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TIMELINE
HELLO EVERYONE! AS I SAID IN MY JOURNAL TOMORROW IS MY FIRST NEUROLOGY APPT. AND I DID A TIMELINE BUT NOT SURE IF IT IS RIGHT OR NOT... CAN ANYBODY HELP ME HERE IS A COPY....
SIMPLE TIMELINE
LATE 2000 TO EARLY 2001: CHEST PAIN/ HEART BURN
- DID WORK UP FOR ACID REFLEX
2002: CHEST PAIN /HEART BURN
- HOSPITALIZED FOR 7 -10 DAYS FOR HEART WORKUP DETERMINED WAS A SLIGHT HEART ATTACK.
2003: STOMACH PAIN
- DIVERTICULITUS WORK UP AND STARTED THE DIET FOR THIS
2004: CHEST PAIN & BACK PAIN
THOUGHT I HAD KIDNEY STONES NO EVIDENCE
2005: FEET WOULD CRAMP
JANUARY 2006: NO SYMPTOMS
FEBRUARY 2006 NO SYMPTOMS
MARCH 2006: NO SYMPTOMS
APRIL 2006: NO SYMPTOMS
MAY 2006: LEGS STARTED TO CRAMP UP
JUNE 2006: NO SYMPTOMS
JULY 2006 NO SYMPTOMS
AUGUST 2006: CHEST PAIN AND ARM FLUTTERING
SEPTEMBER 2006 NO SYMPTOMS
OCTOBER 2006: NO SYMPTOMS
NOVEMBER 2006: NO SYMPTOMS
DECEMBER 2006: NO SYMPTOMS
JANUARY 2007: MORE CHEST PAIN/ LEG CRAMPS
FEBRUARY 2007 ARMS FELT LIKE THEY WERE VERY HEAVY AT TIMES
MARCH 2007: MOOD SWINGS ONE DAY I WAS HAPPY AND EASY GOING THE NEXT DAY I WAS MISERABLE. THESE MOOD SWINGS SEEMED TO GET WORSE SUCH AS I WOULD YELL ONE MINUTE AND THEN THE NEXT WOULD ACT LIKE NOTHING HAPPENED.
APRIL 2007: MENSTRUAL CYCLES BEGAN TO BE VERY IRREGULAR AND I FOLLOWED UP WITH A GYN FOR EVALUATION. GYN SAID THAT EVERYTHING LOOKED OK AND AGAIN NO DIAGNOSIS.
MAY 2007: ARMS WOULD BE TINGLING AND LEGS HURT TO MOVE BUT WAS OK WITH THE PAIN… COULD TOLERATE THE PAIN
JUNE 2007: WEIGHT BEGAN TO GO UP AND DOWN. CHEST PAINS RETURNED
ENZYMES WERE ALWAYS NORMAL. EKG’S WERE NORMAL
JULY 2007 STARTED NEW EXERCISE PROGRAM AND DIET STILL NO RELIEVE FROM PAIN AND ARM STILL SEEMED TO BE SLIGHTLY TINGLING.
AUGUST 2007: WHEN PASSED OUT WHILE EXERCISING ON TREADMILL. DOCTOR DID HEART MONITORING AND EVERYTHING AGAIN WAS NEGATIVE. EKG NEGATIVE.
SEPTEMBER 2007: LEGS WOULD BE HEAVY AND HARD TO MOVE … EYES WOULD BLACK OUT LIKE I COULDN’T SEE ANYTHING AND THEN AFTER I BLINKED THE SIGHT WOULD RETURN. LEG AND HIP PAIN WAS GETTING WORSE BUT DOCTOR HAD NO EXPLANATION. IT WAS ALWAYS MY HEART OR STOMACH …
OCTOBER 2007: LEG CRAMPS AN DHIP CRAMPS WOULD KEEP ME AWAKE AT NIGHT. SOME TIMES I WOULD WAKE UP JUST SHAKING. NOTICED I WOULD BE COLD ONE MINUTE AND HOT THE NEXT.
NOVEMBER 2007: HIP AND LEG PAINS UNBEARABLE ACCOMPANIED BY ARMS FEELING HEAVY AND TINGLING IN RIGHT ARM. SEEMED TO BE DIZZY OFF AND ON.
