Aa
Help advice so many problems already
Hi guys
Just a quick background
I'm 30 yrs old, ive had so many symptoms and issues that it's scaring me in a big way
December - Lhermittes - went away feb to barely noticeable
January - hand tingl, feet tingle
Feb - feet started burning, brought a weird achey arm and odd pains in leg muscles all over both legs
March - much of the same
April - the odd feeling moved to left arm too
In the past two days both legs have had muscle pains and aches from my hamstrings to thighs that sometimes burn and up to buttocks and private areas. I've been struggling to walk any distance as my legs get real stiff and heavy and ache on the insides
I've ask had the fasculations in eyelids arms legs everywhere randomly.
Now I know that all seems like loads and that's what scares me?' I had an mri in jan clear brain and c spine and two neuro exams jan and feb all normal.
I'm terrified at how quickly the symptoms have come on including the spasticity whijc I was told should be later in disease, does this sound like a relapse? Or very aggressive ppms or something entirely different! It's terifying me and I would love some advice
Sorry for the rambling and questions let me know
Just a quick background
I'm 30 yrs old, ive had so many symptoms and issues that it's scaring me in a big way
December - Lhermittes - went away feb to barely noticeable
January - hand tingl, feet tingle
Feb - feet started burning, brought a weird achey arm and odd pains in leg muscles all over both legs
March - much of the same
April - the odd feeling moved to left arm too
In the past two days both legs have had muscle pains and aches from my hamstrings to thighs that sometimes burn and up to buttocks and private areas. I've been struggling to walk any distance as my legs get real stiff and heavy and ache on the insides
I've ask had the fasculations in eyelids arms legs everywhere randomly.
Now I know that all seems like loads and that's what scares me?' I had an mri in jan clear brain and c spine and two neuro exams jan and feb all normal.
I'm terrified at how quickly the symptoms have come on including the spasticity whijc I was told should be later in disease, does this sound like a relapse? Or very aggressive ppms or something entirely different! It's terifying me and I would love some advice
Sorry for the rambling and questions let me know
COMMUNITY LEADER
You keep repeating that you understand completely but at the same time continue to have difficulty comprehending, you absolutely need to have some abnormal neurological diagnostic evidence, in order for you to actually have a neurological condition like MS!
In your own words, your neurological assessments have not been abnormal, and even though you are convinced you are progressing at a rapid rate, your neurologist only the other day found no evidence of a relapse, said it doesn't look like progressive and that there's a lot of paroxysmal symptoms with no fixed deficit.......which basically means your neurologist didn't actually find the abnormal physical results that would support what you believe is happening to you.
If i am understanding your logic, you seem to have in your mind that your consistently normal neurological assessments over the last 3 months, isn't significant diagnostic evidence, that there hasn't been the progression you believe. You continue to assume the rapid symptom escalation is more significant evidence of your progressing neurological decline, whilst ignoring the fact you still have neurologically normal test results.
This publication table 7 lists 100 medical conditions that are sometimes mistaken for MS, and has basic explanations and diagnostic evidence for each https://neurology.wisc.edu/publications/2007/Neuro_2.pdf
It may not be pleasant to think about but considering you already have OCD, one alternative explanation for what you are experiencing is 'possibly' the OCD , which may have become obsessionally focused on your health, if so that would open the door to a potential health anxiety, conversion disorder etc to explain why you experience what you do.
Think about it.....if days ago every single symptom you'd mentioned was not able to be backed up by any corresponding neurological abnormality, how could you have a progressive type of MS or even be progressing, if there simply wasn't the measurable evidence to support that you have declined?
I honestly believe you are not helping your self by continuing to jump to these types of conclusions, please consider you are unnecessarily causing your self too much anxiety trying to predict what 'might be' going on.......breath!
More food for thought...........JJ
In your own words, your neurological assessments have not been abnormal, and even though you are convinced you are progressing at a rapid rate, your neurologist only the other day found no evidence of a relapse, said it doesn't look like progressive and that there's a lot of paroxysmal symptoms with no fixed deficit.......which basically means your neurologist didn't actually find the abnormal physical results that would support what you believe is happening to you.
