Limbolanders - Count Off!

[Quixotic1]

Because this forum is so inclusive we have as many or more people still in Limbo than diagnosed.  But, we haven't taken stock of them for several months.  I need a good listing of you so that when we answer we don't have to remake the wheel.  Also, I would apreciate all who haven't done it yet, to write up a summary of your story so far and put it on your Journal in your Profile.  That way any of us can come up to speed when we talk to you.

ALL of you who post or might post please help with this:

History of distinct attacks? Yes/ No
MRI lesions;  Yes/No
LP : Positive/Negative
How many Neuros so far: #

Let's keep this bumped up and try to reap the whole forum!

Thanks,

quix

[suzieqs]

History of distinct attacks: yes 4
MRI Brain lesions yes 1 6mm round right ventricle wall, also prominent sella(empty sella syndrome)
How many Neuros so far-none since MS being considered, saw one in FL while visiting sister due to an attack that hospitalized me for 5 days. Don't remember if they did an MRI down there I haven't gotten all of my medical records from there, but that's where they started my SSD at that time.

[johnniebear]

History of distinct attacks/remissions? /   mild left eye pain for 2 weeks-  not sure if that counts..

MRI  brain lesions;  Yes-3
LP : just one O Band
How many Neuros so far: # 3
Has MS been considered? yes
VEP- positive-
Spine MRI   One lesion at C5-C6  maybe

[mewright]

History of distinct attacks? Yes
MRI lesions;  Haven't had MRI yet
LP : Not tested yet
How many Neuros so far: 1 appt on March 22nd @ 8:30

Maryellen

[amers789]

Hi all Limbolanders:

History of distinct attacks: yes four episodes: Diagnoses are bilateral TN and Undifferentiated connective tissue disease
MRI Lesions: Yes multiple in periventricular and frontal lobes
LP: positive for 4 oligoclonal bands found in CSF and not in serum as well as a elevated IgG index
Neuros: Two, possibly going to go for 3 but waiting to meet again with my rheumatologist and see if she can help figure this out...

Quix put my summary in my journal section:)

Have a great day one and all. Amers

[jenandherboys]

History of distinct attacks? Yes, 12/2/2009 til 2/14/2010 and now realize 09/2009 til 10/2009 was more minor attack
MRI lesions;  Yes, 2 foci of increased signal within the right frontal
deep white matter on brain MRI, no enhancement after contrast
LP : Negative
Blood work: only Vit. D deficient, all else normal

How many Neuros so far: 1 neurosurg. who said the bulging disk (which I've had >1 year as of MRI in 02/09) was not the cause of my sx's-more likely due to "spots" on brain MRI, he referred me to neurologist for further eval.; so far all sx's are classic MS, but once LP was clear, neuro sort-of dropped out of sight. Spontaneous, near complete, remission of sx's over several days-sx's "gone" as of 2/14/2010.

[Queenfan]

History of distinct attacks? Yes/ No -YES
MRI lesions;  Yes/No - none found in brain; no c-spine MRI done yet
LP : Positive/Negative- NEG.
How many Neuros so far: # - ONE, so far.