DECEMBER 2007: NOTICED THAT I CAN’T HOLD MY URINE AS MUCH AS I USE TO… DOCTOR SAID MAYBE IT’S AN OVERACTIVE BLADDER. SEEMED LIKE MOOD SWINGS WERE UNBEARABLE FOR FAMILY. I WOULD CRY ONE MINUTE AND BE HAPPY THE NEXT. THEN ALITTLE LATER I WOULD BE SCREAMING. THE PAIN WAS SO BAD IT HURT TO WALK SOME DAYS
JANUARY 2007: TOLD THAT I HAD OPTIC NEURITIS AND THE LEFT SIDE WAS WORSE THAN THE RIGHT. EYES WOULD STILL BLACK IN AND OUT BUT SEEMED TO TOLERATE OK. ARMS FEELING HEAVIER AND HARDER TO HOLD THINGS AND LIFT THINGS WITH RIGHT HAND AND ARM HIP AND LEG PAIN KEEPING ME UP MOST OF THE TIME AND SOME TIME I CANT EVEN WALK. I FELL UP THE STEPS TWICE BECAUSE THE RIGHT SIDE DIDN’T SEEM TO WORK LIKE IT USE TOO. SOME DAYS I AM CONFUSED AND HAVE TO THINK TWICE ABOUT CERTAIN THINGS. THE PAIN COMES AND GOES BUT IS WORSE AT NIGHT.
LATE JANUARY TILL PRESENT: EYES DO NOT GO BLANK AS MUCH, A LITTLE HEADACHE BUT NOT UNBEARABLE… RIGHT SIDE SEEMS TO BE WEAKER WELL IT FEELS HEAVY TO ME… I NOTICE I DROP THINGS A LOT. PAIN STARTS IN THE HIP AND RADIATES DOWN MY LEG INTO MY FEET EVEN MY FEET FEEL HEAVY…. FEET BURN ALL THE TIME LEGS WAKE ME UP AT NIGHT SHAKING AND CRAMPING SOMETIMES THE CRAMPING IS SO TIGHT THAT MY LEGS FEEL LIKE THEY ARE LOCKED UP. CANT MOVE THEM…HARD TO BEND OVER AT TIMES BECAUSE LEGS AND HIP HURTS RIGHT SIDE IS WORSE THAN LEFT. ALSO IN THE LAST TWO MONTHS I HAVE NOTICED THAT I FEEL LIKE I AM GOING TO PASS OUT IF I GOT REALLY HOT OR COLD. FAMILY SAYS IT IS NOT HOT IN THE HOUSE BUT I WILL BE BURNING UP AND THEN ALL OF A SUDDEN COLD AGAIN. CAN’T TAKE HOT SHOWERS LIKE I USE TO BECAUSE THE HOTNESS MAKES ME FATIGUE AND DIZZY. IF THE WATER IS COLD IT WILL DO THE SAME THING. TIPID BATHES ARE THE BEST. TRIED PHYSICAL THERAPY BUT NO RESULTS TRIED POOL THERAPY BUT COULD NOT CONTINUE BECAUSE THE HEAT MADE ME FEEL FATIGUE.
LOWER EXTREMITIES ARE ALWAYS COLD…
SIMPLE TIMELINE
LATE 2000 TO EARLY 2001: CHEST PAIN/ HEART BURN
- DID WORK UP FOR ACID REFLEX
2002: CHEST PAIN /HEART BURN
- HOSPITALIZED FOR 7 -10 DAYS FOR HEART WORKUP DETERMINED WAS A SLIGHT HEART ATTACK.
2003: STOMACH PAIN
- DIVERTICULITUS WORK UP AND STARTED THE DIET FOR THIS
2004: CHEST PAIN & BACK PAIN
THOUGHT I HAD KIDNEY STONES NO EVIDENCE
2005: FEET WOULD CRAMP
JANUARY 2006: NO SYMPTOMS
FEBRUARY 2006 NO SYMPTOMS
MARCH 2006: NO SYMPTOMS
APRIL 2006: NO SYMPTOMS
MAY 2006: LEGS STARTED TO CRAMP UP
JUNE 2006: NO SYMPTOMS
JULY 2006 NO SYMPTOMS
AUGUST 2006: CHEST PAIN AND ARM FLUTTERING
SEPTEMBER 2006 NO SYMPTOMS
OCTOBER 2006: NO SYMPTOMS
NOVEMBER 2006: NO SYMPTOMS
DECEMBER 2006: NO SYMPTOMS
JANUARY 2007: MORE CHEST PAIN/ LEG CRAMPS
FEBRUARY 2007 ARMS FELT LIKE THEY WERE VERY HEAVY AT TIMES
MARCH 2007: MOOD SWINGS ONE DAY I WAS HAPPY AND EASY GOING THE NEXT DAY I WAS MISERABLE. THESE MOOD SWINGS SEEMED TO GET WORSE SUCH AS I WOULD YELL ONE MINUTE AND THEN THE NEXT WOULD ACT LIKE NOTHING HAPPENED.
