We Limbolanders Don't Have to Keep Suffering Every Summer!

[MsWobbles]

Hey, MSers, Limbolanders and all,

I was flipping through my excellent, free MSAA magazine "The Motivator" and it hit me when I saw some of the ads in the magazine:  Just because we Limbolanders are not officially diagnosed with MS doesn't mean that we can't go ahead and treat our condition ourselves!  Hey, next year before summer even starts, I'm going to order a cooling vest and other cooling clothing articles to hopefully avoid some of the awful exacerbations I have had this summer (feel like I'm losing my vision)!!  If you are affected by summer heat and not diagnosed, I suggest you do the same!!  And I actually saw something in "The Motivator" summer edition that I had never seen before which gives me great hope:  On page 33 there is something called a "standing wheelchair."  Yep, if you're not strong enough to hold yourself erect, you can be strapped in and it allows you to get around upright just as before!!   You can use it in your home or anywhere!  It reminds me of what the technicians working on streetlights or stoplights might use.  There's hope!  We don't have to remain flat in bed if we're too weak to stand up.

Weakandfalling

[MsWobbles]

If they said "MS" for you, then it looks like you're out of Limboland!!  Congrats!  Just don't have any more MRIs so they cannot refute it or take back your diagnosis!!  It's hard enough to get diagnosed these days!!

You make a good point that treating and reducing symptoms could interfere with logging our symptoms.  Yep, I guess if I had been using a cooling vest this summer, I would not have had the symptoms that required me to go to the ER and then I would not have been ordered an MRI which, for the first time, turned out to not be negative!!  Your point is well taken!

WAF

[Wobbly]

thinking ahead is a good idea... everyone should try to help with their symptoms.  I know it's not easy being in Limbo and thinking about answers.. been there along time and still don't belive I'm out yet...but they said MS..

I know when you are looking for answers, you want to know your symptoms and it's sometimes difficult to help yourself fix your symptoms when you want to record them...if you know what I mean??  hehe

but, yeh... record your symptoms, then help them and record how your helping them..
good idea
take care
wobbly
dx