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Had my Disability hearing today..too much stress
I Went in front of the disability judge today. I had to go in alone. Everything went fine until they asked me what hobbies I wasn't able to do anymore. Then the flood gates turned on. I literally sobbed uncontrollably when I talked about how different my life is.
I was asked about my previous jobs. There was a vocational expert there. I won't know the outcome for up to 90 days. My MS specialist wrote statements backing me up on my limitations, but I worry. I feel so weird for falling to pieces in front of perfect strangers. I try to be in more control, but I lost it and I hate that. Gosh, what a hard day today was. I really hate that I can't work.
The stress has been at an all time high lately. My daughter broke her leg/ankle 3 weeks ago. She had a 6 HR surgery with pins and plates. I had to take her to the ER when her pain was so bad. The ER Ortho Dr wouldn't give her anything for her pain. I asked for morphine for her and he only wanted to give her Percocet. The Dr and 2 residents cut off her splint and started pressing on her incisions WITHOUT GLOVES ON!
No one washed their hands or gloved up. She was brand new out of surgery less than 36 hrs with stitches up 1\2 her lower leg. They denied that she was a level 10 for pain. I was in disbelief and felt helpless.
They weren't good about checking her vitals, she went 8 hrs with a level 10 for pain. I was soo upset. I filed a complaint with Patient Advocacy at the military hospital and her surgeon called apologizing. To top it all off my husband left for military and I had to help my daughter when she couldn't do anything herself. He left almost right after her surgery.
It's been soo hard lately. I'm hoping I don't have any relapses. Take care everyone.
Kristi
I was asked about my previous jobs. There was a vocational expert there. I won't know the outcome for up to 90 days. My MS specialist wrote statements backing me up on my limitations, but I worry. I feel so weird for falling to pieces in front of perfect strangers. I try to be in more control, but I lost it and I hate that. Gosh, what a hard day today was. I really hate that I can't work.
The stress has been at an all time high lately. My daughter broke her leg/ankle 3 weeks ago. She had a 6 HR surgery with pins and plates. I had to take her to the ER when her pain was so bad. The ER Ortho Dr wouldn't give her anything for her pain. I asked for morphine for her and he only wanted to give her Percocet. The Dr and 2 residents cut off her splint and started pressing on her incisions WITHOUT GLOVES ON!
No one washed their hands or gloved up. She was brand new out of surgery less than 36 hrs with stitches up 1\2 her lower leg. They denied that she was a level 10 for pain. I was in disbelief and felt helpless.
They weren't good about checking her vitals, she went 8 hrs with a level 10 for pain. I was soo upset. I filed a complaint with Patient Advocacy at the military hospital and her surgeon called apologizing. To top it all off my husband left for military and I had to help my daughter when she couldn't do anything herself. He left almost right after her surgery.
It's been soo hard lately. I'm hoping I don't have any relapses. Take care everyone.
Kristi
Thank you sooo much for your compassion. I have the stomach flu now to add insult to injury. My oldest daughter can't drive because she's in a cast and on pain meds. I just need to hang in there till Fri when my hubby comes back from TDY. (temporary duty station). He's been gone for 3 weeks. My house is a disaster to say the least.
I knew you all would understand my feelings and it brings tears when I think about what great friends you are. I hope I get the disability approved because it would make me feel like I was contributing to the household. I always feel guilty.
Hugs to all-
Kristi
I knew you all would understand my feelings and it brings tears when I think about what great friends you are. I hope I get the disability approved because it would make me feel like I was contributing to the household. I always feel guilty.
Hugs to all-
Kristi
I'm sorry to hear about your daughter and the disability hearing.
I somehow got very lucky with disability. I have TTS for the past 15yrs which is how I got it. I have been on disability now 5yrs and just received papers for re-determination. Scared to death I'll be denied.. But, my first time around I was approved right away with no hearing needed. I assume because I had a good 10yrs of medical records for the TTS. And even the states Dr. checked me and said nope, I couldn't work with what I knew. I'd love to go back to school for something but now these stupid cognitive issues have kicked in and it seems almost impossible. One day maybe :(
I somehow got very lucky with disability. I have TTS for the past 15yrs which is how I got it. I have been on disability now 5yrs and just received papers for re-determination. Scared to death I'll be denied.. But, my first time around I was approved right away with no hearing needed. I assume because I had a good 10yrs of medical records for the TTS. And even the states Dr. checked me and said nope, I couldn't work with what I knew. I'd love to go back to school for something but now these stupid cognitive issues have kicked in and it seems almost impossible. One day maybe :(
Hi Krysty, I'm so sorry you have so many things going on with you and your family. THe experience with your daughter is horrible!! I had an ER doc touch an incision with his bare hand once but he was checking for temperature, to make sure there wasn't an infection.
In your daughters case what they did was so wrong.
