Conversion Disorder-Seriously???

[DebDJ]

Hi to everyone! I am so happy to have found this forum-just maybe I'm not crazy afterall! I have been experiencing many sign/symptoms of MS since my early 20's (I'm now in my 50's.) My symptoms would come and go, and although they puzzled me, I did not worry about them: migraines; slurred speech; severe fatigue; pain in my legs (muscle cramps); pain in my right arm that feels like I am being stabbed w/a hot poker, which would sometimes put me on the ground, along w/weakness in the same arm and more I will not bore you all w/now. Although I would mention these various symptoms to my doc at he time, there was always a logical answer: leg cramps-I was a jogger; migraines-I was a young teacher w/stress, etc.  I did not mention the slurred speech to the doc.
In the past 5-7 years, all the above symptoms and more have become so severe, I can no longer teach-my life's passion! I have been to every genre of doc in the world and I hear comments such as: I think it could be MS; I don't believe you've had a stroke; you have a lot of stress, but I don't believe you have any psychological problems; etc....However, the neuros I've seen say I don't meet all the "criteria" bc the "spots" on my brain may not be MS and w/out "lesions" I cannot be dx w/MS. I have inflammation on my spinal cord (thoracic) and had a LP a few weeks ago-still waiting for the results. The doc who did my neuropsychology test said I may have "Conversion Disorder" but was NOT SURE! When I was tested, I spent the day at the clinic and then was handed the Min.Personality test (to complete at 5:00 that same day), which was sooooo long, I nodded off three times while trying to concentrate-impossible! Told the doc I just filled in the last 50 or so questions. AM I CRAZY?!? I read about the CD and think it is the most ridiculous thing I've heard-serioulsy??? Freud??? A cocaine addicted sex maniac??? Is my uterus "floating into my brain!!!???"
I am really an upbeat, positive person and believe myself to be a VERY strong woman, but I am at my wits end!!! I do NOT believe I'm crazy, but this CD crap IS!!! (sorry for my "French") Please, would someone tell me they have experience something similar while trying to discover what in the world is going on w/ our bodies?
Hope you all are well
Dee

[Ojibajo]

People with Conversation Disorders? I thought we called those people "men".

That's the most ridiculous thing that I have ever heard. I hope that you can find a decent neurologist who can give you a proper diagnosis and hopefully some symptom relief as well. Best of luck.

[DebDJ]

Thanks for your encouragement, Dear.  This is a wild ride, isn't it?!?  I do hope you are doing well...

Keep looking UP!

Dee

[mon79]

Thank you for your story..I am going through the same thing I have MS -Symptoms being treated for them but yet due to my last neuropsychological test was  done 2011 Somatization disorder now the neurologist I been seen since 2007 thinks its Somatization Disorder with abnormal gait he cannot give a clinical diagnosis of  MS due to I do not have lesions on the brain  I have spots/plagues due to having a history blood pressures I have continue to go down hill..I have lost my job...This has put on strain on my career and my family due to not having a clinical diagnosis...

[June12311]

I have also been told today that I have CD .  I'm a 38 year old female who has had severe back pain for 9 years and a numb right foot for the past seven. I was told that I had excessive wear and and arthritic changes to my lower back and this was the cause. I then started to have had poor bladder that has got gradually worse over the past 7 years. I was told this was due to a prolapse.  So I just carried on with life as normal.  I then started to go blind in one eye 10 months ago when I moved from sitting to standing or was tying my laces and such like and have reduced colour vision and sight in that eye permanently.  About this time I also started to have have a numb right hand and have dislocated fingers on that hand and not felt it in the last few weeks.  My MRI was clear as was a spinal tap. My eye pressure is 28 in my left eye and 18 in my right eye. I'm booked to have a EVP test next week but feel so frustrated.  I am not depressesd, have a great family and friends and have been lucky to have very few traumas in my life that I can complain about. I feel offended by this diagnosis.  I know that it is preferable to MS but deep down I know it's not the right diagnosis and means that I am not gettiing the right treatment.

June

[NettySketty903]

I was traumatized by my ex husband, he pulled a shotgun on me and I barely got out of the house alive. About 30 minutes later my thumb started twitching. 5 days later my arm started trembling. I went to a neurologist and he said I had parkinsons. I went home and cried for over a month. When I came out of my fog from being diagnosed with parkinsons I made an appointment with a 2nd neurologist. He also told me I had parkinsons and I left his office crying my eys out and being the most depressed I have ever been in my life. So a few months later I went out on a limb and made an appointment with a 3rd neurologist. She also said I had parkinsons and wanted to put me on Levadopa. I refused. I made a 4th appointment with a neurologist and he spent 2 hours with me and said I had 0 chance of having parkinsons. He diagnosed me with conversion disorder. Thank God for conversion disorder. If I had listened to the 1st, 2nd and 3rd neurologists I would be in a levadopa stupor and waiting to die.

[jonijo689]

I just did a week in the hospital!
Had a spell like a mini stroke...blurry vision, shaky, high blood pressure, incoherent.
Tests upon tests and nothing
Well got released today with the conversion disorder diagnosis!
WHO IN THE HECK CAME UP WITH THAT?
You can't figure it out so you make me think I'm crazy? Thank you very much. Why don't you just dig my hole now!!!! Don't they realize what they do to you when they tell you that crap?
I can hardly walk, eat, or function from whatever happened to me and you cant put your finger on it so you rub salt in my wound and make me think Im nuts!
I will get to the bottom of this and fight for other women that they pull this on. Yes they were all men!!!!