Need Advise

[Juneau114]

Hi, I am new to this site, have been researching information for months, I am in health care, and still cant get any help.
I became very dizzy and passed out, fell down a flight of stairs 17 years ago. A neurologist said i had a mild case of MS then. No major symptoms until 5 months ago, I got dizzy, passed out and hit my head on a marble table. Since then, Post concussion syndrome is the only thing 2 neurologists will talk about
I am extemely light headed, bad headaches, blurry vision, very tired, weak legs, arms and hands. And I cry alot.
my ct and mri showed mild gray matter changes, they say not enough to mean anything.
What should I be doing differenlty to get help?
It's hot here the past 2 days and my headaches and dizziness has increased

[kwarendorf]

One of the things I like about this forum is that people can express their opinions freely. We don't always agree with other's views, but that's OK.

This group seems to have enough collected smarts to sort the wheat from the chaff :-)

Kyle

[ghost39]

With due respect, this is your opinion based on no scientific or medical knowledge, and to be honest my opinion tells me it is not plausible and highly unlikely.
No offense meant, however we need to be mindful of the vulnerability of some people looking for answers.

[elizard22]

I literally bounced on here because I was looking up something with hot flashes (darn it - waking me up when my biggest issue is sleep)...but it's not that I don't know what it is...

I will rattle this off because frankly anyone in an 'MS' community needs this info and take from it what you will...

In my view, all of RRMS is mercury poisoning. End stop. I was diagnosed with clinical MS 12 yrs ago and I made the connection with the Hep B shot that had thimerosal in it.

It wasn't the shot, it was 20-25 yrs of dental amalgams. That's what is the duh that is poisoning all of us.

A knock in the head unfortunately if you had a bunch of mercury in your brain would do this...make things worse. And MD's, esp. neuros are mostly worthless. I stopped counting when I hit I think 12 over the years.

First it's mercury. Second it is candida overgrowth. Those are the two big issues I deal with and yes, I learned this on my own.

Just know this...although it's a darn long battle that I'm still fighting, it will result in real healing. It's all about safely and slowly getting enough brain mercury out.

Good luck to anyone who reads this.

[Juneau114]

I did have tilt table test, halter monitor, diabetes testing, thyroid testing, etc. I have had symptoms since the first time I passed out, nothing that I felt I needed medical help for.
Since the fall, I am getting worse not better, the Neurologist doesn't think I should be, so I am going for another opinion.
I have days where I can't walk straight, my hand writing is worse, can't seem to hold the pen the same way. I have muscle weakness, extremely tired, by 1:00 PM I am spent, hard to concentrate at work, Short term memory loss, can't go down steps very well, get very dizzy.
Needless to say, I am frustrated,,,

[Quixotic1]

Hi, and welcome to the forum.  In reading your post I wonder how you got the diagnosis of Mild MS 17 years ago.  Were there any other symptoms of MS since then, before this last concussion?  Passing out (or syncope) is not very  often associated with MS, especially as the only manifestation.

PCS can definitely last for months and I would be inclined to look to that as the cause for your current problems.

Has your work up for syncope included a full cardiac eval including a tilt table?

Quix, MD

[Juneau114]

I am actually going to Pittsburgh, Pa next month, due to my insurance I can't go to Cleveland.  Cleveland is a little closer and would love to go there, but, I work at UPMC and their insurance doesn't have Cleveland Clinic in network.
Gotta love insurance companies !!!!

[kwarendorf]

It looks like Cleveland is only about 90 minutes away. Have you tried there?

Kyle

[Juneau114]

I know the symptoms are very similar, but since i was diagnosed years ago, I don't  know what to think. I have had 3 episodes of passing out, with no reason found. I have see every specialist and nothing has been found.
I am taking Gabapentin, the only thing it does is make me sleep, headaches every day for 5  months, some more extreme than others, but always there. ( along with a list of other symptoms)
No, I'm not sure if the neuro is a MS doc, not sure if there is anyone near me that is specific to that

[kwarendorf]

I've read that the symptoms of PCS can last over a year. (Mayo CLinic website). I'm not saying you do or don't have MS. It seems to be too early to rule anything out. Is the neuro an MS doc?

Kyle

[Juneau114]

I have had blood work. Not sure what protocol was used for the MRI. The psychologist stated that post concussion syndrome usually lasts 10-14 days. I am going on 5 months...
I am scheduled with another neurologist in June, symptoms are getting worse, not better, thats what makes me believe its something else

[kwarendorf]

Welcome to the group!

It seems to me thagt while it may be unsatisfying, post concussion syndrome can't be ruled out. Although neither can many other things be tgaken off the table.

Having started your search with a pretty serious head knock, it would seem a logical, if inaccurate, conclusion for docs to reach.  Something is making you question them. Have you had tests beyond the MRI and CT; i.e. blood work? Was the MRI done using the MRI protocol? it uses thinner slices and sees things normal MRI do not.

Kyle