If i am understanding your logic, you seem to have in your mind that your consistently normal neurological assessments over the last 3 months, isn't significant diagnostic evidence, that there hasn't been the progression you believe. You continue to assume the rapid symptom escalation is more significant evidence of your progressing neurological decline, whilst ignoring the fact you still have neurologically normal test results.
This publication table 7 lists 100 medical conditions that are sometimes mistaken for MS, and has basic explanations and diagnostic evidence for each https://neurology.wisc.edu/publications/2007/Neuro_2.pdf
It may not be pleasant to think about but considering you already have OCD, one alternative explanation for what you are experiencing is 'possibly' the OCD , which may have become obsessionally focused on your health, if so that would open the door to a potential health anxiety, conversion disorder etc to explain why you experience what you do.
Think about it.....if days ago every single symptom you'd mentioned was not able to be backed up by any corresponding neurological abnormality, how could you have a progressive type of MS or even be progressing, if there simply wasn't the measurable evidence to support that you have declined?
I honestly believe you are not helping your self by continuing to jump to these types of conclusions, please consider you are unnecessarily causing your self too much anxiety trying to predict what 'might be' going on.......breath!
More food for thought...........JJ
But you keep fixating on MS and what variety it is. That is not helping at all. If you want to stop being so anxious, you need to stop 'feeding' it by these thoughts. Instead, see a therapist and possibly get on a medication. Those are positive steps to help yourself. This isn't helping at all.
ess
ess
Hi Jj
Again Thankyou for taking your time to answer this and I really appreciate it
I understand completely what your saying and as I said before, to me it doesn't look like Ms at times, but what else could cause all these fast occurring sumptoms?
Lhermittes I know can only be a small number of things? B12 level was 350, the other things structural are clear
Lyme cannot cause lhermittes
And then there's the leg cramps and tigjtness constantly along with both arms numb? I understand completely what your saying but what else can it be that's causing this?
I know it's anxiety that's making me stress but it's because of how its playing out, it's getting worse and I have people I need to take care of, having Ms and sitting by is not going to help me
Again Thankyou for taking your time to answer this and I really appreciate it
I understand completely what your saying and as I said before, to me it doesn't look like Ms at times, but what else could cause all these fast occurring sumptoms?
Lhermittes I know can only be a small number of things? B12 level was 350, the other things structural are clear
Lyme cannot cause lhermittes
And then there's the leg cramps and tigjtness constantly along with both arms numb? I understand completely what your saying but what else can it be that's causing this?
I know it's anxiety that's making me stress but it's because of how its playing out, it's getting worse and I have people I need to take care of, having Ms and sitting by is not going to help me
COMMUNITY LEADER
It's absolutely 100% illogical to me, that a neuro from Barts London or any neuro to be honest, would actually suggest or even briefly mention to his or her patients, the rarest of the rare forms of MS at someone's first appointment!
On top of the oddity of that happening; IF the suggestion of PRMS or Malignant Multiple Sclerosis -Marburg Variant (the only other type of progressive that has a rapid pattern and even rarer still), was actually being made to someone sight unseen 'and or' who doesn't actually have a pre-existing diagnosis of PPMS or any form of MS, 'and or' doesn't have the abnormal objective diagnostic evidence (clinical, MRI's, LP, VEP etc) consistent with a neurological causation etc............the suggestion would be totally irrelevant, as it is a suggestion contradicting medical science and devoid of the persons reality!
"Progressive Relapsing Multiple Sclerosis (PRMS)
Progressive Relapsing Multiple Sclerosis (PRMS) is a rarer form of multiple sclerosis where the disease takes a progressive form from the outset with acute attacks throughout and no relief from accumulated symptoms.
Unlike Primary Progressive Multiple Sclerosis, Progressive Relapsing MS does not ‘plateau’.
