm so sorry. Someday we are all going to have to get together and scream together! But I'm hoping that tomorrow does not bring bad news.
All - I just stumbled onto an organization called The Consortium of Multiple Sclerosis Centers. It is the premier international collaboration of MS care providers and researchers. And my new MS neuro heads a Member Center. My old "evil", defective, dumb, dismissive, dense, dodo of a dufus neuro isn't. ?????????????
Anyway I found an article called: "Understanding Fluccuations of Multiple Sclerosis Across the Menstrual Cycle." appropriately enough. Here's the link, I don't know if it is technical or not. If it is, tell me and I'll read it and interpret:
http://www.mscare.org/cmsc/images/pdf/07Houtchens%20.pdf
Lator, Gators Q
All - I just stumbled onto an organization called The Consortium of Multiple Sclerosis Centers. It is the premier international collaboration of MS care providers and researchers. And my new MS neuro heads a Member Center. My old "evil", defective, dumb, dismissive, dense, dodo of a dufus neuro isn't. ?????????????
Anyway I found an article called: "Understanding Fluccuations of Multiple Sclerosis Across the Menstrual Cycle." appropriately enough. Here's the link, I don't know if it is technical or not. If it is, tell me and I'll read it and interpret:
http://www.mscare.org/cmsc/images/pdf/07Houtchens%20.pdf
Lator, Gators Q
I went to the doctor's and what a disappointment. They called me back and said I had to go in soon that day and see the doctor. Well, I didn't get a doctor, they gave me a mid-wife. I'm so annoyed. She didn't even understand why they would send me to a neurologist. She said she didn't understand why they would recommend I go to a specialist. And then stated that she really isn't a doctor and maybe with my history I should have gone to see one of the doctors in the practice not the midwife. I was like, no really. Then she said she wanted to check anyway.
During the exam, I tensed up so bad because it hurt. She said it was difficult to complete the exam because of how tight my belly was. Exact words. belly, please, i'm not a child. then she said I had to get an ultrasound first thing tomorrow and have them call one of the doctors because she believes I have an ovarian cyst, again. I had one a few months before I was pregnant. She also asked me three times if I could be pregnant. I haven't even been kissed in over 5, so NO not a possibility.
My son's father walked out when I was four months pregnant. We tried to work things out, but when his work season got busy, he got lost. Stopped trying to work things out between us, just couldn't forgive him. I"m just so annoyed that I get asked that everytime, multiple times. Ask once, not three or four times. Sorry I"m complaining now, I'm just losing it.
I'm irriated over everything and wavering between sheer anger at the situation and depression. I'm spending all my savings on doctor's bills, with no help from my son's father. I live with my parents and my son and I are in one 11 x 14 foot bedroom. I have to move us into another place, where he can have his own room, but no money. And my parents don't make much more than me on their combined income, so I feel bad having them help me out. I don't even have people to hang out with around here. My friends live all over the country. I hang out with my brother and his friends, but no girls and these issues, guys don't understand.
During the exam, I tensed up so bad because it hurt. She said it was difficult to complete the exam because of how tight my belly was. Exact words. belly, please, i'm not a child. then she said I had to get an ultrasound first thing tomorrow and have them call one of the doctors because she believes I have an ovarian cyst, again. I had one a few months before I was pregnant. She also asked me three times if I could be pregnant. I haven't even been kissed in over 5, so NO not a possibility.
My son's father walked out when I was four months pregnant. We tried to work things out, but when his work season got busy, he got lost. Stopped trying to work things out between us, just couldn't forgive him. I"m just so annoyed that I get asked that everytime, multiple times. Ask once, not three or four times. Sorry I"m complaining now, I'm just losing it.
I'm irriated over everything and wavering between sheer anger at the situation and depression. I'm spending all my savings on doctor's bills, with no help from my son's father. I live with my parents and my son and I are in one 11 x 14 foot bedroom. I have to move us into another place, where he can have his own room, but no money. And my parents don't make much more than me on their combined income, so I feel bad having them help me out. I don't even have people to hang out with around here. My friends live all over the country. I hang out with my brother and his friends, but no girls and these issues, guys don't understand.
Hope you get some answers and get something to help with your cramps. I just can't see how your issues would be neurological, but I'm not a doc.
Did you also have a baby a few months ago (or am I confusing you with someone else)? Maybe that has something to do with it as well.
Take care and let us know what the ob/gyn says! Pat :)
Did you also have a baby a few months ago (or am I confusing you with someone else)? Maybe that has something to do with it as well.
Take care and let us know what the ob/gyn says! Pat :)
Didn't even think of that, because they were regular for some time. Then they got normal for a month or two, and now this. But good point, maybe. I have extremely bad cramps though, and had the waxing and waning of symptoms along with my cycle, just like everyone.
They are making me come into the office today, so I guess I'll find out. I called because of the extreme cramps and change in cycle (noticed my medicine had a warning on it about cycle changes). Maybe it has to do with a reaction to the meds.
Thank you. Hopefully that's the only problem.
They are making me come into the office today, so I guess I'll find out. I called because of the extreme cramps and change in cycle (noticed my medicine had a warning on it about cycle changes). Maybe it has to do with a reaction to the meds.
Thank you. Hopefully that's the only problem.
My periods have definitely lightened up and are actually not painful for me. I don't even have to take any ibuprophen or anything for them. They are still regular though. But, I'm figuring that's due to my age (44) and not MS.
Hmmm... that's interesting. I wouldn't think it would be a "neurological" issue??? Curious as to what others think about that.
You are an athlete, is that right? Could it be because maybe you are not exercising or are as physical as your body is used to that could be changing things?
Hmmm... that's interesting. I wouldn't think it would be a "neurological" issue??? Curious as to what others think about that.
You are an athlete, is that right? Could it be because maybe you are not exercising or are as physical as your body is used to that could be changing things?
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