It's so nice to hear the truth that what I have is not normal thank you. I have been to the St.Michael's hospital at the MS clinic twice I see a neuro every six months and I see my family doctor every month visits are to see if I have any changes. The one MS doctor thought maybe strokes but I had all the heart test done about 2 years ago. They think by giving me an MRI about every 6 months to one year if they see changes then they will know. The only thing I get is possible MS. This all started around 41 now at 45 I'm not doing good. Doctors are now saying maybe they will never amount to nothing more but I do tell them I can't work or do other things I once enjoyed. I do have some medical ins. Where I live it is very hard to get a doctor the waiting list might be up to 3 years or more most people go to the walk in clinic. They are now suggesting I see a shrink so that's my next stop. So my lesions our some kind of a sickness. Thank you so much for your info it's more then I've gotten in years thank you and
God Bless you
Ruth
I do not believe from my 23 years of practicing medicine and experience in the last 8 years after that these lesions are some "variation of normal." I just don't believe it. I think your doctor doesn't know what they are so he minimizes them. MS lesions can become confluent (think of little bubbles put together that merge into larger, irregular bubbles. That's what I thought when you first desribed them. Lesions in MS, and other diseases are not required to change during a two year period! Mine certainly didn't!
If your symptoms are increasing, and THEY ARE suggestive of MS, then things are changing in your brain, even if the changes aren't visible on MRI.
Let me be clear. Depression and sleep disorders do not cause brain lesions. Rather it is the other way around!!! Have you seen a neurologist? Are you planning an extended vacation in Thailand? If you got sick would you be able to get or afford medical care? I think you should live your life and do what you can, but your doctors are just dismissing you! What is your ability to see a new and different family doctor. I know that in some part of Canada, outside the cities, it can be a long wait to see a neurologist.
You deserve some answers. What are your options?
Quix
Hi sorry yes my name is Ruth. I think they are little lesions that join together and make one big one. They are all throughout my brain. No they are not normal but all the speaclist I have seen don't know what it is because they remain the same in the last two years no changes. But my symptoms get worse. I have seen MS specialist they say possible MS they realy don't know. Doctor has me on all kinds of drugs stopped taken a least 8 not doing any good he now gave me seroquel to help me sleep. Doctors says from his point of view I should not go to Thailand when not feeling good. I do plan to stay with family. I told my doctor I want to make some life changes down sizeing to have more time and help at home he did not say not to nor did he say that sounds good. Wish I know what to do if I can't get better then I know I want to move it's a big dissition to make. I live in Canada
How about you? Some doctors say the lesions could just be there and doing nothing every and my symptoms could be due to something eles. I don't agree. Thank you for your help it has been nice talking to you take good care
Ruth
It is Ruth, isn't it? I still don't know what the myltiple, lobulated lesions are, BUT THEY ARE NOT NORMAL! What is the most specialized doctor you have seen. Your family doc doesn't know what they are, so he pretends they aren't important. This is FOLLY. Have you seen a true MS Specialist?
What's up with Thailand. Visiting or moving?
What state do you live in?
Quix