Disability hearings are very hard, emotionally and physically. I'm sorry you are having to go through that. I am on disability and every once in a while I have to have a 're-determination' time. Part of that is the interview. My last one, I sat and sobbed and was terrified that I would lose my disability. THe lady told me that even people who are quadriplegic have to go through it. It's a very difficult process.
take care,
Red
In your daughters case what they did was so wrong.
Disability hearings are very hard, emotionally and physically. I'm sorry you are having to go through that. I am on disability and every once in a while I have to have a 're-determination' time. Part of that is the interview. My last one, I sat and sobbed and was terrified that I would lose my disability. THe lady told me that even people who are quadriplegic have to go through it. It's a very difficult process.
take care,
Red
*Waves* I'm your neighbor!!!
(((HUGS)))
I'm going go for a couple positive things here.
You made it through it. I am still avoiding things of this nature in fear of it causing a relapse but you DID IT!!! YAY! How empowering is that?!
Breaking down on the stand --- I've had my moments of tearing up or crying in setting like that which tapped on some painful experiences. I was so embarrassed but it tells people we are human. There is a person behind those pieces of paper with information on it. It would be very difficult to get through something like that without it causing tears.
As for your daughter, I am sorry that our local military facility did not give proper care. They didn't have the best reputation in the past but I thought that was improving. Just watch them and raise holy he** if you need to again just like you did. I'm appawled. Mama bear would have come out for sure! :)
Since your DH is deployed, can you look at going off base? When my DH was deployed we didn't use the military facility. It might be worth your sanity right now to check Tricare Standard instead of Prime. We paid the deductable percentage 15% of the reduced bill(which in most cases was less than a normal $25.00 copayment)...even my surgery cost less than $100.00 total. It is why we are going to continue staying on it despite his return to his civilian position.
Send me a PM if you want more information. :)
(((HUGS)))
I'm going go for a couple positive things here.
You made it through it. I am still avoiding things of this nature in fear of it causing a relapse but you DID IT!!! YAY! How empowering is that?!
Breaking down on the stand --- I've had my moments of tearing up or crying in setting like that which tapped on some painful experiences. I was so embarrassed but it tells people we are human. There is a person behind those pieces of paper with information on it. It would be very difficult to get through something like that without it causing tears.
As for your daughter, I am sorry that our local military facility did not give proper care. They didn't have the best reputation in the past but I thought that was improving. Just watch them and raise holy he** if you need to again just like you did. I'm appawled. Mama bear would have come out for sure! :)
Since your DH is deployed, can you look at going off base? When my DH was deployed we didn't use the military facility. It might be worth your sanity right now to check Tricare Standard instead of Prime. We paid the deductable percentage 15% of the reduced bill(which in most cases was less than a normal $25.00 copayment)...even my surgery cost less than $100.00 total. It is why we are going to continue staying on it despite his return to his civilian position.
Send me a PM if you want more information. :)
So sorry to hear of all this stress. I hope your daughter is doing ok, and I cant believe they didn't wash their hands, or worn gloves! I would report this to the hospital ASAP! That IS AWFUL!
I am sure the hearing was tough. I completely understand the "pulling of the scab" part. SO SO hard to actually think and have to speak about the losses this nasty disease gives us.
I will also be schedule for a hearing at some point. I was denied a 2nd time for disability. (I hired a lawyer after I was denied the 1st time.) The lawyers told me in advance, I would be denied a second time and wouldn't get a "yes" at all until I had a hearing.
Here is OH it is very hard to get benefits. I believe I heard it is the hardest state to get disability.
They told me I probably wouldn't get a hearing until 1 1/2 to 2 years time?! Thank g-d my hubby has a job. dont know what we would do. Scary society we live in.
Take care, and I hope it gets easier for you. I also hope you will be qualified to receive SS benefits...
Michelle
I am sure the hearing was tough. I completely understand the "pulling of the scab" part. SO SO hard to actually think and have to speak about the losses this nasty disease gives us.
I will also be schedule for a hearing at some point. I was denied a 2nd time for disability. (I hired a lawyer after I was denied the 1st time.) The lawyers told me in advance, I would be denied a second time and wouldn't get a "yes" at all until I had a hearing.
Here is OH it is very hard to get benefits. I believe I heard it is the hardest state to get disability.
They told me I probably wouldn't get a hearing until 1 1/2 to 2 years time?! Thank g-d my hubby has a job. dont know what we would do. Scary society we live in.
Take care, and I hope it gets easier for you. I also hope you will be qualified to receive SS benefits...
Michelle
I pray that you will receive the disability that you deserve. I can't imagine how you felt while being questioned about what you were able to do long ago and what hobbies you can't do. It is a clear reminder of how our lives went on a decline and knowing full well we are not going to get it back.
