Could inner tremors be MS?

[Clydie2255]

I have had Post Traumatic Stress disorder for 6 years. Mentally and emotionally I feel like I have a grip on it. My problem now is I'm beginning to think my symptoms have been thought to be related to PTSD, and are actually more serious. Long before the in set of the PTSD,  I started waking on occasion years ago with body tremors. I attributed it to withdraw from nicotine over night. One day 2 years ago I started to have a feeling of inner tremors that were so bad that I was put on a beta blocker with and anti anxiety element (propranolol). I had numbness and would lose muscle control of my arm if I simply lifted it above my head to shampoo my hair. They thought it was a side affect to the beta blocker so they took me off it. It didn't take long before the tremors returned and they are24/7! I couldn't function without them so I went back on. My arm has been fine for a year. I go through periods of pain and fatigue that just wares me out. All blood work shows nothing! For the past year I have has eye focus problems and my eye doctor attributed it to weak eye muscle due to me age. I'm 45. Then about two months ago my one eye turned out and got stuck for about a minute. The MRI showed nothing. I have had pain in the back of my head for years.y memory has been very foggy ( short term) and I say wrong words in the wrong place. People are always questioning or correcting my speech. An example would be, I say see ya later, when I mean hello. Or if I want to say car, I'll say bike and think I said car. I started to feel dizzy the other day, and my BP dropped. I almost passed out and started vomiting, so I skipped my beta blocker for one day. By the next dose time I was having the inner tremors. Could this be MS? Also, I have had feelings of having to urinate frequently without having a UTI. And some small leaking periodically. For the last month I have also had constipation. Not to be rude, but I don't want to hear from people who have a single limb shake. I'm looking specifically for people who experience these inner tremors without outer visibility of a tremor.  Can anyone explain this? I have a hard time believing its anxiety or from the PTSD. Thanks to anyone willing to read this, and willing to share the same experience.

[supermum_ms]

I'm sorry but many people with MS have visual and or cognitive issues that make it very difficult, and sometimes impossible to read and understand large blocks of text, so can you please brake up your posts :o)

Honestly, you have so many things going on and some really have no connection to MS at all, so it may not be all one condition or even MS. If you are about to have your thyroid removed, that could considerably change your situation cognitively and physically, as that could explain some of what has happened to you.

I haven't been able to work out from what you mentioned (it has been difficult for me to read and comprehend) anything that is highly suggestive of MS, so it would be a good idea to not get to focused on MS. Try to stay calm and open minded, see the neurologist and if you do have any neurological clinical signs he/she will send you for more tests to help work it out.

I think it would help if you and your primary care dr, focused on improving any issues you can do something about in the short and long term but please don't get your hopes up, on getting an answer soon, it may take some time considering you do have a lot happening which isn't going to make a dx easy.

Good luck...........JJ  

[Clydie2255]

