Aa
In need of hugs and prayers
Its been an awful day to say the least.
Some have ask will I ever get a break.I quess I can answer that NO!!!!
After crying all afternoon,I finally gained my composure for my kids.
Had my follow up with my neuro,who I must say has a very caring and compassionate side,many neuro's can learn from him.
Test results are back---VEP left eye 147 , right eye 130, bilateral optical neuritis,never showed on recent MRI;s.Neuro was puzzled for sure.But admitted MRI's don't detect all.
The BAER-- slightly abnormal left ear with mild sensural hearing loss right ear and moderate hearing loss left ear.Recommends hearing aids.
Now for the real shocker,I knew my neuro had suspected arachnoiditis,well its there.But the real kicker is he told me the arachnoiditis is caused by a pin hole tear in the spinal canal leacking spinal fluid into the thecal sac.Which has done a great job containing it.He thinks it was caused when I was rear ended in June causing the screws in my back to shift and hit the spinal canal.The only way to repair this is to surgically do it.
I completely lost it,I told him no,I would't go through that again and he explained that it had to be done,if that ruptures theres severe medical consequense.He's already been in touch with my neurosurgeon,I had blood work done today,basic panel and he was checking my clotting factor.
I have to be back in his office tomorrow morning 7:30 for a EMG/NCS and friday ,I have to be at the hospital for a spinal tap he's gonna run a MS panal and to make sure theres not an infection in the spinal fluid.He admitted that he wasn't comfortable doing it,it has to be done at the L2-L3 usually done lower.He wants it done at the hospital under florascopic with me sedated.YEA!!!Thats a plus.
He was very caring, as I sat there and cried like a fool,I told him of my fears and he promised me he would see me through the surgery and he would be assisting my neurosurgeon.he said my concerns were very valid and he would controll all aspects of the pain.I told him in the past that my surgeons dismissed the pain after the surgeries and I refuse to go through that again.
He ask me if I had faith in him and my surgeon and I said yes.Usually ya don't get to see this side of a DR.The human side. He hugged me ,made sure I had a driver ,ask if I needed anything for depression or to get through the news,I told him no,but I also told him not to wear a tie tomorrow during the EMG/NCS ,he ask why and I told him I'd choke him with it if he inflicked any pain on me during that test.I told him that would get me through the night.
He said I was stuck with him,with the MS and many Drs are not familiar with arachnoiditis,an incurable nerve disease.But it can be controlled with solu-medrol when it flairs up.He said now its trying to learn what is what during a flair up.
Its been a lot to absorb,thought I was done with test.
Its been a long year,but I'm sure 2008 will be better,I now know what I'm facing.It may be a long journey yet,but that soon will pass.
Sorry to ramble
T
Some have ask will I ever get a break.I quess I can answer that NO!!!!
After crying all afternoon,I finally gained my composure for my kids.
Had my follow up with my neuro,who I must say has a very caring and compassionate side,many neuro's can learn from him.
Test results are back---VEP left eye 147 , right eye 130, bilateral optical neuritis,never showed on recent MRI;s.Neuro was puzzled for sure.But admitted MRI's don't detect all.
The BAER-- slightly abnormal left ear with mild sensural hearing loss right ear and moderate hearing loss left ear.Recommends hearing aids.
Now for the real shocker,I knew my neuro had suspected arachnoiditis,well its there.But the real kicker is he told me the arachnoiditis is caused by a pin hole tear in the spinal canal leacking spinal fluid into the thecal sac.Which has done a great job containing it.He thinks it was caused when I was rear ended in June causing the screws in my back to shift and hit the spinal canal.The only way to repair this is to surgically do it.
I completely lost it,I told him no,I would't go through that again and he explained that it had to be done,if that ruptures theres severe medical consequense.He's already been in touch with my neurosurgeon,I had blood work done today,basic panel and he was checking my clotting factor.
I have to be back in his office tomorrow morning 7:30 for a EMG/NCS and friday ,I have to be at the hospital for a spinal tap he's gonna run a MS panal and to make sure theres not an infection in the spinal fluid.He admitted that he wasn't comfortable doing it,it has to be done at the L2-L3 usually done lower.He wants it done at the hospital under florascopic with me sedated.YEA!!!Thats a plus.
