I'd steer clear of putting a name to the problem, i.e., printing out your research.
Just do your best to describe what you are experiencing.
Some of the burning you describe does sound like what I get when I'm on my feet, or if my feet are hanging, or if I sit too long and it's not related to my MS. It happens exactly like you say - when you are on them too long, etc. I know mine is just fluid. When it's really bad, they will still hurt in the a.m. This may be something best to talk over with your regular MD.
See how the discussion goes, I hope the Dr. asks all the right questions and that you have a pleasant visit where you feel at ease describing problems and history.
When do you go?
-Shell
Hi Jess, I agree with Shell. Don't offer your symptom a name. If you want to mention it, I would describe it to the doctor in words that you had prior to seeing the thread. I would let him/her put a name on it.
I would also only mention it in a non-chalant way if the discussion leads to something like that. Since the burning feet were "not classic of MS" I would be hesitant to bring it up at all. I have found if you bring something up that if new it sort of throws them off----I have no idea why.
Doctors can such incredibly confusing people. I don't know why.
This is all so confusing I know.
(((Hugs)))
Red
Oh Jess, I forgot---were you thinking about talking to your PCP or neurologist. I think talking to your PCP is fine--just not in conjunction with the neuro stuff.
Red
Thanks guys!
I brought it up to both my regular doctor, when I went to see him at the end of 2009 about the possibility of MS, and with my first appointment with my current neuro. I had so much else to talk about that I did not really give much attention to talking about the foot thing. And, I've had it for so long that I kind of started assuming it was just normal. I never brought it up after that first time.
I'm going to just let it go for now.
Shell, I'm pretty sure mine is not fluid. It is a constant pain, in almost 10 months it has only gone away for those 5 days with the steroids. I see my neuro again next wednesday to find out the results of my LP, and to try to get him to help me understand why he is reluctant to start me on DMD. That conversation will be hard enough for me without bringing up new issues LOL
~Jess