Anyone get a Labrythitis dx?

[Nerve_Wrecked]

I was just wondering if anyone was diagnosed with Labrythitis prior to being diagnosed with MS.

I had an episode about 4 years ago, started about a week after my daughter was born, of extreme vertigo. It came on suddenly, out of the blue, and when it went away (about 3 weeks later), the majority of it left the same way, poof!

After about a week of the vertigo, I went to the clinic, as things were so bad I was afraid to hold my new baby if I was standing, for fear of falling. I was diagnosed with labrythitis, but have heard rumblings of others with MS having had this same situation, and wonder if it's in any way connected to all the stuff I am going through now (undiagnosed).

I'd love to hear if anyone else was diagnosed with Labrynthitis!

Thanks
Christine

[bikergranny]

I was diagnosed with labrynthitis 16 years ago.  I have 98% hearing loss in my right ear to this day.  Six years later, diagnosed with optic neuritis.   Ten years after that diagnosis, which is 10 months ago, I had loss of coordination, extreme fatigue, tingling and numbness on left side of body.   Finally, after x-rays, CT Scans, MRI and spinal tap, it was finally confirmed in May of 2011, I have MS.    I struggle most with the fatigue and it doesn't help that I have trouble falling asleep, or staying asleep.   I don't know if my labrynthitis was misdiagnosed and it was the inital onset of MS, or just a coincidence, either way I now konw I definitely have MS.    

[samokrobinx]

Yep.  Had Labrynthitis 5-8 days post partum, delivering my twins, in 2000.  Diagnosed with MS this year, 2011.  Also, 8 years ago, I had complete numbness, etc. in right arm, ulnar nerve.  Back then, I was told I injured my funny bone somehow, and in turn the nerve.  Funny, my last MRI found 2 small lesions on my C7=Ulnar Nerve, in the spine!

[Nerve_Wrecked]

Oi!! I wasn't comparing YOU to a 2 year old, just your post-slumber explainations! LOL

Thanks for the info, I'll likely let it slide for now, since for the MOST part, my vertigo's quick quick. And frankly, at this point...blah! LOL

I've spent so much time trying to get in to see a neuro who's knowledgeable about MS, and tests (beyond the MRI) to try and get this sorted out, that trying to get in to see another specialist seems more than daunting. I'll mention it to the new neuro when I get in to see her (actually, I'll just bring my list), and she can have it from there! LOL

Thanks Quix!

Christine

[Quixotic1]

Well, I've been compared to an aging rat with dementia so being compared to a two year old isn't bad.

The VNG - VideoNystagmoGram is a test that can often tease out whether the vertigo is of peipheral or central origin.  Your Neuro could order one or you could seek a consult with a neuro-otologist.

Quix

[Nerve_Wrecked]

Thank you Quix!

I'm not currently dx with MS, but undergoing more testing (brain and c-spine MRI was clear on a 1.5T in August), and going to see a specialist anyway (my neuro was an epilepsy specialist and was completely disinterested).

How can (or is it even possible) one determine if the vertigo is from the CNS, or inner ear? I recall she made me lay down, then sit up repeatedly, like she was analyzing my vertigo...thank heavens I was on Domperidone at the time (increasing milk supply) so I wasn't nauseated!

Since, I've had repeated bouts of vertigo, some lasting for 4 or 5 days, but usually just the type where you look up, and the world does a quick 180 on you, and then everything seems to settle again.

I'm used to it now, but just curious if this is common, or maybe completely unrelated. It just struck me as interesting that I've had something "odd" after both of my kids (my current influx of symptoms started a month or so after my youngest was born, and has persisted since). Seems too conincidental to completely disregard, but nor do I want to read anything into it!

Thanks so much for your reply! Don't worry about making too much sense, I have a 2 year old I have to decipher, so I'm pretty good (usually) at sorting it out ;)

Christine

[Quixotic1]

Hi, Welcome to the forum.  I suspect you were misdiagnosed with labyrinthitis OR you have both labyrinthitis and MS and they are unrelated.

I was first disabled from practicing medicine by chronic, hyperactive labyrinthitis diagnosed by a worldexpert in vertigo.  \

The labyrinth is in the inner ear.  It is part of the peripheral vestibular (balance) system. As such it is NOT a part of MS which involves the Central Nervous System's control of the body's sense of balance and position in space..  IF your vertigo is related to MS it is central in nature, thus in the brainstem or in the 8th Cranial nerve.

I just woke up and can see that my explanation doesn't make much sense.  Ask away!