MS SITE Tasha... Sounds like you are having what I am having with the inner shakes. When I went off my beta blocker, within 24 hours I was shaking inside like crazy! I can't live without my propranolol. Good luck with that. It lays me out. I feel like I can't get up when I'm like that. It came on suddenly almost 2 years ago. We assumed it was brought on by my PTSD, even though I had already had PTSD for 4 years. Now that I look back, along with many other symptoms of MS, it seemed so easy to attribute my problems as separate issues. Like chronic pain for years in my back, neck, legs hips, headaches in the back of my head, TMJ. All my doctors have said my disc issues should not cause me all this pain tho because they aren't so significant. It wasn't until my one eye went to the right and got stuck for a minute that my doctor got concerned. Plus I've been dealing with pain for years but then the exhaustion set in. That's when I started really complaint to my doctor.  My back is one huge large tight spasm. I was advised by a doctor who did some kind of nerve conduction test that I should put ice on 6xs a day.!... For life! I'm very sensitive to heat. I almost passed out on vacation last week. I got dizzy, sat down, blood pressure dropped to 80/60 and that was after I threw up. Sometimes while in the shower I have had sudden attacks where I feel like I can't breath, I get really weak and have to sit on the tub floor as my heart pounds out of my chest. I get up when it passes. I've hit my head a few time trying to get down to the floor of the tub to rest.  Then the numb arm for 3 months. If I lifted it above my head to wash my hair, it would fall from weakness, and then curl up like someone who has really lost ability to use their hand. I started recently with constipation that last for 4 to five weeks, during a period where I felt remarkably well. ... Other than the constipation and feeling like I have to urinate after just urinating. My eyes have been having trouble focusing for a year or more, but when the eye turned out, I was really freaked out by that! Then I had to pull over on the turnpike a few weeks ago because my eyes started doing a dance. I also get sharp pain sometimes in the same eye that makes me grip it really fast because its feels like an electric shock and its so intense. I get shock  in my one knee that wakes me up during the night. It hasn't happened for a few weeks but it was there for months. Also shock pains in my elbow. Just a bunch of new things happening since I went through that period of good for those 4 weeks. I almost felt normal except for a few bothersome weird new symptoms. I'm also hyper insomniac. My cholesterol has been high for years but I'm 5' 4 and 128 lbs. I read the worst thing you can do is take cholesterol meds if you have an auto immune issue. It can kill the good blood cells that help you fight your deterioration. So glad I never took them. They caused me pain too! I have 3 large nodules on my right thyroid gland that the ENT says is likely causing my periodic inability to swallow my own spit! But I show nothing in my blood test to indicate the nodule are affecting me negatively. ... Except for the fact that they will likely be taking my thyroid out within the next 6 months because the nodules are taking over. My breast are very dense and cystic, which is usually a cancer scare every 6 months. But my hormone levels are completely normal. I went through this thing where I was waking up everyday and crying for no reason. I hear that can happen with MS too. My last eye exam they said I was showing retina damage but they weren't worried about it. I sit down, I go to get up, and I can barely walk. I certainly don't walk normal anymore. Im much slower and I trip over anything on the floor because apparently I don't lift my feet as easily or as high as I use to. I didn't mention how I mix up words, my foggy brain. My friends are always saying,"did you mean this or that" and example would be, I mean to say how are you and I say see you later. I can't remember anything short term. I spend a seriously good portion of the day looking for something I just had in my hand and put it down god knows where! Looking looking looking. I spend time aimlessly endless time looking for things. I just want to know one in for all what the heck is going on! I hope I find out soon.

[supermum_ms]

Oh its such a pain when posts get lost, it happened to everyone at sometime and its not necessarily from something you've done.........glitches happen so grrrrrr it out, blame it on the gremlin and you'll be right posting again :o)

20 surgeries seems a lot for anyone, and it would seem rather difficult if not impossible to work out i'd think. Definitely a good start seeing a neurologist but it may all be interconnected to what you already know. Until your assessed and have some testing, its a good idea to keep an open mind, and see if anything shows up because MS has many mimics and more often than not it's a mimic.

Let us know what happens.

Cheers.......JJ

[TashaPup]

Supermum...Not to get off topic here, but, and I ask this because I really am still that ignorant of some MS symptoms...could these inner tremors, also possibly be, what I call my 'feeling shaky'?  When I feel this way, I hold my hand out in front of me, expecting to see it shake, but it doesn't.  But I definitely feel the shakiness inside.  My guess, is that these are two different sx, but I just thought I would ask.  Thanks, Supermum!  Jan.