APRIL 2007: MENSTRUAL CYCLES BEGAN TO BE VERY IRREGULAR AND I FOLLOWED UP WITH A GYN FOR EVALUATION. GYN SAID THAT EVERYTHING LOOKED OK AND AGAIN NO DIAGNOSIS.
MAY 2007: ARMS WOULD BE TINGLING AND LEGS HURT TO MOVE BUT WAS OK WITH THE PAIN… COULD TOLERATE THE PAIN
JUNE 2007: WEIGHT BEGAN TO GO UP AND DOWN. CHEST PAINS RETURNED
ENZYMES WERE ALWAYS NORMAL. EKG’S WERE NORMAL
JULY 2007 STARTED NEW EXERCISE PROGRAM AND DIET STILL NO RELIEVE FROM PAIN AND ARM STILL SEEMED TO BE SLIGHTLY TINGLING.
AUGUST 2007: WHEN PASSED OUT WHILE EXERCISING ON TREADMILL. DOCTOR DID HEART MONITORING AND EVERYTHING AGAIN WAS NEGATIVE. EKG NEGATIVE.
SEPTEMBER 2007: LEGS WOULD BE HEAVY AND HARD TO MOVE … EYES WOULD BLACK OUT LIKE I COULDN’T SEE ANYTHING AND THEN AFTER I BLINKED THE SIGHT WOULD RETURN. LEG AND HIP PAIN WAS GETTING WORSE BUT DOCTOR HAD NO EXPLANATION. IT WAS ALWAYS MY HEART OR STOMACH …
OCTOBER 2007: LEG CRAMPS AN DHIP CRAMPS WOULD KEEP ME AWAKE AT NIGHT. SOME TIMES I WOULD WAKE UP JUST SHAKING. NOTICED I WOULD BE COLD ONE MINUTE AND HOT THE NEXT.
NOVEMBER 2007: HIP AND LEG PAINS UNBEARABLE ACCOMPANIED BY ARMS FEELING HEAVY AND TINGLING IN RIGHT ARM. SEEMED TO BE DIZZY OFF AND ON.
DECEMBER 2007: NOTICED THAT I CAN’T HOLD MY URINE AS MUCH AS I USE TO… DOCTOR SAID MAYBE IT’S AN OVERACTIVE BLADDER. SEEMED LIKE MOOD SWINGS WERE UNBEARABLE FOR FAMILY. I WOULD CRY ONE MINUTE AND BE HAPPY THE NEXT. THEN ALITTLE LATER I WOULD BE SCREAMING. THE PAIN WAS SO BAD IT HURT TO WALK SOME DAYS
JANUARY 2007: TOLD THAT I HAD OPTIC NEURITIS AND THE LEFT SIDE WAS WORSE THAN THE RIGHT. EYES WOULD STILL BLACK IN AND OUT BUT SEEMED TO TOLERATE OK. ARMS FEELING HEAVIER AND HARDER TO HOLD THINGS AND LIFT THINGS WITH RIGHT HAND AND ARM HIP AND LEG PAIN KEEPING ME UP MOST OF THE TIME AND SOME TIME I CANT EVEN WALK. I FELL UP THE STEPS TWICE BECAUSE THE RIGHT SIDE DIDN’T SEEM TO WORK LIKE IT USE TOO. SOME DAYS I AM CONFUSED AND HAVE TO THINK TWICE ABOUT CERTAIN THINGS. THE PAIN COMES AND GOES BUT IS WORSE AT NIGHT.
LATE JANUARY TILL PRESENT: EYES DO NOT GO BLANK AS MUCH, A LITTLE HEADACHE BUT NOT UNBEARABLE… RIGHT SIDE SEEMS TO BE WEAKER WELL IT FEELS HEAVY TO ME… I NOTICE I DROP THINGS A LOT. PAIN STARTS IN THE HIP AND RADIATES DOWN MY LEG INTO MY FEET EVEN MY FEET FEEL HEAVY…. FEET BURN ALL THE TIME LEGS WAKE ME UP AT NIGHT SHAKING AND CRAMPING SOMETIMES THE CRAMPING IS SO TIGHT THAT MY LEGS FEEL LIKE THEY ARE LOCKED UP. CANT MOVE THEM…HARD TO BEND OVER AT TIMES BECAUSE LEGS AND HIP HURTS RIGHT SIDE IS WORSE THAN LEFT. ALSO IN THE LAST TWO MONTHS I HAVE NOTICED THAT I FEEL LIKE I AM GOING TO PASS OUT IF I GOT REALLY HOT OR COLD. FAMILY SAYS IT IS NOT HOT IN THE HOUSE BUT I WILL BE BURNING UP AND THEN ALL OF A SUDDEN COLD AGAIN. CAN’T TAKE HOT SHOWERS LIKE I USE TO BECAUSE THE HOTNESS MAKES ME FATIGUE AND DIZZY. IF THE WATER IS COLD IT WILL DO THE SAME THING. TIPID BATHES ARE THE BEST. TRIED PHYSICAL THERAPY BUT NO RESULTS TRIED POOL THERAPY BUT COULD NOT CONTINUE BECAUSE THE HEAT MADE ME FEEL FATIGUE.