He was very caring, as I sat there and cried like a fool,I told him of my fears and he promised me he would see me through the surgery and he would be assisting my neurosurgeon.he said my concerns were very valid and he would controll all aspects of the pain.I told him in the past that my surgeons dismissed the pain after the surgeries and I refuse to go through that again.
He ask me if I had faith in him and my surgeon and I said yes.Usually ya don't get to see this side of a DR.The human side. He hugged me ,made sure I had a driver ,ask if I needed anything for depression or to get through the news,I told him no,but I also told him not to wear a tie tomorrow during the EMG/NCS ,he ask why and I told him I'd choke him with it if he inflicked any pain on me during that test.I told him that would get me through the night.
He said I was stuck with him,with the MS and many Drs are not familiar with arachnoiditis,an incurable nerve disease.But it can be controlled with solu-medrol when it flairs up.He said now its trying to learn what is what during a flair up.
Its been a lot to absorb,thought I was done with test.
Its been a long year,but I'm sure 2008 will be better,I now know what I'm facing.It may be a long journey yet,but that soon will pass.
Sorry to ramble
T
Glad to hear you are ok T. Sorry they hit a nerve though. I am so glad you stood up for your rights and got the sedation. how un-caring of the staff to try not to give it to you.
Rest and recover on Sunday!!
Craig
Rest and recover on Sunday!!
Craig
LP was okay even though the neuro radiologist hit a nerve you wanna talk about a jolt.Legs are a little yucky today with some back pain.I did make a report that they discharged me without any paper work after 7 hours of being there.Not very good protocal,plus the radiologist tech had left a vial of spinal fluid on the gurney when they took me back to my room,not very professional in my opinion.
I think they got a little honked off when I told them I was leaving if they didn't give me a mild sedation as my lumbar area is a wreck and I was nervous,I had one tramatic experience with a past LP and was very adamment they were sedating me,plus they thought I was gonna lay flat there for 6 hours,it was gonna happen.
Ferah, thank you for your prayers,don't thinl we have met,welcome.
Quix,I would appreciate it.I tried to understand the champs study but it blew my mind away.
T
I think they got a little honked off when I told them I was leaving if they didn't give me a mild sedation as my lumbar area is a wreck and I was nervous,I had one tramatic experience with a past LP and was very adamment they were sedating me,plus they thought I was gonna lay flat there for 6 hours,it was gonna happen.
Ferah, thank you for your prayers,don't thinl we have met,welcome.
Quix,I would appreciate it.I tried to understand the champs study but it blew my mind away.
T
My preyers r with u along with all of the people around the world who r diagnosed with m.s and also with any type of illness. I have m.s also so I am told but I'm not sure personally but I've been on interferon meds for 6 yrs I just don't know what to do formyself but 2 prey which I prey for u as I said and everyone else who is diagnosed with any illness.
LOVE YOU
TAKE CARE
FERAH
LOVE YOU
TAKE CARE
FERAH
I'll have to go look at the CHAMPS study again. I'll try to do that this weekend. Take care!
Quix
Quix
All went okay,yes they ended up giving me mild sedation after I threatened to leave.I'll post more tomorrow,back hurts and the eyes aren't much better.
T
T
I can't believe that they weren't going to give you sedation T. Man you really are having a time of it aren't you. I do hope all goes well tomorrow and my thoughts and prayers will be with you that you sail through all this. Make sure to rest up after. If need be, don't hold off on the solu-medrol, it is good that you could have it done at home but still think the rest at the hospital would do you good. But I do understand with teens, Mom needs to be there.
I like the buff hottie male nurse and even like the speedos, but lime green?? haha
Look after yourself T. When you feel up to it let us know how you are.
Hugs coming your way
Moki
I like the buff hottie male nurse and even like the speedos, but lime green?? haha
Look after yourself T. When you feel up to it let us know how you are.
