Aa
How to find a good doc for someone in limbo?
As my other posts have suggested, I'm in limbo land. Lucky to have had a lot of testing, and to see 2 neuros (one of which is a very long time ms doc at MGH in Boston), but as of yet I don't feel like either of the neuros I've seen have really scorched the earth in terms of differential diagnosis. It seems like there should be more "rule out" tests. Does anyone know where I should look for a doc that will be more of a detective for diagnosis purposes (rather than a treatment type)? In in the Boston area. Thanks tor your help.
If you have a local NMSS support group you could go to a meeting and ask people in the group who they like or see. The NMSS has lists of providers but I like hearing who patients like.
Alex
Alex
It seems that Dr. Kinkle is now in San Diego. Sorry for the out of date info!
Lyle
Lyle
I once asked my doc, (who I love!) for an MS doc in Boston. The name he gave me was Phillip Kinkle at Beth Israel Deaconess.
Kyo
Kyo
Well, make sure that the neuro you see is actually sub-specializing in MS, so evaluates many MS patients or limbolanders. Many doctors say they have this specialty, but it turns out they 'specialize' in loads of neurological disorders. It's not possible to be at the top of one's game in a lot of different diseases.
In a city like Boston there are bound to be at least a couple of bona fide MS clinics. Check out the site mscare.org, which is the Consortium of MS Centers. That should give you some leads.
If the neuros you've seen work exclusively or almost exclusively in MS and still have not been able to tell you anything definitive, I can only suggest you try yet another doctor. Sometimes, though, things are simply not clear enough as yet. Some MSers do have symptoms, undergo testing and receive a diagnosis all in a matter of weeks to a couple of months, but many others take a long while, often several years and a bunch of doctors, before things are clear. This is maddening, I know, but there isn't much workaround in many cases.
Good luck to you.
ess
In a city like Boston there are bound to be at least a couple of bona fide MS clinics. Check out the site mscare.org, which is the Consortium of MS Centers. That should give you some leads.
If the neuros you've seen work exclusively or almost exclusively in MS and still have not been able to tell you anything definitive, I can only suggest you try yet another doctor. Sometimes, though, things are simply not clear enough as yet. Some MSers do have symptoms, undergo testing and receive a diagnosis all in a matter of weeks to a couple of months, but many others take a long while, often several years and a bunch of doctors, before things are clear. This is maddening, I know, but there isn't much workaround in many cases.
Good luck to you.
ess
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
