OK. I need help...

[Momzilla]

Hey, everybody!  As you know, I don't have a diagnosis of any kind.  I have been posting on this forum since April, I believe.  Although my docs aren't sure what's going on with me, I have severe muscle cramps and tightness ALL over.  It's driving me crazy!

My neuro has observed increased muscle tone in all four limbs, so I know I'm not making it up, at least.  He just doesn't know the cause yet.  So my question is this~~

What do I do???

I know you all have given me your remedies before.  I need them again, please!  I'm in so much pain!  My jaw hurts, my toes are sticking out every which way, my neck is as hard as a rock!  My legs are the same as always -- like a gerbil is climbing around under my skin.  I'm naming him Goober.

I just sent my hubby to the store for tonic water.  Any other suggestions?

Goober's Mom*

[Momzilla]

Thanks, Tory!

I didn't know you had ON.  Are you in pain now with it?  I hope you feel well.  Thanks for the information.  

Are night sweats common with Lyme?  How dreadful!  That must ruin your sleep.

My brainfog at the moment is very much improved, too.  I did neuropsych testing, and I felt it went very well.  (But if it didn't--mabe I wouldn't know, right?  Ha ha!)

Keep on truckin'!

Zilla*

[tory2457]

Glad to hear you're remaining optomistic.

Here's a link that might be helpful:
http://cpmcnet.columbia.edu/dept/nyspi/flatp/brainimg.html

I'm progressing well, just got a change in protocol,,,and liking that my body reacts to this combo. Night sweats have increased again,,,but my brain fog is better.

Had a visual field exam and the dr asked me about my optic neuritis.. Said everything looks normal, but have to go back in January because of the ON.

I'll keep my fingers crossed for a diagnosis for you.

tory

[uk2]

Chris,

just to say Joyce Meyer rocks i joined her parnership ages ago she really is a real role model for women and tells how it is lol

Hope your well

Samantha

[Momzilla]

Hi, Ida~


Yes, the "Man" is taking good care of me, as always.  Thanks for your note.  The Bible is a wonderful way for God to come to you, as you know through the verses you're familiar with.  Without 'religion.'  I would be lost without mine!  It's my road map!  My owner's manual!  

Thanks so much again for your thoughts and prayers.  They mean so much!  I'll get to my diagnosis eventually.  In the meantime, I'll try monkeying around with the bananas, like you and Millerman...

WOW!  18!  I'll work my way up slowly....  Take care and have a wonderful day!

Zilla*

[Momzilla]

Hi, Tory!  Good to hear from you.  Actually, I had a PET scan done, and I'm pretty sure that ruled out Lyme.  My neurologist said he was not looking for Lyme, and they don't use PET imaging to diagnose Lyme, but that my images do not indicate a picture of a "Lyme case" at all.   We did talk about it.

My endo is thinking MS in the back of his mind, he says, and I haven't had any evoked potentials or anything like that.  Just MRIs, which have come back, of course....normal.  So, I'm hoping the endo will convinve my neurologist to do MS testing to rule that out once and for all.  LP for MS protocol and all that....

Thanks for writing...Hope you are well!

Zilla*

[tory2457]

Hi there Zilla,

So sorry to hear your still not diagnosed, and still feeling yucky.
I've agree you should try giving all kinds of docs and different remedies at try-until you find answers.

but, have you considered making an appt with a lyme specialist? Your symptoms sure sound like it could be a Tick-Borne Illness. Especially when your tests come back negative.

Much more that lyme at hand....Babesiosis, Bartonella, Mycoplasma  that could be what's wrong.

As much as you turn away from investigating this disease, please understand how difficult it is for me to ignore  your posts stating they can't find a diagnosis for you and that your testing is "normal".

in the lyme community many had the same complaint--all test results were negative and all kinds of specialist couldn't come up with a diagnosis...

Heck Polly Murray faced that very thing for years...(She was instramental in bringing LD out in the open,,,she lived in Lyme,CT.)

Wishing you the best,
tory