Hugs coming your way
Moki
With my kids I"ll get even ,when I'm on the steroids they make me meaner than a junk yard dog,maybe thats why they refused to picked them up.
LP tomorrow morning,pre-registered over the phone and then the tech stated they were not gonna do it with me being mildly sadated and I told him to cancel it then.I have to much scare tissue and expeience way to much lumbar pain to have this done with out sedation,he says well they'll hold you down.I don't think so.
I called my neuro and it states right on the script with sedation.Idiots!!!!!!!!!!
Hospital stay isn't an option right now,not with a 13 and a 16 year old and home.If my neuro decides on monday if I see no improvement in my vision he'll order solu-medrol in home.least this way I have some control over them.
Quix,fatigue is the worst part of this dang disease, even though I take the provigil I still get fatigued.
Oh, my wishes after surgery is to have a buff hottie male nurse in a lime green speedo.I know wishfull thinking.
Quix, what is your take on the champs study? Dealing with neuritis.My neuro tossed around the idea that a virus has caused this.I tried reading up on it some but it confused me or it could be that my vision stinks.I had a vep in 1998 right eye 130,2004, right eye 130, 2006 right eye 130.Last week when I had the vep right eye 130 never has changed since 1998 and it gives me minimal trouble unless heat is a factor.The left eye has always been normal.Now 147.I have had on going left eye pain since august,just had recent mri's and lesions didn't show.But neuro-opthomologist stated that the outside of each optical nerves were very pale and it may not show on a t1 machine.
Now if I had a virus wouldn't one know?Not even a cold to persay for sometime.If a vep comes back abnormal,does it stay abnormal if damage has occurred?
Thanks to all,your wonderful,probably won't be back until Monday.
Your in my hearts and prayers.
T
LP tomorrow morning,pre-registered over the phone and then the tech stated they were not gonna do it with me being mildly sadated and I told him to cancel it then.I have to much scare tissue and expeience way to much lumbar pain to have this done with out sedation,he says well they'll hold you down.I don't think so.
I called my neuro and it states right on the script with sedation.Idiots!!!!!!!!!!
Hospital stay isn't an option right now,not with a 13 and a 16 year old and home.If my neuro decides on monday if I see no improvement in my vision he'll order solu-medrol in home.least this way I have some control over them.
Quix,fatigue is the worst part of this dang disease, even though I take the provigil I still get fatigued.
Oh, my wishes after surgery is to have a buff hottie male nurse in a lime green speedo.I know wishfull thinking.
Quix, what is your take on the champs study? Dealing with neuritis.My neuro tossed around the idea that a virus has caused this.I tried reading up on it some but it confused me or it could be that my vision stinks.I had a vep in 1998 right eye 130,2004, right eye 130, 2006 right eye 130.Last week when I had the vep right eye 130 never has changed since 1998 and it gives me minimal trouble unless heat is a factor.The left eye has always been normal.Now 147.I have had on going left eye pain since august,just had recent mri's and lesions didn't show.But neuro-opthomologist stated that the outside of each optical nerves were very pale and it may not show on a t1 machine.
Now if I had a virus wouldn't one know?Not even a cold to persay for sometime.If a vep comes back abnormal,does it stay abnormal if damage has occurred?
Thanks to all,your wonderful,probably won't be back until Monday.
Your in my hearts and prayers.
T
Dear, dear Lynn, You are consistently our bastion of strength and humor through suffering. It makes sense that the car accident could have casued the puncture - which then caused the arachnoiditis. The arachnoid membrane is one of the coverings of the brain and spinal cord. It carries most of the blood vessels whcih spread out "like a spider's legs" hence the name. I knew that surgery, an LP, or any other type of puncture could casue it, but I didn't know they couldn't cure it. I pray that once they close it, that they can get a handle on the inflammation. Then maybe you'll get some relief. It does explain some of the severe pain and spasms you've been getting.
I have been thinking about you and what a wonderful friend you've been since we first met way last spring. I pray the best, quickest and most painless LP and surgery for you and the hottest of hottie docs in Recovery. I agree that you should let and make the docs take very good care of you and insist that they relieve your pain. I hurt for you and the reaction of your kids. Remember, grandchildren are your reward for letting your teenagers live!