I'm sorry to hear of your daughter's experience and her pain issues not addressed. I will never understand doctors who ignore a patient's complaint of pain on the scale of 0 - 10 who say they are a "10" and give a pill that will start to work 25 minutes later, putting them through even more pain. I'm glad you reported that to the patient advocacy. However, to me, the apology wasn't good enough. I hope the day comes when they are in that type of pain and no one addresses it and gives him a Tylenol.
You are definitely going through a lot right now but remember to use your resources to help you along the way to get through this, even here in our virtual world.
My thoughts and prayers are with you
Lisa
I'm sorry to hear of your daughter's experience and her pain issues not addressed. I will never understand doctors who ignore a patient's complaint of pain on the scale of 0 - 10 who say they are a "10" and give a pill that will start to work 25 minutes later, putting them through even more pain. I'm glad you reported that to the patient advocacy. However, to me, the apology wasn't good enough. I hope the day comes when they are in that type of pain and no one addresses it and gives him a Tylenol.
You are definitely going through a lot right now but remember to use your resources to help you along the way to get through this, even here in our virtual world.
My thoughts and prayers are with you
Lisa
The hearing was to determine whether or not I get disability. It is decided by how much I worked over 10 yrs, my reasons why I can't work in any capacity.
I try to stay away from discussions that upset me. Talking about how MS has affected my life is like ripping a scab off. All the yuckie feelings come pouring out.
Well I was forced to look at how different my life is now and it saddens me.
So many of you people I would love to meet and spend time with. You feel like close friends...thank you!!
Hugs
Kristi
I try to stay away from discussions that upset me. Talking about how MS has affected my life is like ripping a scab off. All the yuckie feelings come pouring out.
Well I was forced to look at how different my life is now and it saddens me.
So many of you people I would love to meet and spend time with. You feel like close friends...thank you!!
Hugs
Kristi
Oh dear.........I wish I was a neighbour too but I live such a long way away.......LOL....
That post brought tears to my (weird blurry) eyes....... I feel so sorry for your troubles at the moment. I dearly hope that you don't experience a flare because of your stress.
I hope your daughter is feeling better since the hard cast was applied. What's this story about ungloved hands..... that is just plain crazy. I'm with Lulu about keeping in touch with the surgeon as he obivously realises that things were not done correctly.
About the Disability Hearing......I'm not right up on what happened there..... Is this to gain some sort of financial support from the government..... Sorry that you felt it went wrong.....but maybe it is good for them to see how your life has been really impacted by an illness.
My thoughts are with you from Australia.
That post brought tears to my (weird blurry) eyes....... I feel so sorry for your troubles at the moment. I dearly hope that you don't experience a flare because of your stress.
I hope your daughter is feeling better since the hard cast was applied. What's this story about ungloved hands..... that is just plain crazy. I'm with Lulu about keeping in touch with the surgeon as he obivously realises that things were not done correctly.
About the Disability Hearing......I'm not right up on what happened there..... Is this to gain some sort of financial support from the government..... Sorry that you felt it went wrong.....but maybe it is good for them to see how your life has been really impacted by an illness.
My thoughts are with you from Australia.
Thanks Lulu!!! My daughter is better. She got the hard cast on yesterday. I am soo ready for my husband to come home.
It feels like a shower of stress falling on me. My husband is waiting to find out if he will deploy in Nov or Jan. I don't think I can handle it again. (of course I will)
I wish you were a neighbor too!
Kristi
It feels like a shower of stress falling on me. My husband is waiting to find out if he will deploy in Nov or Jan. I don't think I can handle it again. (of course I will)
I wish you were a neighbor too!
Kristi
Kristi,
I wish I were a neighbor and I could come and sit and chat over coffee or tea. It sounds like there are so many things going on right now for you and you could use a shoulder to lean on.
The disability hearing sounds hard and I hope they saw the true you and come through quickly for you.
Your daughter's ordeal is unconscionable - there should be a court martial of these medical personnel. I hope by now they have her pain better managed. Don't hesitate to contact that surgeon if you need more help - it sounds like he has a clue.
Sorry that your husband has been called away at this critical time. I have nothing but a lot of respect for all the military partners who have to go it alone.
Here's hoping no relapse is in your future - you already have way too much going on to take on one more thing.
hugs,
Lulu
I wish I were a neighbor and I could come and sit and chat over coffee or tea. It sounds like there are so many things going on right now for you and you could use a shoulder to lean on.
The disability hearing sounds hard and I hope they saw the true you and come through quickly for you.
Your daughter's ordeal is unconscionable - there should be a court martial of these medical personnel. I hope by now they have her pain better managed. Don't hesitate to contact that surgeon if you need more help - it sounds like he has a clue.
Sorry that your husband has been called away at this critical time. I have nothing but a lot of respect for all the military partners who have to go it alone.
Here's hoping no relapse is in your future - you already have way too much going on to take on one more thing.
hugs,
Lulu
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