Double Vision AGAIN!

[Rena705]

I am a little confused about MS Flare ups.  I had the last episode of Double Vision on November 7th and yet I had it for about 2 hours again yesterday.  Do you think that I am still in the same flare up or would this be a new one?  All of this is so confusing!!!

Rena

[grannyhotwheels]

Trust me it's all confusing to most of us.  I really can't answer your question but hopefully someone else will be able to help a little.  Hang in there.

I'll be praying,
Carol

[sllowe]

Rena,

HI Rena.  Flare ups and their symptoms are confusing to me too and I have MS. I discussed this with my nurse just the other day.  Since I'm no good these days with my short term memory, I can't always recite things back exactly as they were told to me, but I will try my best.

I asked how do you know if it is just residual limitations, and daily MS related symptoms or flare ups. Tbe nurse told me that flare ups are a worsening of original symptoms (like w/the 1st attack), or new symptoms that come on and last over time.  Now timeframe may vary from Dr to Dr, but I was told a minimum of 24 hours by both the Dr and the nurse.

So, this probably leaves you with the same thought as most (me included).  How do we differenciate symptoms? Really, some might not be able to, depending what they are.

To wrap my  head around it, I think of it like this.  Even if I were in a flare up, I know (for the most part) they would treat with steroids, this would hopefully lessen the timeframe of the flair up.  The flip side of that treatment is the long term effects of steroids.  For me, if I can ride it out, I will, if it's really bad, I'd know it, and would have to get the treatment.  Especially when and if it involves the your eyes.  In this case, treatment would outweigh any treatment risks. . . .

Short of it is, since something is going on with your eyes, please, call the Dr. . . .

Be well,
SL

[Rena705]

I appreciate you answering me and I agree with your thinking.  However, since I am between neuro's my primary has said that because I will be going to a new neuro and she is not sure what testing the "new" neuro will be doing she does not want to advise any treatment until I see the new neuro on the 17th.  So I did ask her what I should do if I have another flare up of my symptoms (such as the double vision which I had the day after seeing my primary) and she said that she will give me something for the pain but beyond that, nothing.  So I went away with my prescription for percocet and I guess I am on my own until December 17th.

  I just feel so much like I am being blackballed by the medical world and I am getting to the point where I just don't care!  I suppose it will be different when I have a "bad" day but even then, what the he** am I supposed to do?  I can't even call the dr. because I don't have a dr. to call really...when I picked up my MRI report from my old neuro I wanted to ask his nurse a question about the MRI and she rudely brushed me off and told me to ask the new neuro.

  My primary is totally useless obviously.  I have been to ER and was told after having a CT and blood tests that vertical double vision is not normally a symptom of MS so I should see my neuro.

  So I guess all I can do is be very very careful not to have a "relapse" cause the only one left I think I can see is my DENTIST  and I don'tknow how much help he could be!  ha ha

So wish me luck until the 17th...I had a pretty good day today, not much pain and eyes were good but who knows what tomorrow will bring.

We are celebrating my Mother's 80th birthday tomorrow and I have a lot of help with the arrangements but it seems like after any unusual activity, upset, etc. that the attacks happen so we will see what Monday brings!

Will let you know the outcome and thanks for being there...all of you!

Lots of Hugs,

Rena