I feel 100% better than what I did pre-surgery... The constant infections had really taken a toll on my body and I was pretty much bed ridden... Always running fever and never felt like seeing, talking, or being around people...
I don't know what the future holds for this type of surgery but as of right now it has been the best thing I ever did...
Thanks for the concern,
Carol
Carol,
That surgery doesn't sound very fun but are you feeling better now with less problems? Is it something that will permately fix your bladder problems? I hope so :)
Thank you for your replies... I know exactly how you feel and it does take a toll on the fatigue that we suffer from... Getting up every 2 yours is so hard on our bodies...
I started out by having constant kidney/bladder infections... It was one or the other constantly... I lived on antibiotics... Then I lost feeling down there and didn't even know when I was urinating...
That's when the catheters came into play... The only good thing about it was that I didn't have to worry about being wet all the time but the downfall was never ending bladder infections because of the catheter...
My Urologist finally told me that a urostomy was the only option I had left because my bladder was becoming so damaged from the constant catheter...
I had the surgery in January 2011... No more bladder/kidney infections is a big bonus... It has it's hassles but in the long run I'm glad I had it done... I'm here for any of you if you need to talk...
I'll be praying,
Carol
Hi metalbender and grannyhotwheels
I am in the same boat of going to the loo every 2 hrs or so, and yes it takes a while to get going and is uncomfortable, and sometimes I feel that my kidneys will get affected.
For quite a few months now it has been taking some time to get it going (urinating) and when it starts it comes in short bursts and then flows like it should. I have been getting the "hug" on the left side of my torso and sensation issues down my left keg, and my left leg is weak to the point that I cannot lift it. However here are my observations:-
- for a while now it has taken time to get it flowing, and my neuro prescribed flotral but this doesnt do much.
- it seems that with the hug, the muscles that control bladder-emptying is weak and therefore gives the feeling of being emptied but does not fully get emptied and therefore every couple of hours I have to go again.
- my bowel muscles are weak and I am hoping this doesnt cause problems.
I am not on any medication as my symptoms have been coming abt once every year or every two years. But I am going through this hug exacerbation and I am not sure what to do or how to handle it.
Hope this helps.
I haven't had a urostomy...I have a neuro appointment on Tuesday...I have been having problems with my bladder at night....That is, I can't sleep for more than two hours without having to get up to go to the bathroom...This has been happening for about 8 weeks...Obviously this is interrupting my sleep so therefore really contributing to unnecessary fatigue...
When I try to urinate it takes a bit to get going and is somewhat uncomfortable....I don't know if I'm completely emptying my bladder, but going every hour and a half or so doesn't seem quite right....Is it?