You are very special to me and to all of us. We're on your side and all thinking about you. You even consoled me when I got on and bitched and moaned about being tired. Now I see that you did this after getting this totally undeserved news. There should be a No-Call List for people who already have enough bad news and enough stuff to deal with. I think you should take a "pass" on the next several offers of complications to your life.
Bless you for taking a friend through a dark time.
All my love, Quix
I have been thinking about you and what a wonderful friend you've been since we first met way last spring. I pray the best, quickest and most painless LP and surgery for you and the hottest of hottie docs in Recovery. I agree that you should let and make the docs take very good care of you and insist that they relieve your pain. I hurt for you and the reaction of your kids. Remember, grandchildren are your reward for letting your teenagers live!
You are very special to me and to all of us. We're on your side and all thinking about you. You even consoled me when I got on and bitched and moaned about being tired. Now I see that you did this after getting this totally undeserved news. There should be a No-Call List for people who already have enough bad news and enough stuff to deal with. I think you should take a "pass" on the next several offers of complications to your life.
Bless you for taking a friend through a dark time.
All my love, Quix
T...I wish I could jump through the screen, grab you and hold you and take in your pain and tears and then I would soundly kick the kids butts!
Maybe you should consider the hospital time just to get the rest you obviously need and at least you would get the care you also obviously need. In my history, when I am suffering from the pain of the Raeder's Syndrome and I have to go for out-patient solu-medrol treatment, I would do anything to have a bed to be in where someone else would look after me and I would have nothing to worry about. However, it won't happen here in my province unless there is something life threatening happening due to the fact that there are NO beds.
Please listen carefully to your doctor if he does offer you extra care because the offer might not come again and I think that it would be extremely good for you!
Best of luck for you and I will be thinking of you.
Here's hoping that your LP on Friday goes without a hitch and you will soon be on the road to recovery (but don't pass up an opportunity to get some well deserved rest!).
Rena705
Maybe you should consider the hospital time just to get the rest you obviously need and at least you would get the care you also obviously need. In my history, when I am suffering from the pain of the Raeder's Syndrome and I have to go for out-patient solu-medrol treatment, I would do anything to have a bed to be in where someone else would look after me and I would have nothing to worry about. However, it won't happen here in my province unless there is something life threatening happening due to the fact that there are NO beds.
Please listen carefully to your doctor if he does offer you extra care because the offer might not come again and I think that it would be extremely good for you!
Best of luck for you and I will be thinking of you.
Here's hoping that your LP on Friday goes without a hitch and you will soon be on the road to recovery (but don't pass up an opportunity to get some well deserved rest!).
Rena705
I'm sorry your eye has given you more trouble T. That's the last thing you need right now. At least your neuro is on the ball and doing all he can to help you. Maybe he is right in admitting you, the rest would be the best thing for you right now.
I can't believe your kids wouldn't pick up your prescription. You have done so much for them and ask so little in return. Hopefully they have realized what they have done and are sorry for it.
Your neuro is so right that a healthy person would have probably gone over the edge with the news that you have gotten. I myself am in awe of how you handle everything, but having said that, you need to look after yourself now. Don't worry about others or anything else other than just doing what you need to do to feel better.
I hope the ON lets off soon and that you feel better. I pray that everything goes well with LP on Friday.
Sending lots of gentle (((((HUGS))))) your way.
Praying for you daily
Moki
I can't believe your kids wouldn't pick up your prescription. You have done so much for them and ask so little in return. Hopefully they have realized what they have done and are sorry for it.
Your neuro is so right that a healthy person would have probably gone over the edge with the news that you have gotten. I myself am in awe of how you handle everything, but having said that, you need to look after yourself now. Don't worry about others or anything else other than just doing what you need to do to feel better.
I hope the ON lets off soon and that you feel better. I pray that everything goes well with LP on Friday.
Sending lots of gentle (((((HUGS))))) your way.
