fatigue

[noo19noo]

Hi guys hope everyone has had a wonderful  easter break. I spent 2 weeks in northen Australia 35°and humid.
Symtoms where present both arms where heavy both legs where like they where made of lead and fatigue  was there constantly.
Its my first holiday to a warmer place with my patner and 3 kids,  teared up a few times as i found out my limits pretty quickly. (Was harder for my kids as they want me to run and jump inti the pool ect)
My first onset was  on both sides of my body as it continues to be the same.
Im struggling with  fatigue.
Is anyone on anything for it .
  Love to hear you thoughts.

[bbassel]

My neurologist told me that it is normally not abused with MS patients.
She said that studies have shown when you actually need the drug for fatigue etc, it doesn't usually get abused.
I only take it when needed and also take naps instead of taking. A pill and staying awake.
I don't feel jittery or 'bbuzzed' in any way and feel almost 'normal' without the heaviness of exhaustion.
I like knowing that I have an option for a day where I have to stay awake for more than 3 or 4 hours at a time.
I think adderral is a little stronger but they are essentially the same sort of medication.

Bbarb

[essdipity]

Is Fampriya an alternative name for Ampyra? I tried Ampyra for fatigue, also Amantadine and Modafinil (Provigil) with zero results. For over a year now I've been on Adderall, which is very similar to Ritilin.

This is a very strictly controlled drug, as it's a kind of amphetamine, and some people do abuse it. For me, it helps somewhat, when nothing else did. I don't feel speeded up at all, just sort of semi-normal, but I sure can tell when it wears off, as then I tend to crash, in a way. I get overcome with weariness. If I have a day where I don't have many obligations and I wake up tired, I'll skip the Adderall and nap to the extent I can (which is a whole other problem for me).

I don't like having to take this, or really any med, but reality is reality. I've had to face it that my supply of energy is very limited, and when it's gone, it's gone. I try not to demand too much of myself physically, but still am learning lessons in this regard. If I have a choice between not medicating (feeling wiped out so much of the time), and taking Adderall, I've reluctantly chosen the latter. However, I go off it periodically without any withdrawal consequences, which my doctor told me is normal when the med is not being abused.

ess

[bbassel]

Hello and I am sorry to hear about your troubles while on vacation. I can relate and have teared up many times when my body didn't do what it was supposed to do.

I actually just saw my neurologist yesterday and was finally put on ritalin. I have only taken two pills but they seem to work. Sincce it is an abused drug we had to try everything else first.

I was on amantidine, modafinil, fampriya(which is usually for walking but has shown to help some people with fatigue), aand finally ritalin. It has taken about two years to get to this point.

I hope that helped a bit and good luck,

Barb

[Joiedecour]

I have been taking amantadine over the past six months but just stopped taking it over last few weeks. It did help but I feel uncomfortable on drugs without dx and life is less crazy now at work so I can fit in more sleep when needed. I was also starting to see some weird looking things with my legs and frankly I am a little vain. My legs hurt though more after stopping and I know the stuff did help with early fatigability in my case. Today I went to yoga and I was trembling like a leaf without it. If you can manage without great but maybe have a backup in case of need ?

[HVAC]

The way you look at energy (MS fatigue) is like money in the bank. Once it is spent it is gone. What you need to figure out is what is most important to do. Like do your most active stuff first thing in the morning. You normally run out of gas. You are going a long and all sudden you crash. It is hard for others to understand.

Alex