Dignosis

[Jude3677]

Hello to you all,

I found this forum yesterday and I spent the day reading some of your posts. I live in Romania, I am 36 years old and I gave lots of questions regarding my diagnosis.

I was diagnosed my MS 4 months ago after performing a MRI, subsequent to an episode of a small parasthesis on the right part of my face: half of the down lip, a small parto of the right part of chin and half of my tongue. The doctor said it was the trigemen nerve affected. No other pain, no other symptoms. I had a feeling as an anhastesia on the tooth surgery was passing.

My medical history made he doctor to reach for this diagnosis, without any doubt. I was diagnosed 22 years ago with encephalomyelitis after one month and a half in coma, delirum, fever hospitalized. At that moment, meaning 22 years ago, the doctors made a presumption regarding MS diagnosis, but on the hospital leave, they wrote encephalomyelitis. There is no MRI of that time and during those 22 years, I haven't experience any symptom, I have lived my life as a healthy person.

The doctor considered Teriflunomide (Aubagio) as the best treatment for me. It is a new product, not yet authorized in Europe. I didn't consider to initiate any treatment after a second expert opinion, so I have an appoitment in Milano this month.

My concern is that the lesions appeared on MRI would be those of 22 years ago, no active lesion appeared. The evoked potential and the OGB appeared to be clean. Have you ever heard about a free period of 22 years?

Thank you very much for your opinion.

Regards,

Me :-)

[Jude3677]

Thanks for your nice welcome :-) I still have questions concerning MS. I take them one step at a time, I think ...

[HVAC]

I have had MS for 48 years and have fewer symptoms than most MS patients. It all has to do with the location of nerve damage and this is different with each person. MS really is a different disease for each person.

Alex

[kwarendorf]

Hey Jude (sorry, I had to :-))

I'm sorry to hear about your diagnosis, but glad you found us.

I had a 18 year gap between major relapses. Like you, my doc and I figured this out by piecing together my medical history. In the first relapse my feet went completely numb. I could stand, but couldn't feel that my feet were on the ground.

They couldn't find out why and the feeling came back after a month or so. 18 years later I had trouble controlling my left foot and I couldn't walk in a straight line. My left hip had been replaced 8 months prior, so I went back to the hip doctor. He couldn't find anything and they symptoms resolved.

3 years after that I had a major melt down that led to my diagnosis. Leg weakness, extreme fatigue, double vision, walked like I was drunk...

In the years between relapses I was pretty normal. I had problems like difficulty urinating and erectile dysfunction. I never thought they were connected to anything and I tried to treat them directly. MS had never come up. When it did, it connected a lot of seemingly disconnected dots.

Welcome to our group.

Kyle