Malignant Multiple Sclerosis (Marburg Variant)
Malignant Multiple Sclerosis, also known as Marburg Variant Multiple Sclerosis, is a particularly aggressive form of the disease. Thankfully very rare, this highly aggressive form is defined by its swift and relentless decline to significant disability or even death, often within a few weeks or months after the onset of the initial attack."
http://alaskamscenter.org/?page_id=4
Krispt i'm genuinely not dismissive of your fears, but the other side of the equation that challenges your mindset and should be considered when you put your entire situation and objective medical evidence all together.......you actually have nothing to back up your fear that you have one of the rarest types of MS!
Your lack of neurological diagnostic evidence, symptom patterns etc are hitting all the neurological red flags, which more 'commonly' suggests the causation is not a neurological condition like MS.....it really doesn't make sense to incorrectly assume non specific symptoms are more significantly meaningful, than the diagnostic evidence consistent with the disease?
Think about this objectively for a moment; by believing that the lack of diagnostic evidence must add up to you having the rarest type of rapidly progressive MS, is more likely only serving to feed your current escalating focused anxiety........seriously the more logical mindset is that by not having the diagnostic evidence, an inconsistent symptom pattern, no neurological deficits etc its all adding up to it being something not rare and being something other than your worst fears......
Food for thought..........JJ
On top of the oddity of that happening; IF the suggestion of PRMS or Malignant Multiple Sclerosis -Marburg Variant (the only other type of progressive that has a rapid pattern and even rarer still), was actually being made to someone sight unseen 'and or' who doesn't actually have a pre-existing diagnosis of PPMS or any form of MS, 'and or' doesn't have the abnormal objective diagnostic evidence (clinical, MRI's, LP, VEP etc) consistent with a neurological causation etc............the suggestion would be totally irrelevant, as it is a suggestion contradicting medical science and devoid of the persons reality!
"Progressive Relapsing Multiple Sclerosis (PRMS)
Progressive Relapsing Multiple Sclerosis (PRMS) is a rarer form of multiple sclerosis where the disease takes a progressive form from the outset with acute attacks throughout and no relief from accumulated symptoms.
Unlike Primary Progressive Multiple Sclerosis, Progressive Relapsing MS does not ‘plateau’.
Malignant Multiple Sclerosis (Marburg Variant)
Malignant Multiple Sclerosis, also known as Marburg Variant Multiple Sclerosis, is a particularly aggressive form of the disease. Thankfully very rare, this highly aggressive form is defined by its swift and relentless decline to significant disability or even death, often within a few weeks or months after the onset of the initial attack."
http://alaskamscenter.org/?page_id=4
Krispt i'm genuinely not dismissive of your fears, but the other side of the equation that challenges your mindset and should be considered when you put your entire situation and objective medical evidence all together.......you actually have nothing to back up your fear that you have one of the rarest types of MS!
Your lack of neurological diagnostic evidence, symptom patterns etc are hitting all the neurological red flags, which more 'commonly' suggests the causation is not a neurological condition like MS.....it really doesn't make sense to incorrectly assume non specific symptoms are more significantly meaningful, than the diagnostic evidence consistent with the disease?
Think about this objectively for a moment; by believing that the lack of diagnostic evidence must add up to you having the rarest type of rapidly progressive MS, is more likely only serving to feed your current escalating focused anxiety........seriously the more logical mindset is that by not having the diagnostic evidence, an inconsistent symptom pattern, no neurological deficits etc its all adding up to it being something not rare and being something other than your worst fears......
Food for thought..........JJ
Hi Alex
Your right and IVE started to get treatment for the anxiety so I'm hoping that will help out
And Jj I agree completely with what your saying it doesn't seem to follow ppms or RRMS that's why I'm worried about it
I have spoken to a neuro at Barts London too who suggested rapidly progressive or prms? Either way it's not good
Your right and IVE started to get treatment for the anxiety so I'm hoping that will help out
And Jj I agree completely with what your saying it doesn't seem to follow ppms or RRMS that's why I'm worried about it
I have spoken to a neuro at Barts London too who suggested rapidly progressive or prms? Either way it's not good
When I was being diagnosed my GP told me to step back and not think about MS for awhile. She saw that it was making me nuts.
Alex
Alex
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