Aa
Need some input please
Long story sorry! This past week I have been to the er twice. First time I called 911. I was driving my daughter to work. I had a headache with nausau. Got here there but when I left I felt like I was gonna pass out. I called my husband and he said to come his way I tried but couldn't make It I pulled over. My hands got very tingly and clinched up I could barely dial 911. My speech was slurred. Got to er they pumped me full of meds did ct which was clear and said it was just a migraine. I have never had an episode like this. Since then I still have tingling all down my right arm and right leg. Now today my face is tingling. Yesterday I developed right side weakness. I am a lna and know when I am not up to par. My weakness is not alot where I have troubles walking it's just slight. My muscles feel like I have done a strenuous workout and are sore. Headache and nauseous are still here as well just not as extreme as first day.
I went to er last night. They did blood work which all came fine except potassium was low. Ekg was fine. Ct fine. Mri was not there so I have to have my doctor schedule one (god only knows how long that will take). He said to follow up with neurologist which I already had told my doctor I wanted to do but the doctor wouldn't put a rush on it. Neurologist best in town has no appointments till mid September. I am at a lose here. Something is going on that is I feel not good but everyone else is just laid back about it. The er doc was wonderful he felt it was most definitely not a stoke because I had a headache but no brain bleed on ct. Thinks could still be just a migraine, something nerve related or clogged artery.
I never thought ms till a few people asked if it runs in family and if doctors were questioning it. I don't think they were but now I am since I have now read up on it and think I have alot of the symptoms.
What do you guys think? Thanks so much for your insight on this!!
I went to er last night. They did blood work which all came fine except potassium was low. Ekg was fine. Ct fine. Mri was not there so I have to have my doctor schedule one (god only knows how long that will take). He said to follow up with neurologist which I already had told my doctor I wanted to do but the doctor wouldn't put a rush on it. Neurologist best in town has no appointments till mid September. I am at a lose here. Something is going on that is I feel not good but everyone else is just laid back about it. The er doc was wonderful he felt it was most definitely not a stoke because I had a headache but no brain bleed on ct. Thinks could still be just a migraine, something nerve related or clogged artery.
I never thought ms till a few people asked if it runs in family and if doctors were questioning it. I don't think they were but now I am since I have now read up on it and think I have alot of the symptoms.
What do you guys think? Thanks so much for your insight on this!!
I had them check my d 25 and my results came back low at 15. Doc prescribed 50,000 iu for 8 weeks then retest. I am still waiting to see neurologist on the 11th. It's getting closer finally. :)
Hello everyone I have an update but first wanted to address my BP issue. My doctor is not doing anything for my high bp Cuz I only have high bp when I am having an episode. 99% of the time it is in normal range. So there is no point to treat it.
Now my update. I had called my doctor and asked them to do a few blood tests.b12 and vitamin d. However they ordered the d 125 not the d 25. My b 12 came back normal but the d 125 came back slightly elevated. Doctor said she was not concerned but it made me do more reading and discovered that that was not the test to use to see if there is a deficiency. I also read that most people with elevated d 125 have A d deficiency. Do you think I should call doctors and see if the will order the other one. I would like to have all my ducks in a row when I see neurologist next month.
Now my update. I had called my doctor and asked them to do a few blood tests.b12 and vitamin d. However they ordered the d 125 not the d 25. My b 12 came back normal but the d 125 came back slightly elevated. Doctor said she was not concerned but it made me do more reading and discovered that that was not the test to use to see if there is a deficiency. I also read that most people with elevated d 125 have A d deficiency. Do you think I should call doctors and see if the will order the other one. I would like to have all my ducks in a row when I see neurologist next month.
Well, the radiologist in the impressions section basically say this could be anything bar infection. The doctor is right in the sense that most people will have some hyperintensities found in the brain with age (not meaning 'old', just that most of us accumulate a bit of observable damage over time). If you've been having episodes of raised blood pressure, it's not unreasonable to expect some related MRI changes.
The MRI did give you and your treating doctor (not the ER doctor whose sole remit is to treat and triage emergency cases) a plan, however. MRI in three months for comparison and suggestion to get a lumbar puncture.
Has your GP put you on a treatment plan for your blood pressure? If you still think this may be MS, the plan mentioned on the MRI is appropriate. It can take a while to diagnose and having a comparison MRI months down the road and additional testing such as a lumbar puncture is par for the course. I will say nothing you mention screams MS to me as a layman with the disease, however.
The MRI did give you and your treating doctor (not the ER doctor whose sole remit is to treat and triage emergency cases) a plan, however. MRI in three months for comparison and suggestion to get a lumbar puncture.
Has your GP put you on a treatment plan for your blood pressure? If you still think this may be MS, the plan mentioned on the MRI is appropriate. It can take a while to diagnose and having a comparison MRI months down the road and additional testing such as a lumbar puncture is par for the course. I will say nothing you mention screams MS to me as a layman with the disease, however.
