New symptom, feeling yucky

[Momzilla]

Hi, everyone~

Although I really enjoy being one who is there to help answer questions (or direct everyone to Dr. Q's informative posts), and at least try to buoy spirits, I am finding myself increasingly "needy" lately.  I know I'm in the right place with all my friends!

I shared recently that I am currently being tested by a very interested, empathetic neurologist (Thank you, God!) and just in the nick of time, as I was at the end of my rope, really, here in Limbo.  

I haven't shared that I am having hot flashes.  Yea!  A sign that I am entering another phase of life, that cool club of women that seem so wise and at ease with themselves, even with their fans in hands.  My 'flashes' are not uncomfortable, especially since I'm a Northern girl in the middle of a frosty, snowy winter right now.  I bring this up, because, I am waking in the night a few times with these little reminders of my new approaching wisdom.  

I also have had very strong facial parasthesias lately, and hardly any sensation on the left side of my face or nose anymore.  Well, when I wake in the night and when I wake with my alarm clock, sometimes my left eyelid doesn't open.  I noticed this first when I woke up with my alarm clock.  It didn't open, and I thought it was stuck with the crusties, or something, but it wasn't.  I had to "think" to open it.  When it opened, it was fine.  I was groggy, so I kind of forgot about it until it happened again.

Then when I started waking in the night with my warm epiphanies, I noticed that, again, my left eyelid, didn't "know how to" or "didn't know it was time to" open.  I had to "think" it open.  Once open, it's fine.  Not ptotic or droopy.  Perfectly fine.  It just needs a kick start.  

My right popped open as it always does.  This has happened maybe 5 times that I recall now.  It bothers me, because of the symptoms I have with that side of my face.  Also, the left side of my face doesn't "smile" as big as my right.  I know I haven't had a stroke, and I have had an MRA done, which was fine.

I'm kind of weirded out about it.  I will call the doctor's office tomorrow to report it, but wondered what anyone else thought.  Has it happened to you?

Thanks,

I know there is a question about my "handle" now...I would love to go around as Hot Pants, but my 7 yr old reminded me about how very 'squishy' my behind is yesterday, as he bounced his basketball off of it several times.  Alas, I must remain....

Zilla*

[Quixotic1]

Hi, guys.  What Zilla is describing is called blepharospasm, a spasm of the muscle that closes the eye.  In the context of MS it is caused by a lesion on the brainstem, but it can occur all by itself (essential) or in other neuro diseases.  You can google "blepharospasm."  And it is not related to the blessed time of life....Zilla...you can have all my wisdom if I can get rid of these blessed events.

Q

[nette573]

My eye has not been that bad yet.  My right side of face is more drooping than usual and my eye is also but it will open.  When I have over done it and are really tired it really is drooping and I catch people starring at my face.  Its really upsetting.  

Do call your doctor and let him check you out!  You are very supportive of everyone.

Prayers to ya,
LYn ette

[sllowe]

Hey Zilla Girl,

I'm sorry you have all this going on.  I'm also sorry I haven't been around, although you've had enough to keep you busy.  I wanted you to know that YOU rock, and I'm so proud of how you've gotten through the past week.  

You've got a lot lined up, through your persistance. Please, please Zilla, tell some about this, let them see it.  It's not responding properly, something is going on. . . .

Your tough as nails, I, we know this, but girl it's time for some answers. Call that Dr.  Go see him/her. . . .let them take a look, before the MRI (you snky fibber - LOL, I couldn't be more proud of that thread).

Maybe they will add the brain again (if they didn't already).

Much love to you girl,
Shelly

[ELT]

Hey again, I mentionned my right eyelid doing that one day.  It was like that as i walked through IKEA lol, ppl looked at me a little oddly.

   What I was getting to, was that that was the eye I initially had trouble with.  But it is now my left eye which is bothering me.  The right eyelid never did it again, it is just a little droopier than the left one.

   My left eyelid was twitching like mad for over a month, starting in nov., Then I got vaseline smear vision for a cpl weeks, this has almost entirely cleared up, cept when i got a little hot, cause of anger at stupid man friend, lol.  

   I have lots of facial stuff going on.  What appears to be bilateral trigeminal neuralgia.  So, I wouldn't be surprised to find out my drooped lid was the first sign of facial difficulties for me.  I couldn't will mine open from when I got up at 5:30 in the am, til almost bed at 8.  I held off getting it looked at, cause I was out of town and figured I'd see my doc next day.

   It never reappeared, so far.  The twitching left lid and then visual stuff makes me a little worried.  My whole face seems to be involved now.

   Erica

[Rena705]

Hi Zilla...sounds like you are acting up again to get more attention!  I thought we told you to stop doing that!  If you want more attention, just ask!

Seriously though honey, from one that has a droopy eye and chronic left side facial numbness, what you have doesn't sound even close to what I have.  Is your whole side of your face sagging?  Have you looked up Bell's Palsy?  My Mother has had it and it was so severe that she was unable to open her eye on the side that was affected.  We noticed that her face was sort of droopy and her smile was limited on one side.  Might be something to Google honey...just a thought.

As far as the night sweats, I went through a bout of that in Oct. 2007 but didn't mention it to anyone hoping it would go away...I am only 44 and NOT ready for that!  I haven't heard that there could be a neurological connection but why not...there seems to be a connection to everything else doesn't there???  I would call my neuro about the face thing though...it could be serious and I don't think it's something to wait on really..do you?

Lots' of Hugs,

Rena

[LLWB]

I would raise you two hot flashes, and take 3 cards..Just another phase of life! Just think, you can't have a brother for your son!! But joking aside, please do call your doc when you can. Having to "think" your eve open doesn't sound good.Take care of yourself, so you can take care of us................Maggie