New Week!

[kwarendorf]

Mine's quiet, how about your's?

Kyle

[anon07072023]

Looks like I have elevated values for cystic fibrosis, so now they're sending me to their cystic fibrosis clinic.  My mom's gene's are way too strong in my body.  I'd like to give them back.  My poor mom went thru so much.

And no lymph node biopsy - the oncology tumor board has decided in my case they should, instead, do the exploratory surgery in my abdomen. :-/

[PastorDan]

Aw, gee, Ren...  So very, very sorry.  We will pray for comfort and peace for all involved.

[rendean]

Despite my psuedo-relapse, I am goiong to spend the latter part of this week and part of next with my dying Mom. Her heart is failing quickly and this will be some good quality time with her that I am looking forward to.

See you guys in a few....

Ren

[PastorDan]

Did get blood drawn for those tests yesterday.  Funny, for three tests they drew four vials of blood.  Surprised how weak I was afterward; crashed last night.  Heat's horrible here.

[anon07072023]

Mine is a busy week as usual.

I had an eye exam today to get approval to start Plaquenil for my systemic scleroderma.  And I just got home from a pelvic/lower extremity MRI to make sure there isn't anything more/new going on in that area - hips, muscles, tendons, etc.

Tomorrow morning is a follow-up appt with my GI from my double scopes.
Then heading up to Denver to Nat'l Jewish to get my results of my cystic fibrosis test, pulmonary stress test, and esophagram.

AND my oncologist is supposed to call me tomorrow morning to see if the tumor board surgeons have either OK'd removing a lymph node for biopsy or exploratory surgery.

Thurs I have PT for scleroderma/MS. My last appt since I've pretty much reached my PT allowance with my insurance. Then I'll be picking up MRI CDs/reports to bring to my oncologist for next week's appt.

Also, need to make sure my disability advocate's secretary gets me all my social security forms printed out that they filled out for me for my appt next week. They're dragging their feet just to print out these forms.

I have PTSD counseling to end the week.

As you can see - still no time off since I've been on short-term disabillity! Oh well....  

[maxthecat43]

We're still trying to get completely moved into one place, and out of the other.  Trying to unpack as we go too, because of a looming surgery.  I feel like I've been stuck on my cell phone everyday, due to problems with the phone land line, and the cable & internet issues.

We bought a used portable air conditioner yesterday- so that should help.  (It's hot for the Seattle area.)  Thankfully, we still have the old window unit in the place we're moving out of, or I'd never be able to finish this move...

My latest relapse is still making life interesting.  Frustration seems to the the order of the week for all of us.  Try to stay as cool as you can everyone.

Hugs,
Tammy

[PastorDan]

Sorry.  So FAR this week, I have made ants, bees, and robins homeless through repairs on the house & property.

I have lab orders from 2 docs in opposite directions; hoping I can get it aall done at one location near one of the weekday jobs...  to which I'd better get going.

Blessings to all; we've already prayed that God pours out extra good stuff on all of you this week!

[PastorDan]

The heat is slowing me down, but since we've been dry, I am trying to finish the outside projects.  Poured concrete for the first time in my life on ... Friday or Saturday.  Last night I was on a ladder replacing some decayed trim around the front porch roof.  So fat this week, ...  Drat.  Fkrgot what I was typing.  I'll get back to you.

[kwarendorf]

Real feel temps in Greater NYC 100º + for the rest of the week. Big Fun!

[EJNILB]

My wife's younger cousin is visiting for the summer from Texas. She'll feel right at home this week with the weather in Massachusetts hitting high 90's. They have run me ragged these past few weeks. Fortunately, my wife always asks how I'm doing and whether I need a rest. She is very understanding. Sometimes it's been a lot to keep up but I'm trying to show our visitor everything that lovely New England has to offer.

Eric

[carrieblackwell77]

I hope this week is quiet.  I need rest after this weekend being so full of symptoms that had/have me worried.  

I was supposed to go help my mom paint but our schedules clashed and she got it done without me.  I'm glad to help but I'm secretly glad I don't have to right now.  Bad daughter!

Alex, good luck with the trial!  I hope they get more efficient for you, jeez!

Sarah- All your clover, rose, honey, strawberry jam loveliness sounds amazing!  I'll be over with some fresh biscuits!  LOL  I'm sorry you crashed though.  

[HVAC]

Sarah whoa.


Alex

[SarahL2491]

gosh darn, how could I forget to mention my failed "swan dive" in the kitchen this week....unfortunately it was witnessed by DH who totally turned white!  My right foot didn't come up when I told it to and I tripped over the small ice chest I always carry in the car.  The left foot did, but the right one didn't and down I went......oops............so have sore knees and such.  Sorry he had to be there but now he knows how quick I can "go down", more ammunition for convincing him I need a dog LOL

[SarahL2491]

My week is quiet too.......but its just too gosh darn hot here, I've been living in front of a fan with my cooling vest on......I thought I came up here to get away from the heat down South................egads

Did get my clover picked by going out at 4am (its broad daylight here at 4am) while it was cool, now to collect enough rose petals and its time to make honey again.

Everyone have a good week, I hope Alex's tests get scheduled correctly.  I've tried to stay away from doctors up here for the same reasons.  My little ortho doc, who I am truly going to miss, having had him for over 25 years, is a jewel....perhaps I will visit him one more time on the way down state as I leave.

Hoping strawberry fields will be opened next week and will go early, so can get my batches for jam.

[Corriel]

A few minor appointments for me this week ending with an appointment with my nurse to learn my new autoinjector and start my full dose of Rebif.

It is really hot here again this week so I am trying a new portable a/c to help me out.

Hooe everyone has a good week,
Corrie

[kwarendorf]

"They act like I have all the time in the world"

I hear that! I had an LP last week. This was the second LP with my current neuro (who I LOVE). The first time I was told that I needed to take the next day off and rest. I was fine! This time I told him I simply did not have the time to take off. He said OK. But then why did I have to the first time!?!?!

[HVAC]

I am waiting to see if got into my Cancer Clinical Trial. I had a bunch of tests Friday. They may throw me out of the trial. I threw a fit Friday because they had me scheduled for these tests and forgot to get a Doctor's order. I had to wait 2 1/2 hours for them to get it straight before they could draw blood. I get tired of the screw ups. I spent two hours two weeks ago at Duke fixing somebody's screw up, turns out I did have to be there at all they had me scheduled for a test I had the day before. They act like I have all the time in the world and I enjoy waiting for hours. Duke is supposed to be a top notch hospital but they sure screw up a lot. Sometimes I think I am at the VA, but the bills are higher than the VA.