I can't be the only one

[LisaJF]

I can't be the only person on the entire planet to experience this phenomenon that I've been having for at least a couple years.  I'm hoping someone out there who experiences this will answer to this thread and tell  me if they have been told what it is about.

I have this localized and unilateral goose bump phenomenon.  It used to be the anterior aspect of my left thigh but noticed lately that it will extend to the back of my calf (I can literally see the goose bumps form a path) in certain areas of my left leg.  It does not cause pain and it's not even an annoyance, but it makes me wonder what the heck this is.  Shortly after my LP, I noticed the goose bump phenomenon happening not only to my left arm and left leg (some anterior and some posterior) but also reaching across my right lower arm (wrist to elbow area).

Last night I had the goose bump thing happening on and off all day.  No big deal, but then later in the evening I had nausea without vomiting.  I took Zofran 8 mg and it seemed to have helped.  I was short of breath as well but not severely.  I was weak yesterday too.  At 2 am in the morning I wake up with palpitations and my heart rate was very slow (bradycardia) about 55 bpm.  I got up and ate a banana thinking its probably my potassium level.  I took my blood pressure and it was 92/54.  I dont know if those are all linked together or separate.

However, I would love to know if anyone out there gets this and if so, were they told "why" it happens?

Lisa

[Dagun]

Hi Lisa, I have had this but not for a while though. I mentioned this in post here one or two years ago. I both felt it and saw it, it mainly was on my left scalp (so I could not see that ;)) but also my left arm. It went on again and again for few weeks, felt REALLY strange, peoble around me probably thought I was crasy when I told them. As almost everything I get for a while in somekind of relapse, I get it on and off after that. My neuro told me it could be a part of all my paresthesia, like Bubbles said.

AND I am also wondering about my BP (we should start a group, lol). Last month I have been in a kind of relapse, of what I think is the automatic nerve system. My BP went down to 94/56 (the lowest I saw) and was mostly low for a long time, but then I would have a strange feeling like flucturing (something, don´t know in English) and checked the pressure and in 30sec it was 135/75 back down to 102/60. I was perfectly calm, so that´s not it, watching tv.

My regular BP is between 119/70 to 128/75 or something like that. When I got this the first time I went to gardiospecialist (month later, with no symptoms), she told me that I have no heart or cardio problems. So I think it is nerve related. I once found an article about how ms can affect BP and heart, the neuro was wondering why it is not more recognised.

I beleive that what ever I have if it is not MS then it is something that is very similar and maybe in few years this will be one of the "groups" in MS and many of us limbolanders will be in it?
I sure hope you feel better soon Lisa.
Dagun  

[LisaJF]

PastoralDan:  No a HR of 55 is not terribly low, but it is considered bradycardia, especially when my normal resting HR is 70s.  I've been a HR of 36 bpm as well, lasting a few days.  My B/P sometimes goes very low as well.

I've been taking Zofran for  years for unexplained nausea (not vomiting) and if it was considered a side effect, then I would expect that to happen every time I take it which it doesn't.  My B/P and HR have dipped very low without it as well.  

But thank you for your input.

Bubbles:  I think it can be considered a paresthesia (as your doctor stated), where you are concerned and possibly myself as well.  I have no clue.

The only difference is between you and I is, that I "SEE" the goosebumps and on only a part of an extremity, (I'm not cold), which is controlled by the autonomic nervous system.  I think something is screwy in that department with me.  

The only literature I see on localized and unilateral piloerection (goosebumps) are seizures.  Very limited information.  I was suppose to get an EEG back in 2008 when I was not doing so well (neuro wise), but when I snapped out of it and got feeling better, I went to work and didn't bother.

I should ask the last Neurologist I seen last or the Rheum when I go to see him on Sept 20th, to get another EEG ordered and finish off what was started (via prescription) for one and do just do it, like Nike.

Carrie: Thank you for your input.  I was truly hoping more than one would step up and say something about it because I know I can't be the only one who gets this.

I spent most of the day in the ER yesterday with unbearable right flank pain, groin pain and low back pain.  I was at an appointment was was waiting 1.5 hours so far to be seen.  I could barely walk to the ladies room to see if I had to pass a stone or something.  (I did have a history of kidney stones and it felt exactly like it).  

The CT Scan revealed NO stones.  Only a new lesion on my liver (which is probably a hemgioma), multiple phleboliths in the pelvic region (benign thing), and diverticulosis without diverticulitis.  

The doctor did say it could have been a cyst that ruptured, which I did have a couple adnexal cysts and a fibroid that it stubbornly remaining there, so that did make sense.  But who knows right?

Well today is another day. I have to go back to the place I was yesterday and wait my turn again.

Thank you all again for your input and taking the time to respond.

Lisa

[PastorDan]

74, I think most of them think most of us are nuts.

[BubblesRN74]

Hello!  Not sure if you are diagnosed or not, but I am a limbo lander and I too get the localized and unilateral goosebumpy feeling.  I just wrote a post a few weeks ago asking the same thing!  
I get the goosebumpy feeling in but do not have the goosebumps, I touch my skin where the feeling expecting to feel "goosebumps" but there are none there.  For me these sensations appear on the right side of my body, mostly on the right side of my scalp or my back of my right thigh/buttock area.  And when I touch that area....the goosebumpy feeling is intensified...if that makes any sense.  I have told my neuro about this but she never addressed it directly, just said it's a form of paresthesia....though I get the feeling she thinks I am nuts.    
I just keep a journal of my "abnormal phenomenons" and hope that someday they can be linked to some diagnosis.
Let us know i  

[carrieblackwell77]

Good question Dan!  I looked it up since I take this for migraines too (well for the puking from the migraines).  It can cause bradycardia and low pressure, good call!

So those two might have been from the Zofran but you never noticed before because the lows weren't too extreme?  I would monitor next time you use.  It also said that Z should be avoided if you suffer from these conditions.  If it persists I would see about switching to Phenergan, I don't know what it's side effects are, too lazy to look up now, lol.


As for the goose bump thing, I've never had it but I have read comments about it on here, don't remember who started those threads though, might have been you lol!  Search on here because I KNOW I've read about this before and you aren't the only one to have this.

[PastorDan]

Sorry, I've observed nothing of that kind.

I have occasional sudden chills running up or down my trunk and/or limbs, and might have goose bumps but have never seen them.  These are very brief sensations, so if I was to remove clothing sufficient to check, they'd be gone anyway.

I think a resting heart rate of 55 is not too terribly low, depending on one's level of fitness.  That BP is low, but I'll say it's much better, at 2AM, to have low BP rather than high.

Not sure I've ever even heard of Zofran.  Does it impact BP or pulse?