So today I went to work as normal, a few hours later my left side went weak and had tingling in my hand. my BP was 150/100. I left work and went to ER cuz something is going on I cant live and work like this. Well I get in pretty quickly however I had the same doctor who a few months back had dismissed me just as quick as I came in and it turned out I had pneumonia. SO I knew this guy wasn't going to do anything. My bp in there was 156/109. this is the 3rd time 3 episodes where my diastolic has been this high. Anyway he comes in and has me squeeze fingers, press up, press down etc. He and I could see pretty clearly that my left side is weaker. I told him everything that's been going on and he went to go look at my mri and mra(that was done on Tuesday). he came back and says all was clear you are fine there is nothing serious going on. I told him my doc told me that my mri was not clear(normal). SO he went and checked it out again. He then came back and said "you were right however everyone has things like this on their brain". You don't need to be worried. So I asked what could be causing these things to happen and he said he didn't know but there was no testing he could do to figure it out and it was not anything serious like a stroke or TIA etc. I was so pissed!!!
Now he brought me a copy of my mri results and here is some of what was in it. There is a few subcortical white matter t2/flair hyperintensities. these include foci in the left frontal lobe near the vertex, in the left parietotemporal region, in the parafalcine right frontal region. there are similar lesions in the right paritel region and in the left parietooccipital region. orbits unremarkable. there is a rightward bowing of the nasal septum.
impression: several nonenhancing t2/flair hyperintense foci of the subcortical white matter in the bilateral cerebral hemispheres. Apperance is nonspecific, but appearance can be associated with demyelinating disease, embolic phenomenon, vasculitis, and migraines. The pattern is not typical of lyme disease or other infection, but these should be considered clinically.
Recommended clinical correlation and consideration for csf analysis. otherwise would suggest a follow up brain mri in 3 months to include sagittal flair and coronal flair imaging.
Now how the heck can this er doc say nothing is going on?? I hate that guy! And what do you guys think of these mri findings?
Sorry this is so long again!! Thanks so much if you made it through this with me. lol
Now he brought me a copy of my mri results and here is some of what was in it. There is a few subcortical white matter t2/flair hyperintensities. these include foci in the left frontal lobe near the vertex, in the left parietotemporal region, in the parafalcine right frontal region. there are similar lesions in the right paritel region and in the left parietooccipital region. orbits unremarkable. there is a rightward bowing of the nasal septum.
impression: several nonenhancing t2/flair hyperintense foci of the subcortical white matter in the bilateral cerebral hemispheres. Apperance is nonspecific, but appearance can be associated with demyelinating disease, embolic phenomenon, vasculitis, and migraines. The pattern is not typical of lyme disease or other infection, but these should be considered clinically.
Recommended clinical correlation and consideration for csf analysis. otherwise would suggest a follow up brain mri in 3 months to include sagittal flair and coronal flair imaging.
Now how the heck can this er doc say nothing is going on?? I hate that guy! And what do you guys think of these mri findings?
Sorry this is so long again!! Thanks so much if you made it through this with me. lol
Distraction is good. I distract myself with ice cream or puppy time. Anything to not worry. I used to play out doctors conversation in my head over and over. Sometimes it calmed me more so it riled me up. I got caught up in being right,
Ice cream is better. Can you imagine a doctors visit where you are both eating your favorite food!
Alex
Ice cream is better. Can you imagine a doctors visit where you are both eating your favorite food!
Alex
Yes this is the one I have to wait till September. I am on a cancellation list though so hopefully get in sooner. I understand I am at a wait and see point but at least I know more then I did. And at least things are narrowing down.
Thanks so much for everyone's input!!
Tanya
Thanks so much for everyone's input!!
Tanya
I guess it is up to the Neurologist. Is that the one you have to wait until September to see? I am so sorry this is a lot to have to think about.
I have pretty bad headaches I have had some last a week. But I also have MS they have never said if they are related.
Unfortunately you have no choice but to take it one step at a time. Hopefully you will get an answer quickly. I sometimes had to wait months to see Specialists. Then months for the results of tests. I wish things were faster.Here a MS Specialist could take 6 months because they are so few.
Alex
Alex
I have pretty bad headaches I have had some last a week. But I also have MS they have never said if they are related.
Unfortunately you have no choice but to take it one step at a time. Hopefully you will get an answer quickly. I sometimes had to wait months to see Specialists. Then months for the results of tests. I wish things were faster.Here a MS Specialist could take 6 months because they are so few.
Alex
Alex
I would wait until I discussed the MRI results with the neurologist before putting too much stock into what's said. Radiologists don't diagnose, they just report findings and develop a 'short list' of possibilities. Saying 'small foci' does make me think more of ischemic changes (likely what your doctor was mentioning when he brought up blood) or migraines.
A more typical result when dealing with MS are lesions in the millimetre range (larger than foci), characterised as ovoid, and found in a typical area for MS (peri-ventricular, for example). None of this is to say that everyone with MS fits this perfect pattern, but it does mean migraine or ischemic changes may be given more consideration.
