Aa
Could I have ms?? Is it possible??
6 years ago I had the left side of my body go numb. I went into the Er thinking it was a stroke. The doctor poked me with a needle and found that I was not as responsive as I was to my other side so he kept me for four days and gave me an mri. My mri showed lesions strewn throughout and a tumor at the base of my pituitary gland. The tumor isn't growing and is benign so it's not causing my symptoms.
He gave me a lumbar puncture that did not show anything significant. Fast forward to a year later, still dealing with off and on tingling, numbness, muscle spasms and cramps, general neoropothy, upset stomach, and started having involuntary rapid eye movement. But only at night. It would wake me up in the middle of my sleep and would last for only 30 seconds each time then stop. That went on for a year and a half and stopped. I would get this sun burn feeling on my legs too that would hurt so bad clothes would make me wince with pain and going to the restroom would make me cry.
Since then it had stopped. But lately the symptoms have come back. My lesions on the mri disappeared, but haven't had an mri since 2014. I think. I get frequent migraines and headaches. But lately the muscle spasms have come back full force. The tingling is worse than before and I huuuuuurt so badly. Like I ran into something with my arm or leg but I'm really just sitting on the couch watching a movie. The pain comes from nowhere. Then the other morning I awoke and my eyes were going side to side again and wouldn't stop for almost a minute. Made me upset for a couple hours after. I'm afraid. The doctor is confused. I can't tolerate heat, it brings on migraines and headaches and the brain fog. I'm useless in 80 degree weather. Sometimes I get muscle weakness so bad I can barely crawl out of my own bathtub when I take a bath, but we have been assuming that it's just a symptom of my migraines.
Please help. I'm so tired of this. OH! That would be another symptom. The fatigue is endless
This has gotten so bad I can no longer work and carry on a normal every day life. Any advice would be greatly appreciated. I thank you for your time in reading this and your opinion.
He gave me a lumbar puncture that did not show anything significant. Fast forward to a year later, still dealing with off and on tingling, numbness, muscle spasms and cramps, general neoropothy, upset stomach, and started having involuntary rapid eye movement. But only at night. It would wake me up in the middle of my sleep and would last for only 30 seconds each time then stop. That went on for a year and a half and stopped. I would get this sun burn feeling on my legs too that would hurt so bad clothes would make me wince with pain and going to the restroom would make me cry.
Since then it had stopped. But lately the symptoms have come back. My lesions on the mri disappeared, but haven't had an mri since 2014. I think. I get frequent migraines and headaches. But lately the muscle spasms have come back full force. The tingling is worse than before and I huuuuuurt so badly. Like I ran into something with my arm or leg but I'm really just sitting on the couch watching a movie. The pain comes from nowhere. Then the other morning I awoke and my eyes were going side to side again and wouldn't stop for almost a minute. Made me upset for a couple hours after. I'm afraid. The doctor is confused. I can't tolerate heat, it brings on migraines and headaches and the brain fog. I'm useless in 80 degree weather. Sometimes I get muscle weakness so bad I can barely crawl out of my own bathtub when I take a bath, but we have been assuming that it's just a symptom of my migraines.
Please help. I'm so tired of this. OH! That would be another symptom. The fatigue is endless
This has gotten so bad I can no longer work and carry on a normal every day life. Any advice would be greatly appreciated. I thank you for your time in reading this and your opinion.
Where I live is on a small island and it's hard to leave. Is there a doctor that maybe I could email that you know of?
3 Comments
Amy this is an international site but most of our community seem to be from the USA, with rest made up from countries all over the globe....I'm from Australia which is technically an Island but unfortunately the chance of anyone being from your 'island' and knowing an MS specialist close to you is honestly unlikely, you are better off contacting your closest MS society and asking them directly for advice...
Cheers...JJ
Cheers...JJ
You may have to plan a "medical" vacation.
Should be less about the medical and more about the vacation.
Given the eye trouble, have you seen an opthalmologist or neuro opth?
They could ***** your eye issues and let you know if there's anything typical of ms going on.
We tend to confuse a lot of docs until we find the right one, have textbook test results etc.
(((Hugs)))
Should be less about the medical and more about the vacation.
Given the eye trouble, have you seen an opthalmologist or neuro opth?
They could ***** your eye issues and let you know if there's anything typical of ms going on.
We tend to confuse a lot of docs until we find the right one, have textbook test results etc.
(((Hugs)))
Guess I should have used the word evaluate rather than "assess" lol
COMMUNITY LEADER
Hi and welcome,
Could you please brake up your future posts into smaller text blocks, people with MS commonly have visual and or cognitive issues that makes reading large blocks of text difficult to see and follow...ta
To be honest i'm not sure MS would be the most likely explanation, a neurological condition like MS 'could be' on your potentials list......if your neurologist in still confused, leaving you in diagnostic limbo, untreated or inappropriately treated 6 years down the track, i would highly recommend you seek a second opinion!
If you have concerns it might be MS, then it's better to see a neurologist that specialises in MS and not just a general neuro but please still try to keep an open mind, as it may well be a completely different type of medical condition that your dealing with...
Hope that helps...JJ
Could you please brake up your future posts into smaller text blocks, people with MS commonly have visual and or cognitive issues that makes reading large blocks of text difficult to see and follow...ta
To be honest i'm not sure MS would be the most likely explanation, a neurological condition like MS 'could be' on your potentials list......if your neurologist in still confused, leaving you in diagnostic limbo, untreated or inappropriately treated 6 years down the track, i would highly recommend you seek a second opinion!
If you have concerns it might be MS, then it's better to see a neurologist that specialises in MS and not just a general neuro but please still try to keep an open mind, as it may well be a completely different type of medical condition that your dealing with...
Hope that helps...JJ
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
