Momzilla's Neuro Appt.

[monotreme]

Hi forum family.   I heard from Zilla today and she is very very disappointed.  Her neuro told her that all of her tests were normal except for the BAER.  He said the BAER showed a CNS problem but he blamed it on the hearing loss as the cause of the abnormality.

She told him about her leg weakness and shaky legs, and having trouble standing.  She told him how her legs feel like they are going to buckle in under her.  He pressed down on her legs very hard and she had to work very hard to lift them while he was pushing  down.  She was out of breath after that and he asked her why.  She explained that it was very hard for her to lift them under pressure from someone holding them down.  

So he said he suspects a muscular problem and drew a CPK.  Her muscle enzymes have been normal other times.  He told her to come back in June.  He commented that he gives up, but she wasn't sure if he was serious or not.

She is so sad and disappointed that she may not be on the forum tonight, and she asked me to let everyone know what happened.

I can just feel her pain and disappointment right now.  Craig and I have been through this more times than I care to remember and each time it seems to hurt more.   More feelings of abandonment, isolation, being misunderstood.  All of us have been there at one time or another.  

So please, for Zilla' sake, for those who are inclined, let's storm the gates of heaven and ask for her to have peace, and strength to go on and move on to another doctor.  Someone willing to think out of the box and help her.

Zilla has always been there for us.  Now she needs our help.
Thanks everyone,
Elaine

[Fluffysmom]

I hurt inside for you.  

I'm sending up prayers for peace and comfort for you.  Your comments have made my day several times, and I feel like decking anyone who takes the wind out of your sails. You deserve so much more.

Rest, feel the caring we are all sending your way, and fight another day.

Big Hug (and I'm not normally the hugging type),

Kathy

[kitten o]

I AM VERY SORRY, KEEP LOOKING
WE ARE HERE FOR YOU.
HANG IN THERE.
BIG HUGS  KITT

[Want to feel well!!!]

Sorry.  This just isn't right.

Wanna
  

[cjacks]

Zilla  ,    I don't know why this is happening to so many of us .  There has to be some plan , somewhere , its just a mystery right now .  I am happy to walk this path with you ...  its so much easier with friends .  

I haven't been on much lately , I've been low mentally and physically.  This is all such a drain and influence  on who we are . We need to muster the forces with-in  ( again )  and show the world how strong we Limbo Landers really are.  

C. you are one who inspires , who laughs at this cr*p , fire the jerk and go one more round ...    I'm calling for a weenie roast on the ice flow, maybe we can sink the dam* thing.

We are all right here for you any time .      Love     :)       Jo

[denise61]

Hang in there, Dont let this get you down!! make sure your mind can live with this DRs. answers,  IF not move forward one step at a time. Best wishes,

Denise61

[LLWB]

I am just so saddened and disappointed for you. Take some time to just regroup, and then God will give you the strength to go on. Prayers & hugs, friend.Maggie

[Amyloo]

I'm lifting you up in prayer friend.  What ever is wrong with you WILL be uncovered.  You are not going down this road alone.  Take a couple days, then ask God to show you your next steps. Easy for me to say, right.  I'm sorry you don't have info yet.  You will.
Love to you, Amy

[Freespirit24]

That sucks I am so sorry. I hate this happening to any one and feel for you deeply. I am sending prayers and angels. I know right now you feel terribly sad and disheartened, we are all here holding you and sending *hugs*

Sarah

[Super_sally888]

Zilla, so sorry girl.  Why do good people have to go through this!  

I am so mad for you!

I am so sad for you.

Hang in there.  Don't give up!

Maybe time for a second opinion. Praying for a new doctor for you!

Sally

[CtResident]

I used to call this The Big Buildup For The Big Letdown.

I am so sorry to hear the disappointing news; have asked St. Anthony (saint for finding things) to help you "find" a new doctor!!!

Suzanne

[biowham]

I'm sorry to hear about this tremendous disappointment. But you know that we all know that you have a genuine problem that needs to be addressed. I'm just so sorry you're not getting answers.

E

[Wobbly]

Sorry to hear that you didn't get any answers to help you with you pain and situation.  Take a few days to deal with these answers and when your ready just try again.  I feel so bad for you and everyone of us that has to go through these appointments.  Take care

andie

[willowwoman7]

I am praying for your doctor to have wisdom. I totally can relate. I went to the doc with my first symptom at 28. I wasn't dx'd till 51! Why? Because when that first doc told me it was stress, I listened to him instead of my own body. Don't give up until they can give you a reason why everything is going on. Bathing you with prayer.

[LATW]

I am SO sorry. :(

I have already said a prayer for you.

I can not imagine going through all of this and still having no answer.  I wish you could come to Indiana and see my MS doctor...

LA

[Quixotic1]

I, too, logged on to hear your report.  I'm so, so sorry that this was yet another dead end.  You have suffered so much for so long not to have some answers!!

Ess and I are going to sit and be furious together.  You are in our hearts!

:(((  Quix

[Rena705]

My thoughts are with you honey and I can feel your pain as sure as if you were right next to me...I just wish I could take it away for you.

Lots of Hugs,

Rena

[floridamom2]

You are a wonderful friend and I am  praying for strength for you to get through this!!  Hang in there, I know limboland sucks but we are here with you!!

Love and HUgs!!
Kristin

[Heather3418]

Prayers are going up in earnest......

[syndismilez]

I am sad for her.... My heart sinks...  
Ouch.....
cyndi

[SOONERMOM]

I guess it just doesn't seem possible to have so many things going wrong and they STILL can't give you a reason why.  I was so hopeful that this neurologist was going to be the "one"!  

You hang in there Hot Zilla Pants!  We are all praying and thinking of you!!

Stacey

[wingnut19]

My heart breaks for her and of course, I will add her into my prayers....My God, what is going on with these doctors.....??

Like Ess, I am enraged at this injustice and we all know this feeling too well....

WE LOVE YOU ZILLA!!

Tammy

[essdipity]

Oh my goodness, I'm so sorry to hear this. I logged in just in hopes that Zilla had posted herself, and that she had some breakthrough news.We will have to retrench somehow and find another path for her to try. This is just so maddening. So I will sit here and be furious awhile, and then try to think and think. Of course she will be in my prayers.

ess