A more typical result when dealing with MS are lesions in the millimetre range (larger than foci), characterised as ovoid, and found in a typical area for MS (peri-ventricular, for example). None of this is to say that everyone with MS fits this perfect pattern, but it does mean migraine or ischemic changes may be given more consideration.
Update:
I had my mri/mra. The mra of my neck and brain were clear. The mri on other hand showed multiple small foci. According to my doctor the radiologist noted that the possibilities for these were MS, something with heart where it causes blood clots to be released and goes to my brain , and the migraines.My doctor doesn't think it's heart related but has ordered a stress echo this tuesday. So that leaves me with MS or just migraines. I would really like to believe it's just migraines but I really want them to rule out MS.
I was scheduled to go back to college this fall for radiology (funny huh) but I did postpone it due to all this. I want to make sure I am healthy enough to make it through the whole 2 yrs of school. Having a diagnosis will make it easier to decide whether I will even do school or just postpone it.
What do u guys think of my mri results?
Thanks
Tanya
I had my mri/mra. The mra of my neck and brain were clear. The mri on other hand showed multiple small foci. According to my doctor the radiologist noted that the possibilities for these were MS, something with heart where it causes blood clots to be released and goes to my brain , and the migraines.My doctor doesn't think it's heart related but has ordered a stress echo this tuesday. So that leaves me with MS or just migraines. I would really like to believe it's just migraines but I really want them to rule out MS.
I was scheduled to go back to college this fall for radiology (funny huh) but I did postpone it due to all this. I want to make sure I am healthy enough to make it through the whole 2 yrs of school. Having a diagnosis will make it easier to decide whether I will even do school or just postpone it.
What do u guys think of my mri results?
Thanks
Tanya
COMMUNITY LEADER
Hi and thanks for letting us know your update. I thought you should know that driving can trigger migraines or motion sickness, there is a lot of information about this issue online but here's one article for you to have a read that has some tips on how to deal with it......
http://migraine.com/blog/driving-migraine-trigger/
Cheers............JJ
http://migraine.com/blog/driving-migraine-trigger/
Cheers............JJ
Update:
My mri and mra are in the works I hope to have these done this week or next. And the refferal to neurologist will be done after those tests are done.
I also wanted to find out if anyone has experienced any impairment when driving, since the incident last Tuesday I have not driven up until yesterday. I went a short distance but started to not feel well kind of nauseous and a small headache. Today I had to drive alot of the day and had a significant headache and again nauseous but I was also kind of disoriented. Like I went a way I wouldn't normally go and I couldn't answer questions while driving as I could only focus on that. I am feeling like I am on a steady decline :(
My mri and mra are in the works I hope to have these done this week or next. And the refferal to neurologist will be done after those tests are done.
I also wanted to find out if anyone has experienced any impairment when driving, since the incident last Tuesday I have not driven up until yesterday. I went a short distance but started to not feel well kind of nauseous and a small headache. Today I had to drive alot of the day and had a significant headache and again nauseous but I was also kind of disoriented. Like I went a way I wouldn't normally go and I couldn't answer questions while driving as I could only focus on that. I am feeling like I am on a steady decline :(
COMMUNITY LEADER
Hi and welcome to out little MS community,
As strange as it may seem, a server migraine can cause stroke like sx's such as you've described, so migraine could actually be the explanation but because your sx's are unilateral (one side only) and has continued for days, then MS could be an alternate explanation for your sx's too. Though it's advisable to keep in mind, that MS does have many mimics and migraine is one of them.
You already have a history of migraines, and if this actually did all start like your migraines typically would, then it would be highly possible that this was one of your migraines but more server than you've ever had before. It would still be a good idea to follow up with a neurologist though, the waiting can be understandably frustrating but out side of an emergency like a stroke, most other neurological conditions are generally very slow moving.
Take a deep breath and try to not to get too worried about it being something else, you'll get a better idea of if it really is something more than what you already know after you've seen the neurologist and until then try to keep it all in perspective and breath.
Cheers..........JJ
As strange as it may seem, a server migraine can cause stroke like sx's such as you've described, so migraine could actually be the explanation but because your sx's are unilateral (one side only) and has continued for days, then MS could be an alternate explanation for your sx's too. Though it's advisable to keep in mind, that MS does have many mimics and migraine is one of them.
You already have a history of migraines, and if this actually did all start like your migraines typically would, then it would be highly possible that this was one of your migraines but more server than you've ever had before. It would still be a good idea to follow up with a neurologist though, the waiting can be understandably frustrating but out side of an emergency like a stroke, most other neurological conditions are generally very slow moving.
Take a deep breath and try to not to get too worried about it being something else, you'll get a better idea of if it really is something more than what you already know after you've seen the neurologist and until then try to keep it all in perspective and breath.
Cheers..........JJ
The main thing is to be followed by a doctor you trust. It can takes years for a diagnosis. In the mean time go for symptom relief.
Ale
Ale
Yes I have head sever headaches with nausea but never this sever. This is all new and need them to figure out what is going on. Thanks for your reply!
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