Limbolanders - Count Off!

[Quixotic1]

Because this forum is so inclusive we have as many or more people still in Limbo than diagnosed.  But, we haven't taken stock of them for several months.  I need a good listing of you so that when we answer we don't have to remake the wheel.  Also, I would apreciate all who haven't done it yet, to write up a summary of your story so far and put it on your Journal in your Profile.  That way any of us can come up to speed when we talk to you.

ALL of you who post or might post please help with this:

History of distinct attacks? Yes/ No
MRI lesions;  Yes/No
LP : Positive/Negative
How many Neuros so far: #

Let's keep this bumped up and try to reap the whole forum!

Thanks,

quix

[Erin65]

History of distinct attacks? Yes, many.

MRI lesions;  Yes - but just one

LP : Positive/Negative...both

I've had 3.  May 1989..."trace proteins" (handwritten notes)...
                May 2010 : 5 bands = positive.
                July 2010:  1 band (done 13 days after a 5 day tx of IV SoluMedrol) = negative

Due to the lastest results, my May spinal tap has been ruled a "lab error" and this last one has been ruled the "accurate" one.  : /  Ergo, I don't have MS, according to my neuro.

How many Neuros so far: # 3  1989, 1995 and now.

[bairdy]

hi
history of attacks. not sure but progresive for few years now
mri scan 2 one brain one lumber two liesons not concusive for dx
Lp not yet
how many neuros 2  seeing second one in october

regards bairdy

[missy72450]

History of attacks: yes at least 4 or more that I know of
MRI: 2 lesions nonspecific
LP: results elevated protein and the SPILLED THE REST befor they did the MS panel
# of neuros 2

I see a Rheumatoogist soon

Missy

[janbubears]

Hi All

started in december 2009

numbness in left arm moved down to fingers hand ..

permanently numb not coming and going, neck pain .. limbs muscle spasms now have buzzin in head, legs.

dizzy spells, extreme muscle fatigue and general fatigue sleepy in afternoon.  extreme itching..

started off with spinal surgeon referal, for 1st MRI - he refered me to neurologist.

Had brain scan with contrast and 3 mri,s .

findings swelling on spinal cord, and hyperintensity on brain scan.  Awaiting results now from LP.

8 months on sx exactly same, had 3 x day meth/predisolone IV in hospital but they had no effect except my cognitive thinking shrper

jan xxxxx utterly totally fed up xx

[Pablo_Morphy]

History of distinct attacks?  Yes, at least two:  One 11 years ago and another one recently.  Both attacks involved eye problems (optic neuritis the last attack) and tingling (worse in second attack).
MRI lesions:  Recent MRI - Two lesions + optic nerve.  First MRI:  One lesion about 7 years ago.
LP:  No LP yet
How many Neuros?  Tricky question.  Several Neuros until seen by team of specialists who diagnosed me with Clinically isolated syndrome/likely MS and prescribed Copaxone 3 months ago.

[helen41]

history of distinct attacks- yes
MRI lesions- 1st MRI in 1997-can't r/o MS (settled on encephalitis)
                   2nd MRI in 2005- one lesion, several punctate, can't r/o MS (neuro said normal)
                   3rd MRI in 2010- numerous punctate lesions, chronic       microvascular disease
I've never had contrast or spinal MRI
LP-never
# of neuros 2
working diagnosis- narcolepsy, possible chronic fatigue, muscle aprophy NYD