Um, i think you get a 'certificate of crapola' but i'm not sure what else you need to do, besides breathing to actually get your copy, still might be worth keeping an eye on your letter box :o)
cheers
Well so far it seems like we are the only ones that hit the 16/16 point. No one answered my question of if we win any kind of prize for this. :)
Dennis
16 of 16 for me. Woo hoo !
I am a 6 out of 16 - so I guess that's good - however the one biggie of those 6 is spasticity and man it is a killer - really infringes on everything - the heat isn't helping either that's for sure!
Presently 9/16.... It has been higher so I'm pretty happy :)
Sadly and surprisingly 15/16 at one time or another. My neuro denies spascity even though I have muscle cramping that is difficult to control.
Yikes, I worse off than I thought,lol! At least now it's about 6 symptoms!
Ren
I counted 10 for sure~the problem with this is that they can be symptoms of fibromyalgia too.So that's what all of my problems get blamed on! However,when I was at my appt today with the neurosurgeon,I really felt for the first time that I was being EVALUATED;not only by what I said,but by what he saw as he talked to me and did the neuro exam.He was very observant.And while he didn't tell me anything other than what I was there to find out,I could tell he was thinking.As I read the list of MS symptoms,I laughed to myself and thought,"wouldn't it be ironic if a neurosurgeon picked up on MS?!"
I agree with you DV. My morning double vision is caused by nystagmus. My optic nerve has never been impacted by my MS.
9/12 for me, though never all at once.
I found the blurb about vision to be misleading. It said that double vision, among other vision problems, is usually due to optic neuritis. My understanding is that double vision is rarely (if ever?) caused by ON, I don't even understand what the mechanism would be, ie how does an inflamed optic nerve cause one's vision to be double? In my case, my double vision been attributed at various times to an INO, nystagmus and sixth nerve palsy, which are all eye movement disorders. ON caused me to have blurred vision, but didn't cause it to be double.
This is a good explanation that distinguishes the various vision problems in MS:
http://emedicine.medscape.com/article/1214270-overview
16/16 for me. Do I win anything? :)
Dennis
Makes me want to print my checklist like JJ's to show my nbeuro. I often think he doesn't see the forest for the trees.
1 Fatigue - Yes
2 Numbness - Yes
3 Tingling - Yes
4 Balance and coordination problems - Yes
5 Spasticity - Yes
6 Vision problems - Yes
7 Pain - Yes
8 Bladder dysfunction - Yes
9 Constipation - Yes
10 Dizziness and vertigo - Yes but rarely
11 Sexual dysfunction - Yes
12 Depression - No
13 Cognitive dysfunction - Yes
14 Anxiety - No
15 Emotional changes - No (I laugh a lot but hardly ever cry)
16 Speech and voice disorders - Yes
13/16
In regard to the speech issues, I experience both dysarthria (slurring, poor articulation of words) and dysphonia (sounding hoarse). When my son was born i strangely started sounding like a man, it came and went for years. That definitely came first for me, and it was around a decade before the first time the stuttering/slurring started, which has become an every day thing for me now.
Cheers........JJ
Kelly, I see you're in Colorado, maybe we have the same neuro, lol. I'm going to mention this article for sure.
I have 15 of the 16.
I'm in the same boat - another doctor recently diagnosed me with vocal cord dysfunction based on a spirometry test (and of course listening to me talk - majorly hoarse) & sent me to a speech pathologist for PT.
I told my neurologist and she said she's never heard of anyone with MS having voice issues. I said to her that I hear about it all the time. She just blew me off - like everything else. I think I need another new neuro. :-/
12/16 for me.
How life can change so very quickly. Two years ago it would have been almost 0/16.
Poppy
Well I checked off 12 out of 16 for the first 12 to18mths but am pleased to say I'm down to just 6 symptoms now which is a great feeling thank you.
Interesting exercise to track progress over the long term. I'm only 2 years into my journey and a lot of people tell me their MS didn't affect them much for the first five years.
So I'm just living in the moment, grateful for the support around me and my health today. I'm hoping all will be ok in the future but knowing that with MS my health can change as fast as a New York minute.
Blessings
Alex
Ps Kyle I just had a giggle remembering your 'depths of my identity crisis' comment probably a year or more ago when somehow people confused us. So looks like my long term memory is ok, just working on short term stuff which is my biggest battle.
Wow, I didn't think I would have many, but as I went through the list, it looks like 11 maybe 12.
Kind of shocking when it sets in that way.
Thanks for sharing!
Corrie
I forgot to mention, 10 for me...
13 out of 16 here.
But as we all know, it's all "just stress"! :)
Thought Police, that's funny!