LOWER EXTREMITIES ARE ALWAYS COLD…
Hi, here are a couple of hints. All the stuff until March 2006 is irelevant. Just remove it.
Explain what you mean about arm "fluttering."
I assume you used all caps for the forum. Use regular type and put double spaces between dates. The last paragraph needs tightening. Put similar symptoms or symptoms in the same body part together.
Finish talking about a symptom before you jump to another.
January 2007
Diagnosed with "Bilateral Optic Neuritis" - Left side worse than the right. Vision would (I don't understand "black in and out" Do you mean your vision would go black - how long, how often???)
**(Tam, you need to talk about whther the symptoms continued all year, came for a time (how long???) and went or what ))
Both arms (equally???) feel weak and heavy. I drop things a lot.
Pain and weakness R in arm and leg. Pain keeps me awake. Sometimes pain is so severe I cannot walk. Difficulty lifting R leg even to climb stairs sometimes. Have tripped and fallen on stairs, because of this twice. Pain comes and goes during the day, but is worse at night.
Some days feels confused (how??? difficulty remembering things, names, are you lost??)
January 2008 to Present --
Vision goes black less often
Right side now definitely weaker, heavier. Dropping things more often.
Pain in both hips radiating down to feet, definitely worse on right side. Sometimes I can't bend over because of the pain. My feet feel heavy and hard to move, also worse on the right. Both feet burn all the time.
I awaken at night with my legs shaking and cramping up. The cramps are so tight they feel "locked up" and I can't move them much.
Can't tolerate heat or cold. Makes me feel weak and faint. Family is comfortable but I feel like I'm burning up and then I feel cold. Can't take hot showers or baths. Now take tepid baths.
Physical therapy did not help with the pain and weakness. I couldn't tolerate the warm water in Pool therapy and stopped, because it just made me feel more fatigued.
My legs are always cold (to the touch or feel cold to you or both???)
************************
Okay, You don't have to do it exactly this way, but this is one idea. I got confused in your last 2 paragraphs about how long symptoms stayed for, which ones have been daily for the last year.
I hope this helps. Quix
Explain what you mean about arm "fluttering."
I assume you used all caps for the forum. Use regular type and put double spaces between dates. The last paragraph needs tightening. Put similar symptoms or symptoms in the same body part together.
Finish talking about a symptom before you jump to another.
January 2007
Diagnosed with "Bilateral Optic Neuritis" - Left side worse than the right. Vision would (I don't understand "black in and out" Do you mean your vision would go black - how long, how often???)
**(Tam, you need to talk about whther the symptoms continued all year, came for a time (how long???) and went or what ))
Both arms (equally???) feel weak and heavy. I drop things a lot.
Pain and weakness R in arm and leg. Pain keeps me awake. Sometimes pain is so severe I cannot walk. Difficulty lifting R leg even to climb stairs sometimes. Have tripped and fallen on stairs, because of this twice. Pain comes and goes during the day, but is worse at night.
Some days feels confused (how??? difficulty remembering things, names, are you lost??)
January 2008 to Present --
Vision goes black less often
Right side now definitely weaker, heavier. Dropping things more often.
Pain in both hips radiating down to feet, definitely worse on right side. Sometimes I can't bend over because of the pain. My feet feel heavy and hard to move, also worse on the right. Both feet burn all the time.
I awaken at night with my legs shaking and cramping up. The cramps are so tight they feel "locked up" and I can't move them much.
Can't tolerate heat or cold. Makes me feel weak and faint. Family is comfortable but I feel like I'm burning up and then I feel cold. Can't take hot showers or baths. Now take tepid baths.
Physical therapy did not help with the pain and weakness. I couldn't tolerate the warm water in Pool therapy and stopped, because it just made me feel more fatigued.
My legs are always cold (to the touch or feel cold to you or both???)
************************
Okay, You don't have to do it exactly this way, but this is one idea. I got confused in your last 2 paragraphs about how long symptoms stayed for, which ones have been daily for the last year.
I hope this helps. Quix
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