Praying for you daily
Moki
Thanks for the prayers,little rough today.Had to call neuro this afternoon,last night my left eye started giving me trouble,this morning very little vison and terrible pain and had difficulty walking.I truelly beleive its stress related.DR called in prednisone,but my kids refused to pick it up,that was heart braking,especially all I do for them.But I'm done they can help themselves from now on.My neuro made me promise that regardless of how I feel I'll get the LP done on friday,He said if I was worse tomorrow he'd admitt me to the hospital for 5 days for solu-medrol , some physical therapy and just plain old rest.He stated that the news I received would send a healthy person over the edge.
Yorkie,
I hope that your test are scheduled soon,especially before the first of the year.Dr.K is a special person.
I couldn't take ultram.I had the same results.Now valium I can take.
Glad you got your eye exam done.
My friend is doing really good , she's been over for the last 2 days and we've done lots of talking,I told her if someone doesn't have MS they aren't gonna understand and its easy for family members to not understand.
Gonna end this as I'm dealing with terrible ON today .
To everyone your in my hearts and prayers
T
Yorkie,
I hope that your test are scheduled soon,especially before the first of the year.Dr.K is a special person.
I couldn't take ultram.I had the same results.Now valium I can take.
Glad you got your eye exam done.
My friend is doing really good , she's been over for the last 2 days and we've done lots of talking,I told her if someone doesn't have MS they aren't gonna understand and its easy for family members to not understand.
Gonna end this as I'm dealing with terrible ON today .
To everyone your in my hearts and prayers
T
God Bless You through all of this!! As we come into the holidays , prayers sometimes get put aside for other things. But I assure you, you will be in mine.
Take care ,
nanadee
Take care ,
nanadee
I am so sorry for all that you are going through, you will be in my thoughts and prayers. Life can be very hard at times but atleast we have these forums to talk to those who are going through the same things as us. My god be with you and and help ease the shock of all you are going through in your life.
Mooers777
Mooers777
Hi, T. Yeah, maybe a train that gives us a ride would be better, since we're not walkin' all that well. :)
Every night, I ask the Lord to guide our doctors in dx'ing us and treating us.
No, I'm not doing any better. Just waiting to hear from Clevelands scheduling dept. for the new tests Dr. K wants. She said they're pretty busy but I am still hoping they'll have some slots before Christmas.
My D.O. prescribed 50 mg. of Tramadol (generic Ultram) last week for the pain, and whoa baby, if I take more than one, I end up with a killer headache, so bad that the base of my skull is throbbing and my eye sockets ache. I am supposed to be able to take 4 a day...but more than one and I'm so sick. He also prescribed Valium and I get the same reaction, so I am wondering if they could be interacting with the pred left in my system.
I had my eye exam yesterday, and the only thing the doc saw is that one of my eyes goes out a bit, and I have the earliest beginnings of cataracts, but she said it could be the solumedrol and pred. made them look worse. She said if Dr. K wants to talk to her, she'll gladly talk to her. My vision has only worsened a very slight bit, so that's good news.
If these next tests don't show anything, I am back in Limboland.
Still, like you, I intend to enjoy the upcoming holidays...you're right, being with family & friends helps.
I hope your friend will realize that suicide is not the answer.....you're an angel to take the time to reassure her, with all you are going through...I understand why she is thinking it...but I can't help but believe there is a reason we are each going through these medical problems...just don't know what it is yet.
Right now, you are at the top of my prayer list.
Hugs,
Sheila
Every night, I ask the Lord to guide our doctors in dx'ing us and treating us.
No, I'm not doing any better. Just waiting to hear from Clevelands scheduling dept. for the new tests Dr. K wants. She said they're pretty busy but I am still hoping they'll have some slots before Christmas.
My D.O. prescribed 50 mg. of Tramadol (generic Ultram) last week for the pain, and whoa baby, if I take more than one, I end up with a killer headache, so bad that the base of my skull is throbbing and my eye sockets ache. I am supposed to be able to take 4 a day...but more than one and I'm so sick. He also prescribed Valium and I get the same reaction, so I am wondering if they could be interacting with the pred left in my system.
