Limbolanders - Count Off!

[Quixotic1]

Because this forum is so inclusive we have as many or more people still in Limbo than diagnosed.  But, we haven't taken stock of them for several months.  I need a good listing of you so that when we answer we don't have to remake the wheel.  Also, I would apreciate all who haven't done it yet, to write up a summary of your story so far and put it on your Journal in your Profile.  That way any of us can come up to speed when we talk to you.

ALL of you who post or might post please help with this:

History of distinct attacks? Yes/ No
MRI lesions;  Yes/No
LP : Positive/Negative
How many Neuros so far: #

Let's keep this bumped up and try to reap the whole forum!

Thanks,

quix

[ernnmer2004]

History of distinct attacks/remissions? Oh, I think so.
MRI lesions;  A few iffy spots
LP : have not had one yet.
How many Neuros so far: # 1  thinking I need to seek another.
Has MS been considered? Everyone who has talked to me, even Neuro #1, but was dismissed after MRI.  Then came all the blood.  Only abnormalities, Low B12 and Toxic B6.  I have been suplimenting B12 for 5weeks.  And do not take anything(not a multivitamin or anything herbal) else.  I eat healthy.  

Unsure what I next move should be.  Could it really be I am simply deficient in B12?  How long until I feel the results?

Any advice?

[JemmAus]

Oh I see the list:

Lesions: "extensive". Too many to count. Some up to 15mm in size.

LP: no. haven't got anyone to look after me afterwards. Though LPs have been ordered twice.

Neuros: 4 or 5 or  thereabouts. I lose track....

[JemmAus]

I suppose I need to be OFF the "diagnosed" list and back on here...........yipee.

[marymoto]

limbolanders count off hi ia m still in limbo first sx were vertigo in 2004 also nystagmus.then 2006 had first relapse numbness down right thigh, burning spasms, down thigh,difficulty walking,balance issues,got better after a long time,2009 numbness in legs, spasticity difficulty waqlking, balance issues, several relapses since then, ongoing visits to m.s clinic optic neuritis, afferant pupil defect, and optic atrophy,brisk reflexes, clonus in left leg,ongoing  numbness and tingling in legs worse in right leg and down right side.mri showed lesions in the pons area.waiting results of lumbar puncture forgot to say i have tremor, issues walking, dizziness,weakness in legs, and fatigue wow it fells could to get this off my chest. gp says m.s but neuro has to diagnose.

[mamiJ]

History of distinct attacks?
not sure...I noticed a patch on my upper back about 2 years ago that would tighten and the buzz for a few seconds and stop.

this has never stopped since it first started, but I never knew what it was, even though I asked every doctor I saw since it started and they all looked at me like I was crazy.

A little while after that, I started to feel the buzzing in my head.

In November 2009, I started to have paraesthia and shooting pains..which also has not gone away since

In June 2010, felt tightness in arms/chest/back, fatigue increased about 100% and legs/walking affected

August urinary problems and lump in throat/throat tightness

MRI lesions;  have not had one yet
LP :have not had one yet
How many Neuros so far: # 2

[Audrey_M]

History of distinct attacks? Yes
MRI lesions;  Yes- Multiple brain, no spinal
LP : Negative
How many Neuros so far: # 3

Was waiting for radiologist's report on spine before I posted.

It appears that many of my motor/sensory problems are due to degenerative disc disease. This would explain numbness and tingling, pain, hyperreflexia and tremors in my legs and right hand. DDD can also explain headaches, lightheadedness/dizziness balance and bowel problems.

Still don't know why I have so many brain lesions (which are atypical for MS) and cognitive problems with language and memory, along with blurred/double vision.