Hi JJ, thanks for the kind words. I guess I am not doing so well at the moment. I had such high hopes that the Rituximab was going to not just make my joints feel good & that it was going to maybe settle some Neuro things down as well.
Instead I managed to catch many infections during my treatment & now when I'm starting to get over all of it......I feel like some things are worse not better. I have had a troublesome few days & deep down I had this silly notion that Rituximab was going to be my saviour of some sorts. I am very aware of how stuck I would be if it only works for arthritis & I end up with being dx'd with something that requires DMD.
I'm managed to see my General Physician during my time in hospital & he said some things that sort of took me back. Like....I heard from your Neuro & that your being "worked up for MS" & even though I know realistically that would be the case.... it took me by surprise. I was told last year I had MS & it was then you don't have MS so I've gone to this Neuro in the hope I will be assessed for all possibilities. I do not want to go down the wrong path & end up years later someone saying...oops sorry!!!!
I feel that my MRI is meeting DIS in space but not DIT & so I probably won't be told anything during the next appt. I don't really want CSF taken as most of that area in my back is fused due to having a Spondyloarthropathy. I will wait & see.
The Neuro had said something to me about "intention tremors" which appear to be when I am reaching out more to things. This other tremor is dominant to my right side & I will hopefully find out more from my Neuro .......if it is there to show him.
Thank you again. I really can have trouble with the explanation of things & my communication. I'm just glad I have people like you who are not like others who are laughing at my misfortunes.
Take Care, karryon.
Don't sweat it babe, just about all of us have dealt with 'cog fog', it can make communicating via text and or verbally quite difficult sometimes lol a lot of my post take me hours to write and I still have the ability to confuse, though i'm trying pretty hard not too it still happens..... relax your fine!
Tremor in general is common to neurological conditions, but there are a lot of non neurological conditions that can cause different tremors, eg alcoholism, diabetes/hypoglycaemia, medication, psychological, thyroid etc and there is a benign tremor that runs through family's too.
I call my self a bobble head lol, i have blocks of time were from the moment i wake, my head is visibly tremoring from left to right every second, no no no no no tick tick ticking like a clock on the wall. I know its there all the time, because at the end of the day or when i'm fatigued it shows its self, but with these blocks of time when its always there, I have this uncomfortable feeling that goes with it and that is hard to acclimatise too when it first starts.
I have a combination of tremors, I never stop moving any more, I blame gravity. There's a fine or gentle visible rhythmic rippling with a little periodic jerk but it gets bigger or harder the more I do, the more fatigued i get, the more active I am the bigger the rhythm and the more visible it becomes the harder it is to function.
The worse it gets is when i add, very hot or cold temperatures and a good dose of adrenalin, adrenalin kicks it into shoot me now territory :D Hobbo my constant companion (golden retriever x lab) gets quite upset, he sticks to me like glue and goes into protective mode, lol the bugger just wants to lay on top of me and he's heavier.... crush much lol
The other is the jerking kind, (intention tremor) basically it makes you miss your intended target, eg go to push a button and right at the end of the action your hand jerks and you miss, can't tell you how many times i've stabbed my self in the face with my fork, or thrown something across a room lol
If i lift any limb 'now', the tremor is obvious though the left has a different rhythm to the right which is weird but what's one more weird when you're already a bobbled headed human string puppet lol
Have a read of this tremor article is explain the different types, an easy read though there are many better ones on 'we move .com' but this worth the read
http://www.ninds.nih.gov/disorders/tremor/detail_tremor.htm
Cheers.............JJ
Sorry again. I'm a bit bad at getting my point across. It is in the hand & foot. When I say leg & arm I'm including the foot & hand but just haven't said it.
Can I delete this as I feel like a fool now....:-( I have to explain things more clearly to my Neuro in a couple of weeks & I if I can't even do it this way then it is a lot harder with my speech.
Sierra, I think you were probably explaining it. Only for me it is most frequent in the right leg/foot but can be in the right arm/leg. Thank you.
Just feeling a bit embarrassed. karryon.
Sorry about the mix up in the paragraphs. The last is supposed to be 2nd paragraph. It's 6.30am in Oz.......sorry:-)
Thank you for the comments. To try & explain better I would say it is a rapid back & forth movement mostly affecting my right leg but sometimes arm as well. It used to be invisible to others but a nurse recently asked me how long I had had the tremor when I was in hospital.
To correct myself on something in that when I say my voice (it was late in Oz) I actually should have said head & I can speak but you feel trembly because your head is also rapidly moving. It can be with me for 20 minutes but it can also be hours. I hope this is making sense. Thanks guys :-)
I first noticed it after my showers & as it was in my legs I thought it was maybe really poor muscle weakness back then. I don't think that now. I
I think I know what you mean. I get it on the left side of my body. It's especially noticeable when I'm sitting still.
It feels like the area from my waist to shoulder is tremoring, like the tremoring you get in an extremity. Like I've had a few too many shots in my espresso. Or when you get really hungry (low blood sugar) because you've waited too long to eat. But it happens whether I've had caffeine or not or when I've just eaten.
For a while I thought it was palpitations and even went to a cardiologist.
When I told my original neuro about it he seemed to not be surprised, though he offered no explanation either! I have bad tremors in my hand on that side that never go away, so I just figured its related to the same neurological blockage/damage.
Does it sound like the same thing for you?
Voice too... This may not be ms related, but sounds neurological. Can be caused by other neurological diseases, thyroid conditions, and even stress/anxiety. I have tremors, but only on the left side. A call to a Neuro may be in order.
Are you diagnosed with ms?
Hi - I'm not diabetic either and don;t really know what low blood sugar feels like. Could you be a bit more specific about the symptom? Is it a constant vibration? A muscle contraction?
Kyle