Waiting...

[5grahams]

So, I had my MRI yesterday. They just did the brain, and with no contrast. (They have a 3T machine). Anyways I am now trying to wait patiently until my next appointment. It's the 26th of November. I know that isn't a bad amount of time all things considered, but I am so impatient! I am trying hard, but I am nervous. I am thinking about things and I feel like it is a no win situation because on one hand if everything is normal and it isn't MS that is great, but on the other hand why am I having these symptoms then? Do any of you in limboland ever feel like that, like either way it won't be what you want to hear? I want a clean MRI, but at the same time want to know what is wrong with me. Something isn't right with me, and I know I am not crazy, or imagining it. Any tips for getting through the waiting period? :)

[Udkas]

Hi there,

I can relate so, so, so much to these posts, i too cried when my MRI was clear and my family was happy and couldn't understand why I wasn't.

I am now awaiting again for results of a MRI and just as confused, but only 3 weeks to wait but seems like forever!!  Part wants something to show up and the other half is not sure.  

This is what has drawn me to this forum, the fact there is so many people out there feeling the same way, it is comforting to know you are not alone and that someone else can comprehend how you are feeling.

Goodluck for a positive outcome, none of us want a serious disease but answers for our abnormalities.

Cheers,
Udkas.

[doni54]

Hey, I could have written your post.  I'm a limbolander, too.  Had my first brain MRI w/wo contrast, in Oct.  I was lucky enough to be able to go the next day and get a copy of the film and report.

Mine didn't show anything, well except my brain....heehee, at least I do know I have one now.  There are days I still wonder about this though.

I actually cried when mine was clear.  My family was so happy and couldn't understand why I wasn't.  I really couldn't explain it to them, I know that sounds really dumb, but I've been having symptoms for so long, I felt sure that having this brain MRI would get me closer to a dx.

There are so many MS mimics that can cause our symptoms and it just takes a while to have all the tests to eliminate them from the picture.

I do know that you needed to have w and w/o contrast.  Have they scheduled you for a spine MRI, yet?  If you've read any of the health pages you know that there are many that will have clear MRI's but have all the symptoms of MS.  If you are lucky enough to have a good neuro, then he will run all the tests needed to find your dx.

I hope things work out and that your neuro is thorough and works hard to find your dx soon.  Like we say, you have to be tough to be a limbolander.  But you have all of us to support you and we will try to answer your questions as best we can.

doni

[Wobbly]

yes we have all been in this situation, I'm glad you don't have to wait too long to see your Neuro...you will be seeing a Neuro...?  did you get a copy of the CD of the MRI?

if not... I would ask for one and a copy of the report... you can ask where you had the testing done....

and yes, I know exactly how you feel about not wanting anything to show up...but then what is the problem with me??  No one wants to have MS or anything else.... we all want to have our lives back to how they were.  I myself do not have my life like it was two years ago and miss it so much...

still no Dx...but I'm still seeing different Dr...doing the Neuro shuffle as they say... and having more tests done...because something is wrong...maybe not MS...but something.. we are here in Limboland...all waiting and waiting...you know that feeling

hang in there and remember to get your own copies for yourself...incase you need them down the road..
take care
wobbly
undx