[Clydie2255]

I'm still trying to figure out how this site works but here goes. Thanks for the welcome. I definitely want to know how your doctors visit goes Byyygrace. Have you actually been diagnosed? How does one find a MS specialist? (Feeling stupid) but I do humility well! Ha ha I see the neurologist on the 30th. Supermum, I'm not on anti-depressants so its not medication causing the inner tremors. I actually have all kinds of other symptoms which I listed in a post I wrote last night that never went through! Ugh! I guess I just needed someone to share with. I have had like 20 surgeries for various reasons over the years, and my husband isn't very supportive is all. His mom was sick the whole time he was growing up so he prefers to dig his head into the sand. Unfortunately it leaves me alone... And sometimes scared and alone. I find that people who have PTSD has been a saving grace since they share my problem. I hope to find answers and maybe support later if I need it. So take care new friends. I'll hit you up after I see my doctor on the 30th. Xo

[Clydie2255]

I wrote something that never went through to post.  I'll get back you you both later. Thanks for your very kind responses

[supermum_ms]

Hi and welcome,

Honestly its very difficult to say, if what you describe is being caused by something other than what you've been dx with, and or side effects of any medications you maybe taking etc.

Beta blocker's are one form of treatment though for tremor's, so if your internal tremor 'was' a symptom of your psychological issues (anxiety/PSD) it seems a little odd to me, that missing a dose would be what only brings it back.

But If you are taking antidepressant type medications for your PSD and or mental health, some can cause sx's associated with central nervous system issues ie tremor. So if the internal tremor could 'possibly' be a side effect of a medication, it would mean it's 'indirectly' related to your mental health and possibly why if it was being helped by the beta blocker.

Though i think it would be worth getting a second medical opinion to be confident of what you've been dx with!

Personal experience- About 3 years before my tremor issues became visible, i'd been dx with hypoglycaemia, everything I experienced got lumped into that dx box and I didn't question it, even when nothing that was suppose to help, actually did. I mentioned to my GP during another of my recurring [supposedly hypoglycaemic] episodes, that in the middle of the night when I got up. I felt like i was internally vibrating but there was no visible tremor that I could see, strange feeling and I was curious as to what it was, she said it was just a drop in blood sugar.

During this time I was not on any prescribed medications, just managing through diet and an over the counter multi vit and still the internal vibration (tremor) feeling, along with everything else would turn up for weird blocks of time.  Eventually i was feeling it all the time, it was probably always there by then though quite gentle but it would get more turbulent with activity, heat, infections etc the harder the tremor felt the more visible it would become.  

It was not until MS was on the radar, that i accidentally discovered one day how to make the invisible tremor visible. I was still getting over the biggest episode i'd ever had, but i was recovering a lot of what i'd lost in that big bang and the internal vibration feeling I still didn't know how to even explain it.

Anyhooo one day i had my hands full and or wet and i placed a little ticket (a raffle ticket) between my lips lol odd i know but i was trying to keep from loosing it again or get it wet and I was stunned when that little piece of paper,  vibrated exactly the same as the internal vibration (tremor) i could feel but not see, effectively making the invisible, visible. Thought it was a fascinating new discovery but apparently paper between the lips is actually a tremor test.

I basically have other things besides tremors but the internal invisible vibration (tremor) is sometimes the hardest for anyone to understand, because you feel it - even when no one can see it. If the beta blocker works to stop it for you and if none of your medications do cause tremor (see drugs .com) then i would be asking for other possible explanations to be looked into.

Cheers..........JJ

ps hope that was what you were looking for    


  

[byyygrace]

Hi Clydie, welcome! I'm sorry for all that you are going through. For the past couple of months I have been having internal tremors also. If I sit quietly I can feel them. When I lay down at night it is magnified about 10 fold! They seem to intensify when I'm especially tired or stressed. I'm also noticing that the left side of my face is numb feeling with mini spasms everyday too.

I'm assuming that mine is caused by MS but I don't know for sure. I plan to ask this week at my Dr appointments. If I learn anything, I'll let you know.

Have you seen a neurologist yet? I would suggest that you try to find an MS specialist and have them test you for all of the mimics of MS. Also take a copy of your MRI for him/her to read(many docs don't know how to correctly interpret). There is tons of good information in the health pages to the right of your screen.

Again, welcome! Feel free to ask any questions that you might have. There are a lot of caring and knowledgeable people here.

Blessings,
Colin