I had my eye exam yesterday, and the only thing the doc saw is that one of my eyes goes out a bit, and I have the earliest beginnings of cataracts, but she said it could be the solumedrol and pred. made them look worse. She said if Dr. K wants to talk to her, she'll gladly talk to her. My vision has only worsened a very slight bit, so that's good news.
If these next tests don't show anything, I am back in Limboland.
Still, like you, I intend to enjoy the upcoming holidays...you're right, being with family & friends helps.
I hope your friend will realize that suicide is not the answer.....you're an angel to take the time to reassure her, with all you are going through...I understand why she is thinking it...but I can't help but believe there is a reason we are each going through these medical problems...just don't know what it is yet.
Right now, you are at the top of my prayer list.
Hugs,
Sheila
you have to be be feeling pretty grateful right now to have such a wonderful doc. who actually care's for you. My thoughts are with you.
april
april
Wow, what a lot to absorb. You will be in my thoughts and prayers. May you continue to have the strength to deal with what comes your way. You are a person of grace and spirt, and I'm so honored to have you and everyone else here to "talk with".
I am so sorry i was so late to send you my thoughts and prayers..please forgive me... i have not been feeling very well and haven't been checking the posts since the surgery but today i just wanted to check in... and just read your post... i know you have been through so much and now all of this...
it is awful to be hit with so much at one time... i do understand but i also know you are a very strong individual and such a support to so many of us... YOU will get through this... YOU will continue to be strong and feel the love, support and encouragement from your family and friends... WE are here for you... I am here for you... just as you were for me and many others... I know it is alot to absorb but you will get through this... feel the LOVE and HUGS and especially the PRAYERS.
Love and God bless,
Frann
Geezz Yorkie I'm disappointed it ain't a train.I thought it would give me a ride.
When its all said and done thats what we have to have, a positive attitude not only in the Lord but in our DRs.
How ya doing, any better?
T
When its all said and done thats what we have to have, a positive attitude not only in the Lord but in our DRs.
How ya doing, any better?
T
Girl, remember, you are INVINCIBLE! You are woman! Your positive attitude is truly what is going to get you through it. Please believe, there is light at the end of the tunnel, and it's not a train!
Hugs,
Sheila
Hugs,
Sheila
Even when all looks bleak,theres always another side.Life goes on,maybe not with a smile everyday,or pain free everyday.Ya know we all have these lingering symptoms.Some of mine have names,but not repeatable on the net.
I look to humor as it gives me releif and if I didn't have that humor,days could get bad.
As bad of a day I was having yesterday,last evening I had to set that a side.A dear friend of mine has MS and has not been coping very well lately.To my amazement she was talking suicidal,as exhausted as I was we talked for almost 3 hours it was well after midnight before we said goodnight.
I called to check on her and she was feeling a little better today,but she went and picked up her new mri report and she now has multiple lesions in her spine and thoracic,she definately was in a panic mode and ask if she could come over.Well of course,I wasn't gonna turn her away.I read her report and reassured her that none of the lesions were enhanced,they did not completely cross the spine and there was no spinal atrophy or stenosis.Thats a plus in her favor.I explained that these lesions according to the report that they were old and could of been there for a year or so.
She definately was releived when she left,but I'm worried as she is a mental wreck right now.She ask how do I cope and I told her it was one day at a time and not dwelling on tomorrow or what could be or never be.
We have the same neuro
Everyone here should keep going, a movin and a grovin,as we have so much to offer to our families ,friends and each other here.in order to conquering a disorder diagnosed or not is persistance as we all know our patience can wear thin waiting or not knowing.
Moki I'll share with you and zilla !!!!!!!! I won't be selfish.I'll even share my neuro!!!!!! I know that my humor doesn't always get me through the bad humps, but all of you wonderful people here do.Thats a blessing.Even though its gonna be a rough road after the first of the year,I definately am truelly blessed with my local doctors and all of you,I can't think of a better or stronger team.
Craig,I hope I didn't make ya speechless for to long,you have so much to offer us here.
For now I'm gonna enjoy the up and coming holidays,my daughters home coming(oh I can't wait) being with family and friends.
For now my Drs are just gonna control the pain, they added neurontin today to help with the on going burning in my right torsal and leg. I can't ask for more than that,except that the LP is pain free,but the area they are doing it at I have to lay flat for 48 hours no if's, ands or butts.I need the rest and the kids will be home,so that all helps.
To all thanks again for the hugs,prayers and tears.One last thought stay positive,its have the battle.
T
I look to humor as it gives me releif and if I didn't have that humor,days could get bad.
As bad of a day I was having yesterday,last evening I had to set that a side.A dear friend of mine has MS and has not been coping very well lately.To my amazement she was talking suicidal,as exhausted as I was we talked for almost 3 hours it was well after midnight before we said goodnight.
I called to check on her and she was feeling a little better today,but she went and picked up her new mri report and she now has multiple lesions in her spine and thoracic,she definately was in a panic mode and ask if she could come over.Well of course,I wasn't gonna turn her away.I read her report and reassured her that none of the lesions were enhanced,they did not completely cross the spine and there was no spinal atrophy or stenosis.Thats a plus in her favor.I explained that these lesions according to the report that they were old and could of been there for a year or so.
She definately was releived when she left,but I'm worried as she is a mental wreck right now.She ask how do I cope and I told her it was one day at a time and not dwelling on tomorrow or what could be or never be.
We have the same neuro
Everyone here should keep going, a movin and a grovin,as we have so much to offer to our families ,friends and each other here.in order to conquering a disorder diagnosed or not is persistance as we all know our patience can wear thin waiting or not knowing.
Moki I'll share with you and zilla !!!!!!!! I won't be selfish.I'll even share my neuro!!!!!! I know that my humor doesn't always get me through the bad humps, but all of you wonderful people here do.Thats a blessing.Even though its gonna be a rough road after the first of the year,I definately am truelly blessed with my local doctors and all of you,I can't think of a better or stronger team.
Craig,I hope I didn't make ya speechless for to long,you have so much to offer us here.
For now I'm gonna enjoy the up and coming holidays,my daughters home coming(oh I can't wait) being with family and friends.
For now my Drs are just gonna control the pain, they added neurontin today to help with the on going burning in my right torsal and leg. I can't ask for more than that,except that the LP is pain free,but the area they are doing it at I have to lay flat for 48 hours no if's, ands or butts.I need the rest and the kids will be home,so that all helps.
To all thanks again for the hugs,prayers and tears.One last thought stay positive,its have the battle.
T
Your post shows humor and courage, my prayers are with you. Hope all goes well with you and 2008 will be better! Take care.
Woman you are amazing!!!!! I read your post this morning at work and started to cry. I felt for you so much. I just wanted to be able to put my arms around you. I am now home and have read your update. Sure enough there was the humor!! You are an inspiration!!
I am so sorry that so much has happened to you and agree with Zilla that you don't need to pull ahead anymore. Time now to allow the docs to help you and heal.
I'm just so thankful that you have such a caring medical team who is going to help you now and to have one good looking is a much deserved bonus! (too bad he took the tie off haha)
As much as I know you have strength, courage and humor, it sometimes is not always enough to help during those down days. For that my friend we will always be here. We may not be able to help you in any other way, but we can be there to support you and be with you through this process.
My thoughts and prayers are with you daily.
(((((HUGS)))))
Moki
I am so sorry that so much has happened to you and agree with Zilla that you don't need to pull ahead anymore. Time now to allow the docs to help you and heal.
I'm just so thankful that you have such a caring medical team who is going to help you now and to have one good looking is a much deserved bonus! (too bad he took the tie off haha)
As much as I know you have strength, courage and humor, it sometimes is not always enough to help during those down days. For that my friend we will always be here. We may not be able to help you in any other way, but we can be there to support you and be with you through this process.
My thoughts and prayers are with you daily.
(((((HUGS)))))
Moki
T, You leave me speechless and so inspired at the same time. You are one strong woman!! I am praying for you and will be especially praying for you on Friday for a painless procedure. Thanks for your inspiration. I am sure you have made many people on this forum want to keep going, including me.
Craig
Craig
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