Aa
Aa
A
A
A
Close
Avatar universal

Good old doctors appt

Ok here I go again but first of all Thank you for your time it means a lot to me to have infor from all of my new friends. MRI findings there are multiple, lobulated foci of increased flair and T-2 wighted signal intensity noted throughout the white matter of the cerebral hemispheres, symmetrically. Much of this abnormal signal is closer to the grey/white junction rather than being periventricular. the amount of abnormal signal is abnormal for a patient of this age. All my other test have come back ok other then the brain and my syptoms I go through everyday for the last 2 years. Seeing lots of doctors who don't know what it is yet. Saw family doc he said maybe there is no reason for them and my symptoms are from other things like sleep disorder or depression. He wants to try seroquel to see if it will help me sleep. I told him the sleeping pills I have are fine. He think from a doctors point of view I should not go to Thailand. I just want him or someone to tell me yes you are sick. Told him I was thinking of moving down sizeing so my husband could help me out and spend more time with him. I was looking for him to say don't rush into things yet so I don't know what to make out of that. He said nothing. If things don't look good for me then I want to do as much as I can now with my husband before it's to late leaving his job and moving you want to be sure it's right. Sorry for going on so much I'm going nuts. Every day toes go cold right arm gets weak I feel flu symptoms fatigue every day sick sometimes twice a day head aches when trying to get up can anyone tell me what they think it might be.
Thank you
4 Responses
Sort by: Helpful Oldest Newest
Avatar universal
It's so nice to hear the truth that what I have is not normal thank you. I have been to the St.Michael's hospital at the MS clinic twice I see a neuro every six months and I see my family doctor every month visits are to see if I have any changes. The one MS doctor thought maybe strokes but I had all the heart test done about 2 years ago. They think by giving me an MRI about every 6 months to one year if they see changes then they will know. The only thing I get is possible MS. This all started around 41 now at 45 I'm not doing good. Doctors are now saying maybe they will never amount to nothing more but I do tell them I can't work or do other things I once enjoyed. I do have some medical ins. Where I live it is very hard to get a doctor the waiting list might be up to 3 years or more most people go to the walk in clinic. They are now suggesting I see a shrink so that's my next stop. So my lesions our some kind of a sickness. Thank you so much for your info it's more then I've gotten in years thank you and
God Bless you
Ruth
Helpful - 0
147426 tn?1317265632
I do not believe from my 23 years of practicing medicine and experience in the last 8 years after that these lesions are some "variation of normal."  I just don't believe it.  I think your doctor doesn't know what they are so he minimizes them.  MS lesions can become confluent (think of little bubbles put together that merge into larger, irregular bubbles.  That's what I thought when you first desribed them.  Lesions in MS, and other diseases are not required to change during a two year period!  Mine certainly didn't!

If your symptoms are increasing, and THEY ARE suggestive of MS, then things are changing in your brain, even if the changes aren't visible on MRI.

Let me be clear.  Depression and sleep disorders do not cause brain lesions.  Rather it is the other way around!!!  Have you seen a neurologist?  Are you planning an extended vacation in Thailand?  If you got sick would you be able to get or afford medical care?  I  think you should live your life and do what you can, but your doctors are just dismissing you!  What is your ability to see a new and different family doctor.  I know that in some part of Canada, outside the cities, it can be a long wait to see a neurologist.

You deserve some answers.  What are your options?

Quix
Helpful - 0
Avatar universal
Hi sorry yes my name is Ruth. I think they are little lesions that join together and make one big one. They are all throughout my brain. No they are not normal but all the speaclist I have seen don't know what it is because they remain the same in the last two years no changes. But my symptoms get worse. I have seen MS specialist they say possible MS they realy don't know. Doctor has me on all kinds of drugs stopped taken a least 8 not doing any good he now gave me seroquel to help me sleep. Doctors says from his point of view I should not go to Thailand when not feeling good. I do plan to stay with family. I told my doctor I want to make some life changes down sizeing to have more time and help at home he did not say not to nor did he say that sounds good. Wish I know what to do if I can't get better then I know I want to move it's a big dissition to make. I live in Canada
How about you? Some doctors say the lesions could just be there and doing nothing every and my symptoms could be due to something eles. I don't agree. Thank you for your help it has been nice talking to you take good care
Ruth
Helpful - 0
147426 tn?1317265632
It is Ruth, isn't it?  I still don't know what the myltiple, lobulated lesions are, BUT THEY ARE NOT NORMAL!  What is the most specialized doctor you have seen.  Your family doc doesn't know what they are, so he pretends they aren't important.  This is FOLLY.  Have you seen a true MS Specialist?

What's up with Thailand.  Visiting or moving?

What state do you live in?

Quix
Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease