Aa
Back from the GP
For starters, how can I concentrate when Cowboy is harrassing me with pictures of huge fish all the time...WHAT A TEASE!!! Get a bigger net he says...*#@(#()*#$*&...check out my profile and his and you will get a good laugh!
Anyway, I saw the gp today and I don't know if I am any further ahead. I told her about the form that needs to be filled out for my CPP disability and she did state that "I don't know if you will EVER work again Rena" and she said she will fill out the form as soon as she gets it....hmmm...sound familiar??? I am going to call CPP tomorrow a.m. and ask if they have sent the form yet and then it will be up to me to get on her case to fill out the form. I explained that I have been without an income since Feb. 07 and it's getting tough and that CPP said I qualify in every way but they need to know what my limitations are. She said that it won't be a problem...it should be a short form and she said she would fill it out and send it off right away.
I told her that the Elavil is working to help with the pain but for some reason I am having trouble sleeping 2 days out of 7 and that I am awake for the WHOLE NIGHT. She prescribed some light sleeping pills for those nights and now I will be alright that way. We don't know why I can't sleep though...Elavil is supposed to make you drowsy so you DO sleep but it seems that occasionally it does the opposite to me.
I told her that I made an appt. with my Opthalmologist because the problem with my vision is getting worse all the time. Now I explained that to her last appt. but she didn't even look at my eyes or write anything down. Now that I am going to my eye specialist she was writing notes about my eyesight like you wouldn't believe! I told her that I would have the eye spec. send a copy of any letter's to her but that will depend on what the eye spec. finds in my opinion. If he wants to send me to another specialist...that doesn't need to be her business right away...we will just see what any new dr. finds out right?
I saw the referral letters for the neuropsych consult and the hearing test so it's just a matter of waiting for a call from them which could take a while I imagine. It will be a lot sooner though now that the gp actually sent the referral letters (miracles do happen!).
So...that was that I guess...I will be in touch with CPP and the gp regularly from now on and I hope that things go well for me for a change.
I never for a minute thought that being sick would cause so much heartache! Right from the beginning when I lost my job, nothing has worked positively and I think that I have reached my limit of abuse from employers, doctors (some of them anyway) and I am ready to move on. I am very concerned that my eyesight may be a symptom of my MS or some other brain abnormality and if it is, why the heck has it not been looked after before this. If in fact this is MS then it is obviously active and I should have been on dmd's last July at least! It's like I told my Mom this afternoon...if I were to lose my eyesight due to an oversight (or malpractice) on the part of my neuro and I were to sue, it really doesn't matter in the end if I were to sue for all she had...I would still not be able to see and that scares the **** outta me! I will keep everyone posted as to what the Opthalmologist says on June 26th and what he is willing to do. Just maybe I will have found someone that will not stand by and see me tromped on by someone with bigger boots than me! Wish me luck!
Lots of Hugs,
Rena
Anyway, I saw the gp today and I don't know if I am any further ahead. I told her about the form that needs to be filled out for my CPP disability and she did state that "I don't know if you will EVER work again Rena" and she said she will fill out the form as soon as she gets it....hmmm...sound familiar??? I am going to call CPP tomorrow a.m. and ask if they have sent the form yet and then it will be up to me to get on her case to fill out the form. I explained that I have been without an income since Feb. 07 and it's getting tough and that CPP said I qualify in every way but they need to know what my limitations are. She said that it won't be a problem...it should be a short form and she said she would fill it out and send it off right away.
I told her that the Elavil is working to help with the pain but for some reason I am having trouble sleeping 2 days out of 7 and that I am awake for the WHOLE NIGHT. She prescribed some light sleeping pills for those nights and now I will be alright that way. We don't know why I can't sleep though...Elavil is supposed to make you drowsy so you DO sleep but it seems that occasionally it does the opposite to me.
I told her that I made an appt. with my Opthalmologist because the problem with my vision is getting worse all the time. Now I explained that to her last appt. but she didn't even look at my eyes or write anything down. Now that I am going to my eye specialist she was writing notes about my eyesight like you wouldn't believe! I told her that I would have the eye spec. send a copy of any letter's to her but that will depend on what the eye spec. finds in my opinion. If he wants to send me to another specialist...that doesn't need to be her business right away...we will just see what any new dr. finds out right?
I saw the referral letters for the neuropsych consult and the hearing test so it's just a matter of waiting for a call from them which could take a while I imagine. It will be a lot sooner though now that the gp actually sent the referral letters (miracles do happen!).
So...that was that I guess...I will be in touch with CPP and the gp regularly from now on and I hope that things go well for me for a change.
I never for a minute thought that being sick would cause so much heartache! Right from the beginning when I lost my job, nothing has worked positively and I think that I have reached my limit of abuse from employers, doctors (some of them anyway) and I am ready to move on. I am very concerned that my eyesight may be a symptom of my MS or some other brain abnormality and if it is, why the heck has it not been looked after before this. If in fact this is MS then it is obviously active and I should have been on dmd's last July at least! It's like I told my Mom this afternoon...if I were to lose my eyesight due to an oversight (or malpractice) on the part of my neuro and I were to sue, it really doesn't matter in the end if I were to sue for all she had...I would still not be able to see and that scares the **** outta me! I will keep everyone posted as to what the Opthalmologist says on June 26th and what he is willing to do. Just maybe I will have found someone that will not stand by and see me tromped on by someone with bigger boots than me! Wish me luck!
Lots of Hugs,
Rena
AWESOME!
I'll be waiting to hear the results, too. You deserve to go off to the lake with some answers and a big smile on your face. Hey, your brave letter-writing is what inspired me to write a request for the particular neuro-radiologist to read my MRI! You're like, a way cool role model! :o)
Sending you hugs,
Kathy
I'll be waiting to hear the results, too. You deserve to go off to the lake with some answers and a big smile on your face. Hey, your brave letter-writing is what inspired me to write a request for the particular neuro-radiologist to read my MRI! You're like, a way cool role model! :o)
Sending you hugs,
Kathy
I MAILED THE LETTERS TODAY!!! Now we just sit and wait until next Thursday when I see the Opthalmologist and what he has to say...I do have butterflies but I think it was the best and only thing left for me to do. Thanks again Quix and you will be the first to know after me...what the results are ok?
Rena
Rena
DON'T GET ME WRONG...I LOVED THOSE LINES THE BEST BUT YOU HAVE TO DRAW THE LINE SOMEWHERE DON'T YOU? Someday maybe the planets will all line up in my favor and I will be able to say what I want to each of them but in the meantime I can give them NO reason to rain on my parade can i? Oh Well!
Rena
Rena
Hey Sweetie, glad thank you are going to send the letter off. It is brilliantly written and very professional looking. I don't think you are going to have a hard time with the Dr on this.
Hey Wonko-I loved the Evil Neuro and Lying GP line too :)
Love Ya Girl,
Ada
Hey Wonko-I loved the Evil Neuro and Lying GP line too :)
Love Ya Girl,
Ada
"I just replaced the last sentence in the second paragraph as well as the "Evil Neuro and Lying GP""
What??? That was the best part!!!!
Just kidding. Let us know when they are in the mail, and don't back down.
What??? That was the best part!!!!
Just kidding. Let us know when they are in the mail, and don't back down.
I sure appreciate the support you have all shown in my situation. I have done the letter as per Quix post and I just replaced the last sentence in the second paragraph as well as the "Evil Neuro and Lying GP". I have put the letters in envelopes, addressed them and attached the appropriate postage and I will mail them tomorrow if I feel up to going out. If I can't, my hubby will drop them in a post box on his way to work for me and then we will see what happens. I am not that optomistic to me honest with you...I think it will take more to get through to these two than this but this is a start right? I will keep you up to date as to what is happening and if I hear from anyone after mailing them.
Thanks again Quix for your wonderful assistance and you will be the 1st to know if I get any results from my (oops, I mean your) letters. tee hee
Lots of Hugs,
Rena
Thanks again Quix for your wonderful assistance and you will be the 1st to know if I get any results from my (oops, I mean your) letters. tee hee
Lots of Hugs,
Rena
Wow, I don't know how you have kept your cool with your GP this long. I am not dx, but have many eye problems too and I know how scary that is.
Good luck with the optho, I'll be praying that he will give you the answers you need.
Don't you just love Quix and her way with words....ha....ha.....ha.....
doni
Good luck with the optho, I'll be praying that he will give you the answers you need.
Don't you just love Quix and her way with words....ha....ha.....ha.....
doni
p.s.
You can borrow the pic of my fish anytime...lol Who needs nets? Cowboy? Tell him yours require gafs!
You can borrow the pic of my fish anytime...lol Who needs nets? Cowboy? Tell him yours require gafs!
THIS ROCKS!
Demands - ACTION - ACTION - ACTION
So not a cheerleader, but this deserves all of us standing on the sidelines, while Rena struts her stuff (yea, guys too) through the middle w/this golden letter in hand diplomatically putting her big thumb on them all!
-SL
Demands - ACTION - ACTION - ACTION
So not a cheerleader, but this deserves all of us standing on the sidelines, while Rena struts her stuff (yea, guys too) through the middle w/this golden letter in hand diplomatically putting her big thumb on them all!
-SL
I'm glad it gave you a chuckle. You might want to change a few things. One that I would change would be the last line in the 2nd paragraph. Change it to, " Because it is "inactive," she will not prescribe any of the MS drugs."
I guess you should probably use everyone's real name. It does remove some of the sting of the letter, tho... :))
Quix
I guess you should probably use everyone's real name. It does remove some of the sting of the letter, tho... :))
Quix
I LOVE your idea...it is on the burner now and I will make a decision about it tomorrow. I agree that I don't have anything to lose by doing it and maybe it will make them realize that they had better cover their backsides or else eh? I have to tell you Quix that this has given me the biggest laugh I have had in a long time and you truly made my day by offering this solution to me. I will let you know my final decision by tomorrow ok?
p.s. as much as I like to call em' as I see em' I agree that lying doc may have to be changed as well as "Evil Neuro" but they are sweet are they not?
Lots of thanks,
Rena
p.s. as much as I like to call em' as I see em' I agree that lying doc may have to be changed as well as "Evil Neuro" but they are sweet are they not?
Lots of thanks,
Rena
As usual, you are right on the money. I think all Rena needs to do is copy, paste, insert names and dates, and click 'send'.
I believe this approach is VERY effective. I have not needed to use it in my own personal medical situation (yet!), but I use it all the time in business, and it absolutely gets results every time. It's putting people on notice, while not allowing them reason to get their backs up. A surefire way to have your concerns taken seriously while at the same time, exposing those who are the very reason for those concerns.
db
ps to Rena: I wonder if your doc would take offence to you cc'ing her as "Lying GP"?? Hmmm, on second thought, better use her real name. lol
I believe this approach is VERY effective. I have not needed to use it in my own personal medical situation (yet!), but I use it all the time in business, and it absolutely gets results every time. It's putting people on notice, while not allowing them reason to get their backs up. A surefire way to have your concerns taken seriously while at the same time, exposing those who are the very reason for those concerns.
db
ps to Rena: I wonder if your doc would take offence to you cc'ing her as "Lying GP"?? Hmmm, on second thought, better use her real name. lol
You've been through the wringer again ans again. Whatever it takes, I hope you get some answers soon...and no more bull droppings
Penn
Penn
Ha ha ha!!! Yes, the "dirty, little secret" that your neuro and your GP have had going with you may be exposed. THAT will certainly prod someone who hasn't been doing their job into action. I call it "Death by 'CC'". Whenever I am calling someone down who has done wrong or who isn't doing their job, I carefully detail the whole thing in a letter to them. This letter may be angry or it may just reteel what has gone on.
Then, at the bottom, I "CC" the letter to someone else. In this case it might be to your ophthalmologist. Suddenly, the secret is out in the open. "Caught with their pants down," you might say. This makes people jump. That's what telling your GP that you are seeing the Eye guy did. As long as you try to deal with the people doing the harm you get nowhere. But, bringing the problem to light and the scrutiny of others, really terrifies them.
You might even do something like this. Write to the Ophthalmologist and detail what has gone on for the last 8 months. Do it innocently as if you didn't realize that anything was wrong, but that you were frustrated.
***********************************************************************************
Dear Doctor Shizzlebaum (Eye Guy),
I hope you can help me. My physicians and I are very frustrasted. As you know I received a diagnosis of MS in XXX. In the last year I have had increasing problems with (list the various problems) Recently I am having frightening problems with my eyesight and am very scared that my loss of vision will be permanent. That's why I am seeing you on XXX.
I have had so many increased symptoms in the last year. These symptoms come in attacks that eventually improve, but each time I have more residual symptoms to add to what I deal with everyday. I fear these symptoms are from the MS. If they are I pray there is something that could be done to slow down the disease, like being able to qualify for one of the Disease Modifying Drugs. My neurologist tells me that because there is no enhancement on my MRI last (date), that my MS is "inactive." Because it is inactive, I do not qualify for any of the MS drugs.
We have done many tests to see what else could be causing these attacks, since my neurologist doesn't believe that they are from the MS. All the tests are negative.
I hope you will be able to find what is causing me to lose my ability to see clearly. I already have MS. I guess I need to know what else is causing my eye problems, the pain I have daily and my recent difficulty walking since my neurologist has told me and my GP that my MS is inactive.
I will be seeing you soon and hope you can help me find some way to slow down these symptoms.
Sincerely,
Rena XXX
CC: Evil Neuro
Lying GP
**************************************************************
This is just a thought. But, if you write it without anger, and from the innocent standpoint of fear and desperation, it might get some action from the neurologist. I can't see how it would make your situation worse.
I don't know. This technique has always worked for me.
Quix
Then, at the bottom, I "CC" the letter to someone else. In this case it might be to your ophthalmologist. Suddenly, the secret is out in the open. "Caught with their pants down," you might say. This makes people jump. That's what telling your GP that you are seeing the Eye guy did. As long as you try to deal with the people doing the harm you get nowhere. But, bringing the problem to light and the scrutiny of others, really terrifies them.
You might even do something like this. Write to the Ophthalmologist and detail what has gone on for the last 8 months. Do it innocently as if you didn't realize that anything was wrong, but that you were frustrated.
***********************************************************************************
Dear Doctor Shizzlebaum (Eye Guy),
I hope you can help me. My physicians and I are very frustrasted. As you know I received a diagnosis of MS in XXX. In the last year I have had increasing problems with (list the various problems) Recently I am having frightening problems with my eyesight and am very scared that my loss of vision will be permanent. That's why I am seeing you on XXX.
I have had so many increased symptoms in the last year. These symptoms come in attacks that eventually improve, but each time I have more residual symptoms to add to what I deal with everyday. I fear these symptoms are from the MS. If they are I pray there is something that could be done to slow down the disease, like being able to qualify for one of the Disease Modifying Drugs. My neurologist tells me that because there is no enhancement on my MRI last (date), that my MS is "inactive." Because it is inactive, I do not qualify for any of the MS drugs.
We have done many tests to see what else could be causing these attacks, since my neurologist doesn't believe that they are from the MS. All the tests are negative.
I hope you will be able to find what is causing me to lose my ability to see clearly. I already have MS. I guess I need to know what else is causing my eye problems, the pain I have daily and my recent difficulty walking since my neurologist has told me and my GP that my MS is inactive.
I will be seeing you soon and hope you can help me find some way to slow down these symptoms.
Sincerely,
Rena XXX
CC: Evil Neuro
Lying GP
**************************************************************
This is just a thought. But, if you write it without anger, and from the innocent standpoint of fear and desperation, it might get some action from the neurologist. I can't see how it would make your situation worse.
I don't know. This technique has always worked for me.
Quix
well, today sounds like it was a so called sucessfull day for you...so far with the Dr anyway...
your right, now just keep on top of CPP..and the GP... I know it's a hassell?? but, no one will do it except for you...right...
so hang in there...and better luck next time with the fishing...hehehehe
andie
your right, now just keep on top of CPP..and the GP... I know it's a hassell?? but, no one will do it except for you...right...
so hang in there...and better luck next time with the fishing...hehehehe
andie
Rena,
You will be in my thoughts and prayers. You have had a horribly difficult time. I guess we have to wait patiently till June 26. Take care and know you have support from all of us.
Elaine
You will be in my thoughts and prayers. You have had a horribly difficult time. I guess we have to wait patiently till June 26. Take care and know you have support from all of us.
Elaine
Hey Sweetie, I wish I could of seen her face when you told her you were going to the opthamologist, I am wondering if a retraction is on her mind? A big apology? Well, I hope she will get the paperwork filled out quickly for you so you will have one less thing to worry about.
I want to write more but my brain is all mushy and I am exhausted. I just wanted you to know I read your post Sweetie, I will write more to ya later, Sweetie.
Love Ya,
Ada
I want to write more but my brain is all mushy and I am exhausted. I just wanted you to know I read your post Sweetie, I will write more to ya later, Sweetie.
Love Ya,
Ada
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